Subjective Quality of Life for Parents of Children with Autism Spectrum Disorders in Croatia
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The purpose of this study was to investigate the subjective quality of life (SQoL) of parents of children with autism spectrum disorders (ASD) who are primary carers. The study included 346 parents: 177 parents of children with ASD and 169 parents of non-disabled children comprised the control group. The Personal Wellbeing Index (PWI) was used to assess SQoL. Parents’ general health perception was assessed with a single question scored on a scale from 1 (poor health) to 5 (excellent health). Parents of children with ASD reported a significantly lower SQoL and general health perception with more physiological symptoms as compared to parents of non-disabled children. In Croatia parents of children with ASD, as primary caregivers, is an especially vulnerable part of the population and need increased social support and assistance in order to achieve and maintain the well-being of the whole family.
KeywordsSubjective quality of life Parents Autism spectrum disorders Caregivers Croatia
Subjective Quality of life
Autism spectrum disorders
Personal Wellbeing Index
This work was conducted within The National Strategy of Equalization of Possibilities for Persons with disabilities for 2007–2015. The authors specially thanks Ministry of Family, Veterans’ Affairs and Intergenerational Solidarity, employees of Autism Center Zagreb, employees in primary schools around Croatia and all the parents whose support this research.
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