Advertisement

Applied Research in Quality of Life

, Volume 6, Issue 1, pp 71–80 | Cite as

Life Satisfaction in Persons with Late Effects of Polio

  • Maria Larsson LundEmail author
  • Jan Lexell
Article

Abstract

To assess satisfaction with life as a whole and with ten domains of life satisfaction in Swedish persons with late effects of polio, to describe the relationship with sex, age, marital status, use of mobility aids and self-perceived needs of instrumental support, and to compare the level of life satisfaction with a Swedish reference sample. A cross-sectional study of 160 persons with verified late effects of polio answered a postal questionnaire including the Life Satisfaction Questionnaire (LiSat-11). A majority were to some degree satisfied with life as a whole and with all the ten domains of life satisfaction. Satisfaction with life as whole was not related to any of the sociodemographic or disability related factors and these factors had few relations to the ten domains of life satisfaction. The respondents were significantly less satisfied with life as a whole and with vocation, leisure, sexual life, activities of daily living, and somatic and psychological health compared to the Swedish reference sample, but were significantly more satisfied with economy and contacts with friends. Men and women with late effects of polio, regardless of age, marital status or disability, can experience a reduced life satisfaction. This emphasises the need to identify potential gaps between these persons’ aspirations and achievements in life and carry out appropriate rehabilitation interventions to enhance their life satisfaction.

Keywords

Postpoliomyelitis syndrome Quality of life Rehabilitation Disability evaluation 

Notes

Acknowledgements

The authors are grateful to the persons who volunteered to participate. Maria Larsson Lund was supported by a personal grant from the Swedish council for working life and social research (FAS). The study was prepared within the context of the Centre of Ageing and Supportive Environments (CASE) at Lund University, funded by the Swedish Research Council on Social Science and Working Life, and had received financial support from the Swedish Association of Survivors of Traffic Accidents and Polio (RTP), Stiftelsen för bistånd åt rörelsehindrade i Skåne and Skane county council’s research and development foundation.

References

  1. Ahlstrom, G., & Karlsson, U. (2000). Disability and quality of life in individuals with postpolio syndrome. Disability and Rehabilitation, 22(9), 416–422.CrossRefGoogle Scholar
  2. Bränholm, I.-B., Eklund, M., Fugl- Meyer, K. S., & Fugl- Meyer, A. R. (1991). On work and life satisfaction. Journal of Rehabilitation Science, 4, 29–34.Google Scholar
  3. Bränholm, I.-B., Lundmark, P., Månsson, M., & Fugl-Meyer, A. R. (1996). On life satisfaction in subjects with neurological disorders. Neurol Rehabil, 2, 63–67.Google Scholar
  4. Burger, H., & Marincek, C. (2000). The influence of post-polio syndrome on independence and life satisfaction. Disability and Rehabilitation, 22(7), 318–322.CrossRefGoogle Scholar
  5. Farbu, E., Gilhus, N. E., Barnes, M. P., Borg, K., de Visser, M., Driessen, A., et al. (2006). EFNS guideline on diagnosis and management of post-polio syndrome. Report of an EFNS task force. European Journal of Neurology, 13(8), 795–801.CrossRefGoogle Scholar
  6. Fugl- Meyer, A. R. (1993). Rehabilitation in Europe: biostatistical or holistic? Tropical and Geographical Medicine, 45(5), 235–237.Google Scholar
  7. Fugl- Meyer, A. R., Bränholm, I.-B., & Fugl- Meyer, K. S. (1991). Happiness and domain specific life satisfaction in adult northern swedes. Clinical Rehabilitation, 5, 25–33.CrossRefGoogle Scholar
  8. Fugl-Meyer, A. R., Melin, R., & Fugl-Meyer, K. S. (2002). Life satisfaction in 18- to 64-year-old Swedes: in relation to gender, age, partner and immigrant status. Journal of Rehabilitation Medicine, 34(5), 239–246.CrossRefGoogle Scholar
  9. Halstead, L. S., Gawne, A. C., & Pham, B. T. (1995). National rehabilitation hospital limb classification for exercise, research, and clinical trials in post-polio patients. Annals of the New York Academy of Sciences, 753, 343–353.CrossRefGoogle Scholar
  10. Jonsson, A. L., Moller, A., & Grimby, G. (1999). Managing occupations in everyday life to achieve adaptation. American Journal of Occupational Therapy, 53(4), 353–362.Google Scholar
  11. Kemp, B. J., Adams, B. M., & Campbell, M. L. (1997). Depression and life satisfaction in aging polio survivors versus age-matched controls: relation to postpolio syndrome, family functioning, and attitude toward disability. Archives of Physical Medicine and Rehabilitation, 78(2), 187–192.CrossRefGoogle Scholar
  12. Kemp, B. J., & Krause, J. S. (1999). Depression and life satisfaction among people ageing with post-polio and spinal cord injury. Disability and Rehabilitation, 21(5–6), 241–249.Google Scholar
  13. Kind, P. (2001). Measuring quality of life in evaluating clinical interventions: an overview. Annals of Medicine, 33(5), 323–327.CrossRefGoogle Scholar
  14. Kling, C., Persson, A., & Gardulf, A. (2000). The health-related quality of life of patients suffering from the late effects of polio (post-polio). Journal of Advanced Nursing, 32(1), 164–173.CrossRefGoogle Scholar
  15. Larsson Lund, M., & Lexell, J. (2008). Perceived participation in the life situations in persons with late effects of polio. Journal of Rehabilitation Medicine, 40(8), 659–664.CrossRefGoogle Scholar
  16. Larsson Lund, M., & Lexell, J. (2009a). Associations between perceptions of environmental barriers and participation in persons with late effects of polio. Scandinavian Journal of Occupatinal Therapy, 16(4), 194–204.CrossRefGoogle Scholar
  17. Larsson Lund, M., & Lexell, J. (2009b). The relationship between participation in life situations and life satisfaction in persons with late effects of polio. Disability and Rehabilitation, 31(19), 1592–1597.CrossRefGoogle Scholar
  18. Larsson Lund, M., & Lexell, J. (2010). A positive turning point in life—how persons with late effects of polio experience the influence of an interdisciplinary rehabilitation programme. Journal of Rehabilitation Medicine, 42(6), 559–565.CrossRefGoogle Scholar
  19. Melin, R., Fugl-Meyer, K. S., & Fugl-Meyer, A. R. (2003). Life satisfaction in 18- to 64-year-old Swedes: in relation to education, employment situation, health and physical activity. Journal of Rehabilitation Medicine, 35(2), 84–90.CrossRefGoogle Scholar
  20. Nollet, F., Beelen, A., Prins, M. H., de Visser, M., Sargeant, A. J., Lankhorst, G. J., et al. (1999). Disability and functional assessment in former polio patients with and without postpolio syndrome. Archives of Physical Medicine and Rehabilitation, 80(2), 136–143.CrossRefGoogle Scholar
  21. Nollet, F., Beelen, A., Twisk, J. W., Lankhorst, G. J., & De Visser, M. (2003). Perceived health and physical functioning in postpoliomyelitis syndrome: a 6-year prospective follow-up study. Archives of Physical Medicine and Rehabilitation, 84(7), 1048–1056.CrossRefGoogle Scholar
  22. Nollet, F., Ivanyi, B., Beelen, A., De Haan, R. J., Lankhorst, G. J., & De Visser, M. (2002). Perceived health in a population based sample of victims of the 1956 polio epidemic in the Netherlands. Journal of Neurology and Neurosurgy in Psychiatry, 73(6), 695–700.CrossRefGoogle Scholar
  23. On, A. Y., Oncu, J., Atamaz, F., & Durmaz, B. (2006). Impact of post-polio-related fatigue on quality of life. Journal of Rehabilitation Medicine, 38(5), 329–332.CrossRefGoogle Scholar
  24. Post, M. W., de Witte, L. P., & Schrijvers, A. J. (1999). Quallity of life and the ICIDH: towards an integrated conceptual model for rehabilitation outcomes research. Clinical Rehabilitation, 13(1), 5–15.CrossRefGoogle Scholar
  25. Thoren-Jonsson, A. L. (2001). Coming to terms with the shift in one's capabilities: a study of the adaptive process in persons with poliomyelitis sequelae. Disability and Rehabilitation, 23(8), 341–351.CrossRefGoogle Scholar
  26. Thoren-Jonsson, A. L., & Grimby, G. (2001). Ability and perceived difficulty in daily activities in people with poliomyelitis sequelae. Journal of Rehabilitation Medicine, 33(1), 4–11.CrossRefGoogle Scholar
  27. Thoren-Jonsson, A. L., Hedberg, M., & Grimby, G. (2001). Distress in everyday life in people with poliomyelitis sequelae. Journal of Rehabilitation Medicine, 33(3), 119–127.CrossRefGoogle Scholar
  28. Trojan, D. A., & Cashman, N. R. (2005). Post-poliomyelitis syndrome. Muscle Nerve, 31(1), 6–19.CrossRefGoogle Scholar
  29. Willen, C., Thoren-Jonsson, A. L., Grimby, G., & Sunnerhagen, K. S. (2007). Disability in a 4-year follow-up study of people with post-polio syndrome. Journal of Rehabilitation Medicine, 39(2), 175–180.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media B.V./The International Society for Quality-of-Life Studies (ISQOLS) 2010

Authors and Affiliations

  1. 1.Department of Community Medicine and Rehabilitation, Occupational TherapyUmeå UniversityUmeåSweden
  2. 2.Department of Rehabilitation MedicineSkåne University HospitalLundSweden
  3. 3.Division of Rehabilitation Medicine, Department of Clinical SciencesLund UniversityLundSweden
  4. 4.Department of Health SciencesLuleå University of TechnologyLuleåSweden

Personalised recommendations