Advertisement

Applied Research in Quality of Life

, Volume 13, Issue 4, pp 1097–1115 | Cite as

Domain-Based and Overall Life Satisfaction for Youth with Chronic Conditions: The Role of Personal, Interpersonal, and Environmental Factors Over a One-Year Period

  • Janette McDougallEmail author
  • Virginia Wright
Article

Abstract

This paper examined the differential influences of personal, interpersonal, and environmental level factors on domain-based and overall life satisfaction over one year for youth with chronic health conditions. Baseline and Time 2 follow-up data were used from a study examining quality of life for a sample of 439 youth with chronic conditions, aged 11 to 17 years. The Brief Multidimensional Students’ Life Satisfaction Scale measured youths’ life satisfaction in five domains (i.e., satisfaction with self, family life, friendships, school experiences, where one lives) and in overall life. Six multivariate linear regression analyses were performed, each exploring relations of the hypothesized correlates at baseline with one aspect of life satisfaction at follow-up controlling for youth gender, age, household income, and the corresponding aspect of life satisfaction at baseline. Factors at all three levels were found to be important to some aspect of life satisfaction. Emotional well-being played a notable role in life satisfaction across multiple domains and in overall life satisfaction. Family-related factors were also significantly related to life satisfaction across several domains. Social support from close friends and teachers and the school environment were important to specific domains of life satisfaction. Classmate social support emerged as a key factor related to overall life satisfaction. Implications for practice and future research are discussed.

Keywords

Quality of life Life satisfaction Domains Adolescence Chronic conditions 

Notes

Funding

This research was funded by the Canadian Institutes of Health Research (MOP-100985-1).

Compliance with Ethical Standards

Conflict of Interest

The authors declare they have no conflict of interest.

References

  1. Anderson, K., & Burckhardt, C. (1999). Conceptualization and measurement of quality of life as an outcome variable for health care intervention and research. Journal of Advanced Nursing, 29(2), 298–306.CrossRefGoogle Scholar
  2. Bourke-Taylor, H., Howie, L., & Law, M. (2009). Impact of caring for a school-aged child with a disability: Understanding mothers’ perspectives. Australian Occupational Therapy Journal, 57(2), 127–136.CrossRefGoogle Scholar
  3. Branscombe, N., Daley, A., & Phipps, S. (2016). Perceived discrimination, belonging, and the life satisfaction of Canadian adolescents with disabilities. Working Paper No. 2016–05. Halifax, Nova Scotia: Dalhousie University.Google Scholar
  4. Bronfenbrenner, U. (1995). Developmental ecology through space and time: A future perspective. In P. Moen, G. Elder Jr., & K. Lüscher (Eds.), Examining lives in context: Perspectives on the ecology of human development (pp. 599–618). Washington, DC: American Psychological Association.CrossRefGoogle Scholar
  5. Bronfenbrenner, U., & Morris, P.A. (1998). The ecology of developmental processes. In W. Damon (Series Ed.) and R. M. Lerner (Vol. Ed.), Handbook of child psychology: Vol. 1. Theoretical models of human development, 5th edition (pp. 993–1028). New York: John Wiley.Google Scholar
  6. Brossard-Racine, M., Waknin, J., Shikako-Thomas, K., Shevell, M., Poulin, C., Lach, L., Law, M., Schmitz, N., QUALA Group, & Majnemer, A. (2013). Behavioural difficulties in adolescents with cerebral palsy. Journal of Child Neurology, 28(1), 27–33.CrossRefGoogle Scholar
  7. Chong, J., Mackey, A., Broadbent, E., & Stott, S. (2012). Children’s perceptions of their cerebral palsy and their impact on life satisfaction. Disability and Rehabilitation, 34(24), 2053–2060.CrossRefGoogle Scholar
  8. Chung, R., Burke, P., & Goodman, E. (2010). Firm foundations: Strength-based approaches to adolescent chronic disease. Current Opinions in Pediatrics, 22(4), 389–397.CrossRefGoogle Scholar
  9. Colarossi, L., & Eccles, J. (2003). Differential impact of support providers on adolescents' mental health. Social Work Research, 27(1), 19–30.CrossRefGoogle Scholar
  10. Combs-Orme, T., Heflinger, C., & Simpkins, C. (2002). Comorbidity of mental health problems and chronic health conditions in children. Journal of Emotional and Behavioral Disorders, 10(2), 116–125.CrossRefGoogle Scholar
  11. Davis, E., Waters, E., Mackinnon, A., Reddihough, D., Graham, H., Mehmet-Radji, O., & Boyd, R. (2006). Paediatric quality of life instruments: A review of the impact of conceptual frameworks on outcomes. Developmental Medicine & Child Neurology, 48(4), 311–318.CrossRefGoogle Scholar
  12. Davis, E., Shelly, A., Waters, E., Mackinnon, A., Reddihough, D., Boyd, R., & Graham, H. (2009). Quality of life of adolescents with cerebral palsy: Perspectives of adolescents and parents. Developmental Medicine & Child Neurology, 51(3), 193–199.CrossRefGoogle Scholar
  13. Diener, E. (2000). Subjective well-being: The science of happiness and a proposal for a national index. American Psychologist, 55(1), 34–43.CrossRefGoogle Scholar
  14. Dubow, E., & Ullman, D. (1989). Assessing social support in elementary school children: The survey of children’s support. Journal of Clinical Child Psychology, 18(1), 52–64.CrossRefGoogle Scholar
  15. Duckworth, A., Weir, D., Tsukayama, E., & Kwok, D. (2012). Who does well in life? Conscientious adults excel in both objective and subjective success. Frontiers in Psychology, 3(356), 1–8.Google Scholar
  16. Eiser, C., & Morse, R. (2001). Can parents rate their child’s health-related quality of life? Results of a systematic review. Child Care Health and Development, 10(4), 347–357.Google Scholar
  17. Elmore, G., & Huebner, E. S. (2010). Adolescents’ satisfaction with school experiences: Relationships with demographics, attachment relationships, and school engagement behavior. Psychology in the Schools., 47(6), 525–537.CrossRefGoogle Scholar
  18. Emerson, E., Honey, A., Madden, R., & Llewellyn, G. (2009). The well-being of Australian adolescents and young adults with self-reported long-term health conditions, impairments, or disabilities: 2001 and 2006. Australian Journal of Social Issues, 44(1), 39–54.Google Scholar
  19. Emerson, E., Llewellyn, G., Honey, A., & Kariuki, M. (2012). Lower well-being of young Australian adults with self-reported disability reflects poorer living conditions rather than health issues. Australian and New Zealand Journal of Public Health, 36(2), 176–182.CrossRefGoogle Scholar
  20. Esler, A., Godlber, Y., & Christenson, S. (2008). Best practices in supporting school-family relationships. In A. Thomas & J. Grimes (Eds.), Best Practices in School Psychology (Vol. 3, pp. 917–936). Washington, DC: National Association of School Psychologists.Google Scholar
  21. Etherington, N., McDougall, J., DeWit, D., & Wright, V. (2016). Maternal factors and the emotional andbehavioural functioning of adolescents with chronic health conditions. Disability and Rehabilitation, 38(14), 1359–1369.CrossRefGoogle Scholar
  22. Fayed, N., de Camargo, O., Kerr, E., Rosenbaum, P., Dubey, A., Bostan, C., Faulhaber, M., Raina, P., & Cieza, A. (2012). Generic patient-reported outcomes in child health: A review of conceptual content using the World Health Organization definitions. Developmental Medicine & Child Neurology, 54(12), 1085–1095.CrossRefGoogle Scholar
  23. Ferro, M., & Boyle, M. (2015). The impact of chronic physical illness, maternal depressive symptoms, family functioning, and self-esteem on symptoms of anxiety and depression in children. Journal of Abnormal Child Psychology, 43(1), 177–187.CrossRefGoogle Scholar
  24. Funk, B., Huebner, S., & Valois, R. (2006). Reliability and validity of a brief life satisfaction scale with a high school sample. Journal of Happiness Studies, 7(1), 41–54.CrossRefGoogle Scholar
  25. Gini, G., & Pozzoli, T. (2009). Association between bullying and psychosomatic problems: A meta-analysis. Pediatrics, 123(3), 1059–1065.CrossRefGoogle Scholar
  26. Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581–586.CrossRefGoogle Scholar
  27. Gortmaker, S., Walker, D., Weitzman, M., & Sobol, A. (1990). Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents. Pediatrics, 85(3), 267–276.Google Scholar
  28. Helliwell, J., Layard, R., & Sachs, J. (2011). World Happiness Report. Columbia University: The Earth Institute.Google Scholar
  29. Huebner, E., Drane, J., & Valois, R. (2000). Levels and demographic correlates of adolescents’ life satisfaction reports. School Psychology International, 21(3), 281–292.CrossRefGoogle Scholar
  30. Hung, J., Wu, Y., Chaing, Y., Wu, W., & Yeh, C. (2010). Mental health of parents having children with physical disabilities. Chang Gung Medical Journal, 33(1), 82–90.Google Scholar
  31. Hunt, S.M. (2009). Patterns of psychosocial functioning and mental health service utilization in children and adolescents with chronic health conditions or physical disabilities. All Graduate Theses and Dissertations. Paper 360.Google Scholar
  32. Hysing, M., Elgen, I., Gillberg, C., & Lundervold, A. (2009). Emotional and behavioural problems in subgroups of children with chronic illness: Results from a large-scale population study. Child, Care, Health & Development, 35(4), 527–533.CrossRefGoogle Scholar
  33. Jiang, X., Huebner, E. S., & Siddal, J. (2013). A short-term longitudinal study of differential source of school-related social support and adolescents’ school satisfaction. Social Indicators Research, 114(3), 1073–1086.CrossRefGoogle Scholar
  34. King, G., & Chiarello, L. (2014). Family-centred care for children with cerebral palsy: Conceptual and practice considerations to advanced care and practice. Journal of Child Neurology, 29(8), 1046–1054.CrossRefGoogle Scholar
  35. King, G., Specht, J., & Willoughby, C. (2004). Promoting success in school for children with special needs. (Focus On, Volume 4 Issue 2). London, ON: Thames Valley Children’s Centre.Google Scholar
  36. La Greca, A. M. (1990). Social consequences of pediatric conditions: Fertile area for future investigation and intervention. Journal of Pediatric Psychology, 15(3), 285–307.CrossRefGoogle Scholar
  37. Lavigne, J., & Faier-Routman, J. (1992). Psychological adjustment to pediatric physical disorders: a meta-analytic review. Journal of Pediatric Psychology, 17(2), 133–157.CrossRefGoogle Scholar
  38. Law, M., Finkleman, S., Hurley, P., Rosenbaum, P., King, S., King, G., & Hanna, S. (2004). Participation of children with physical disabilities: relationships with diagnosis, physical function, and demographic variables. Scandinavian Journal of Occupational Therapy, 11(4), 156–162.CrossRefGoogle Scholar
  39. Lerman, D., Vorndran, C., Addison, L., & Contrucci-Kuhn, S. (2004). Preparing teachers in evidence-based practices for young children with autism. School Psychology Review, 33(4), 510–526.Google Scholar
  40. Lindsay, S., & McPherson, A. (2012). Experiences of social exclusion and bullying at school among children and youth with cerebral palsy. Disability and Rehabilitation, 34(2), 101–109.CrossRefGoogle Scholar
  41. Luyckx, K., Missotten, L., Goosens, E., & Moons, P. (2012). Individual and contextual determinants of quality of life in adolescents with congenital heart disease. Journal of Adolescent Health, 51(2), 122–128.CrossRefGoogle Scholar
  42. Luyckx, K., Goosens, E., Rassart, J., Apers, S., Vanhalst, J., & Moons, P. (2014). Parental support, internalizing problems, perceived health status, and quality of life in adolescents with congenital heart disease: influences and reciprocal effects. Journal of Behavioral Medicine, 37(1), 145–155.CrossRefGoogle Scholar
  43. Maras, P., & Brown, R. (2000). Effects of different forms of school contact on children’s attitudes toward disabled and non-disabled peers. British Journal of Educational Psychology, 70(3), 337–351.CrossRefGoogle Scholar
  44. Matthews, M., Zullig, K., Ward, R., Horn, T., & Huebner, E. S. (2012). An analysis of specific life satisfaction domains and disordered eating among college students. Social Indicators Research, 107(1), 55–69.CrossRefGoogle Scholar
  45. McDougall, J., Wright, V., & Rosenbaum, P. (2010). The ICF Model of Functioning and Disability: Incorporating quality of life and human development. Developmental Neurorehabilitation, 13(3), 204–211.CrossRefGoogle Scholar
  46. McDougall, J., DeWit, D., Nichols, M., Miller, L., & Wright, F.V. (2016). Three-year trajectories of globalperceived quality of life for youth with chronic health conditions. Quality of Life Research, 25(12), 3157–3171.CrossRefGoogle Scholar
  47. McDougall, J., Wright, V., DeWit, D., & Miller, L. (2014). ICF-based functional components and contextual factors as correlates of perceived quality of life for youth with chronic conditions. Disability and Rehabilitation, 36(25), 2143–2151.CrossRefGoogle Scholar
  48. McDougall, J., Wright, V., Nichols, M., & Miller, L. (2013). Assessing the Psychometric Properties of both aGlobal and a Domain-Specific Perceived Quality of Life Measure when used with Youth who have Chronic Conditions. Social Indicators Research, 114(3), 1243–1257.CrossRefGoogle Scholar
  49. McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF Framework to studychanges in quality of life for youth with chronic conditions. Developmental Neurorehabilitation, 14(1), 41–53.CrossRefGoogle Scholar
  50. Nabors, l., Iobst, E., Weisman, J., Precht, B., Chiu, P., & Brunner, H. (2007). School support and functioning for children with rheumatic diseases. Journal of Developmental and Physical Disabilities, 19(1), 81–89.CrossRefGoogle Scholar
  51. Niemenin, P., Lehtiniemi, H., Vӓhӓkangas, K., Huusko, A., & Rautio, A. (2013). Standardized regression coefficient as an effect size index in summarizing findings in epidemiological studies. Epidemiology Biostatistics and Public Health, 10(4), e8854-1–e885413.Google Scholar
  52. Petrenchik, T. M., King, G. A., & Batorowicz, B. (2011). Children and youth with disabilities: Enhancing mental health through positive experiences of doing and belonging. In S. Bazyk (Ed.), Mental health promotion, prevention, and intervention in children and youth: A guiding framework for occupational therapy (pp. 189–205). Bethesda: The American Occupational Therapy Association.Google Scholar
  53. Proctor, C., Linley, A., & Maltby, J. (2009). Youth life satisfaction: A review of the literature. Journal of Happiness Studies, 10(5), 583–630.CrossRefGoogle Scholar
  54. Racine, E., Lariviere-Bastien, D., Bell, E., Majnemer, A., & Shevell, M. (2012). Respect for autonomy in the health care context: Observations from a qualitative study of young adults with cerebral palsy. Developmental Medicine & Child Neurology, 39(6), 873–879.Google Scholar
  55. Seligson, J., Huebner, E., & Valois, R. (2003). Preliminary validation of the Brief Multidimensional Students’ Life Satisfaction Scale (BMSLSS). Social Indicators Research, 61(2), 121–145.CrossRefGoogle Scholar
  56. Statistics Canada (1998). National Longitudinal Survey of Children and Youth: Survey instruments for 1994–95. Cat. No. 95–01. Ottawa, ON: Statistics Canada/Human Resources Development Canada.Google Scholar
  57. Stein, R., & Jessop, D. (1982). A noncategorical approach to childhood chronic illness. Public Health Reports, 97(4), 354–362.Google Scholar
  58. Stewart, D., Freeman, M., Law, M., Healy, H., Burke-Gaffney, J., Forhan, M., Young, N., & Guenther, S. (2009). The best journey to adult life for youth with disabilities: An evidence-based model and best practice guidelines for the transition to adulthood for youth with disabilities. Hamilton: CanChild: Centre for Childhood Disability Research.Google Scholar
  59. Verdugo, M., Schalock, R., Keith, K., & Stancliffe, R. (2005). Quality of life and its measurement: important principles and guidelines. Journal of Intellectual Disability Research, 49(10), 707–717.CrossRefGoogle Scholar
  60. von Weiss, R. T., Rapoff, M., Varni, J., Lindsley, C., Olson, N., Madson, K., & Bernstein, B. (2002). Daily hassles and social support as predictors of adjustment in children with pediatric rheumatic disease. Journal of Pediatric Psychology, 27(2), 155–165.CrossRefGoogle Scholar
  61. Weisleder, P. (2011). Family interventions to prevent maltreatment of children with disabilities. Journal of Child Neurology., 26(8), 1052–1053.CrossRefGoogle Scholar
  62. World Health Organization. (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization.Google Scholar
  63. World Health Organization. (2005/2006). The Health Behavior of School Aged Children Survey. Geneva: World Health Organization.Google Scholar
  64. World Health Organization Quality of Life Group. (1998). The World Health Organization Quality of Life Assessment (WHO-QOL): Development and general psychometric properties. Social Science and Medicine, 46(12), 1569–1585.CrossRefGoogle Scholar
  65. Ying-Keung, K. (2007). Life satisfaction and family structure among adolescents in Hong Kong. Social Indicators Research, 86(1), 59–67.CrossRefGoogle Scholar
  66. Zekovic, B., & Renwick, R. (2003). Quality of life for children and adolescents with developmental disabilities: Review of conceptual and methodological issues relevant to public policy. Disability and Society, 18(1), 19–34.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media B.V., part of Springer Nature and The International Society for Quality-of-Life Studies (ISQOLS) 2017

Authors and Affiliations

  1. 1.Thames Valley Children’s CentreLondonCanada
  2. 2.Bloorview Research InstituteTorontoCanada

Personalised recommendations