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Applied Research in Quality of Life

, Volume 11, Issue 3, pp 971–982 | Cite as

Development of a Health Related Quality of Life Measure for Adolescents and Young Adults Following Invasive Meningococcal Disease

  • Mark Shevlin
  • Pietro G. Coen
  • Jennie Borg
  • Robert Booy
  • Russell M. Viner
  • Deborah ChristieEmail author
Article

Abstract

This study describes the key areas that matter to adolescent survivors of Invasive Meningococcal Disease (IMD). Satisfaction with Life After Meningitis is a brief multidimensional measure of health related quality of life that is reliable and correlates with criterion variables in a theoretically meaningful way. To develop a Health Related Quality of Life (HRQoL) measure for adolescent and young adult survivors of (IMD) we used a cross-sectional study and focus groups. The study was conducted in two phases. In Phase 1 a pool of potential items were generated based on the following: a review of existing measures, focus groups with IMD survivors, and an expert group consultation. Phase 2 involved administration of the questionnaire to a sample of adolescent and young adult IMD survivors. Factor analysis suggested a correlated four factor solution: Wellbeing, Positive about Future, Social Support, and Confidence. These factors were significantly correlated in a theoretically predictable way with scores from the Beck Depression Inventory (correlations ranged from −0.77 to −0.81) and the eight domains of the SF-36 Health Survey (correlations ranged from 0.32 to 0.79). The reliability of all subscales was high ranging from 0.85 to 0.92. The Satisfaction with Life After Meningitis (SLAM) questionnaire is a HRQoL self-report measure that produces reliable scores and is appropriate for use with young survivors of IMD. There is also evidence of concurrent validity with existing measures of physical and psychological well-being.

Keywords

Adolescence Young adults Invasive meningococcal disease Health related quality of life Questionnaire 

Abbreviations

BDI

Beck depression inventory

IMD

Invasive meningococcal disease

HRQoL

Health related quality of life

QOL

Quality of life

SLAM

Satisfaction with life after meningitis

Notes

Acknowledgments

The development of SLAM was funded by the Meningitis Trust. The Meningitis Trust were not involved in the design and conduct of the study; collection, management, analysis, and interpretation of the data; preparation, review, or approval of the final manuscript.

We would like to thank all the young people who gave their time to meet with us and share their ideas and experiences.

Financial Disclosure

The authors have no financial relationships relevant to this article to disclose.

Conflict of Interest

The authors have no conflicts of interest to disclose.

Funding Source

The study was funded by the Meningitis Trust

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Copyright information

© Springer Science+Business Media Dordrecht and The International Society for Quality-of-Life Studies (ISQOLS) 2015

Authors and Affiliations

  • Mark Shevlin
    • 1
  • Pietro G. Coen
    • 2
  • Jennie Borg
    • 3
  • Robert Booy
    • 4
  • Russell M. Viner
    • 3
  • Deborah Christie
    • 5
    Email author
  1. 1.School of Psychology, Faculty of Life and Health SciencesUniversity of Ulster at Magee CampusNorthern IrelandUK
  2. 2.Centre for Child Health, Barts and the London School of Medicine and Dentistry, Queen Mary CollegeUniversity of LondonLondonUK
  3. 3.UCL Institute of Child HealthLondonUK
  4. 4.National Centre for Immunisastion research and SurveillanceChildren’s Hospital at Westmead and University of Sydney and Sydney Institute of Emerging Infectious Diseases and BiosecuritySydneyAustralia
  5. 5.Paediatric and Adolescent PsychologyUniversity College London HospitalsLondonUK

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