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Parenting with Fetal Alcohol Spectrum Disorder

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Abstract

This paper focuses on issues associated with parenting and living with FASD. It is based on a larger research and video production project that examined the challenges, accomplishments and support needs of adults with FASD in relation to parenting, employment and the legal system. Using theoretical sampling techniques, in-depth, face-to-face interviews were conducted with a total of 59 people from 5 diverse communities in British Columbia; of these, 15 were adults with (suspected) FASD. Findings presented in this article relate to parents’ hopes, goals and accomplishments, parenting challenges, experiences with the child welfare system, and perceived barriers to support, including policy-related barriers. Findings also revealed prevailing ignorance about the nature of FASD and the day-to-day support needs of those living with FASD, which potentially have profound implications from both a health and a social justice perspective. For example, parents experienced reluctance to seek assistance for their secondary disabilities related to FASD (e.g., substance use or mental health problems), for fear of that their needs for support would be viewed as evidence of their parenting incapability. Highlighted will be directions for positive policy and practice-related change in working with parents with FASD.

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Notes

  1. This study was one of three inter-related projects undertaken from by the project team; the other two focused on employment-related issues for adults living with FASD, and on FASD and the criminal legal system.

  2. Expanded discussion of challenges associated with parenting with FASD, as well as useful parenting-related supports and strategies is contained in Parenting with FASD (Rutman et al. 2005).

References

  • Abel, E., & Sokol, R. (1987). Incidence of fetal alcohol syndrome and economic impact of FAS-related anomalies: drug alcohol syndrome and economic impact of FAS-related anomalies. Drug and Alcohol Dependency, 19(1), 51–70.

    Article  CAS  Google Scholar 

  • Abraham, V. (2005). An investigation into the needs of parents with fetal alcohol spectrum disorder (FASD). Unpublished Master’s Thesis. Prince George, BC: University of Northern British Columbia.

  • Boland, F., Chudley, A., & Grant, B. (2002). The challenge of fetal alcohol syndrome in adult offender populations. Forum on Corrections Research, Correctional Service of Canada. Retrieved from: www.csc-scc.gc.ca/text/pblct/forum/v14n3/index_e.shtml.

  • Burgess, D., & Streissguth, A. (1992). Fetal alcohol syndrome and fetal alcohol effects: principles for educators. Phi Delta Kappan, 74, 24–30.

    Google Scholar 

  • Calgary Network Alcohol Network. (2005). New perspectives on transitions and fetal alcohol spectrum disorders. Retrieved from: http://www.shoutoutdesigns.com/calgaryfasd/files/fasd_final_report.pdf

  • Copeland, B., & Rutman, D. (1996). Young adults with FAS/FAE: Experiences, needs, support strategies. Victoria: University of Victoria.

    Google Scholar 

  • Dubovsky, D. (2008). Co-occurring mental health disorders and misdiagnosis in FASD: Why do we need to know and what do we need to do about it. Presentation at National Fetal Alcohol Spectrum Disorders Conference: A Time for Change—Evidence and Strategies for Today, Tomorrow and Beyond. Madison, Wisconsin.

  • Fetal Alcohol Syndrome Society Yukon (FASSY). (2002). Trying differently: A guide for daily living and working with FAS and other brain differences. Whitehorse: Fetal Alcohol Syndrome Society Yukon.

    Google Scholar 

  • Ford, F., Bowie, T., Bradshaw, M., Johnson, P., & Price, A. (2001). Parents with fetal alcohol syndrome. Panel Discussion presented at “FAS & Other Drug-Related Effects: Building Hope” conference. Vancouver, BC.

  • Goldman-Segall, R. (1998). Points of viewing children’s thinking: A digital ethnographer’s journey. Mahwah: Erlbaum.

    Google Scholar 

  • Greenwood, M., & Shawana, P. (1999). Whispered gently through time, First Nations quality child care: A national study. Ottawa: Human Resources Development Canada.

    Google Scholar 

  • Hume, S., Rutman, D., Hubberstey, C., & MacFeeters, L. (2006). With a little help from my friends—final evaluation report. Unpublished Report. Victoria, BC.

  • Jones, K., Smith, D., Ulleland, C., & Streissguth, A. (1973). Pattern of malformation in offspring of chronic alcoholic mothers. Lancet, 1, 1267–1271.

    Article  CAS  PubMed  Google Scholar 

  • Lutke, J., & Antrobus, T. (2004). Fighting for a future. Retrieved from: http://www.fasdconnections.ca/HTMLobj-1807/fighting_for_a_future.pdf.

  • Malbin, D. (2002). Fetal alcohol syndrome/fetal alcohol effects: Trying differently rather than harder (2nd ed.). Portland: FASCETS.

    Google Scholar 

  • Morse, J. (1994). Strategies for sampling. In J. M. Morse (Ed.), Qualitative nursing research: A contemporary dialogue. Newbury Park: Sage.

    Google Scholar 

  • Patton, M. Q. (1990). Qualitative evaluation and research methods. Newbury Park: Sage.

    Google Scholar 

  • Poole, N., & Isaac, B. (2001). Apprehensions: Barriers to treatment for substance-using mothers. Vancouver, BC: Centre of Excellence for Women’s Health, and retrieved from: http://www.bccewh.bc.ca/Pages/pubspdflist4.htm.

  • Roberts, G., et al. (2007). A document review and synthesis of information on fetal alcohol spectrum disorder in Atlantic Canada. Report prepared for the Public Health Agency of Canada, Atlantic Region, and Health Canada, Atlantic Region—First Nations and Inuit Health. Retrieved from: atlantic.phac.gc.ca.

  • Royal Commission on Aboriginal Peoples. (1996). People to people, nation to nation: Highlights from the report of the royal commission on aboriginal peoples, Minister of Supply and Services.

  • Russell, D. (2003). IQ—it just doesn’t matter: The role of adaptive functioning in individuals with FAS/FAE/ARND. Conference presentation made at Fetal Alcohol Spectrum Disorder—Doing What Works Vancouver, BC.

  • Russell, D. (2007). IQ vs adaptive functioning in individuals with FASD: The saga continues. Conference presentation made at Fetal Alcohol Spectrum Disorder—Research, Policy and Practice Around the World. Vancouver, BC.

  • Rutman, D., Callahan, M., Lundquist, A., Jackson, S., & Field, B. (2000). Substance use and pregnancy: Conceiving women in the policy making process. Ottawa: Status of Women Canada.

    Google Scholar 

  • Rutman, D., La Berge, C., & Wheway, D. (2002). Adults living with FAS/E: Experiences and support issues in British Columbia. Vancouver: FAS/E Support Network of BC.

    Google Scholar 

  • Rutman, D., La Berge, C., & Wheway, D. (2005). Parenting with FASD: Challenges, strategies and support. Victoria: University of Victoria.

    Google Scholar 

  • Sampson, P., Streissguth, A., Bookstein, F., Little, R., Clarren, S., Dehaene, P., et al. (1997). Incidence of fetal alcohol syndrome and prevalence of alcohol-related neurodevelopmental disorder. Teratology, 56, 317–26.

    Article  CAS  PubMed  Google Scholar 

  • Sandelowski, M. (1986). The problem with rigor in qualitative research. Advances in Nursing Science, 8(3), 27–37.

    CAS  PubMed  Google Scholar 

  • Stratton, K., Howe, C., & Battaglia, F. (eds). (1996). Fetal alcohol syndrome: Diagnosis, epidemiology, prevention, and treatment. Committee to Study Fetal Alcohol Syndrome, Institute of Medicine. Washington: National Academy of Sciences.

    Google Scholar 

  • Streissguth, A., Barr, H., Kogan, J., & Bookstein, F. (1996). Understanding the occurrence of secondary disabilities in clients with fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE). Seattle: University of Washington, School of Medicine.

    Google Scholar 

  • Tait, C. (2003). Fetal alcohol syndrome among aboriginal people in Canada: Review and analysis of the intergenerational links to residential schools. Ottawa: Aboriginal Healing Foundation.

    Google Scholar 

  • Van Bibber, M. (1997). It takes a community: A resource manual for community-based prevention of fetal alcohol syndrome and fetal alcohol effects. Ottawa: Minister of Public Works and Government Services Canada, and the Aboriginal Nurses Association of Canada.

    Google Scholar 

  • Weiner, L., & Morse, B. (1994). Intervention and the child with FAS. Alcohol, Health & Research World, 18, 67–72.

    Google Scholar 

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Authors and Affiliations

  1. Research Initiatives for Social Change unit, School of Social Work, University of Victoria, Victoria, British Columbia, Canada

    Deborah Rutman

  2. Qualicum Beach, British Columbia, Canada

    Marilyn Van Bibber

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  1. Deborah Rutman
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  2. Marilyn Van Bibber
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Correspondence to Deborah Rutman.

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Rutman, D., Van Bibber, M. Parenting with Fetal Alcohol Spectrum Disorder. Int J Ment Health Addiction 8, 351–361 (2010). https://doi.org/10.1007/s11469-009-9264-7

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  • DOI: https://doi.org/10.1007/s11469-009-9264-7

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