Social Indicators Research

, Volume 82, Issue 3, pp 487–503 | Cite as

Coping with loneliness among the terminally ill

  • Ami RokachEmail author


Loneliness is a universal phenomenon, and its pain is intensified by a diagnosis of a terminal illness. The present study is an investigation of the strategies used by patients with Multiple sclerosis (MS), by individuals diagnosed with cancer, and by the general population to cope with loneliness. Three hundred and twenty nine MS patients, 315 cancer patients, and 391 participants from the general population answered a 34-item questionnaire. Results indicated that with the exception of Reflection and acceptance, Distancing and denial, and Increased activity, the three groups cope with loneliness significantly differently.

Key words

cancer illness loneliness multiple sclerosis terminal illness 


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  1. Atwood, J.D. and E. Weinstein: 2002, Family practice, family therapy: A collaboration of dialogue. Scholar
  2. Bascom G.S. (1984) Physical, emotional, and cognitive care of dying patients. Bulletin of The Menninger Clinic 48: 351–356Google Scholar
  3. Bloom J.R., Spiegel D. (1984) The relationship of two dimensions of social support to the psychological well being and social functioning of women with advanced breast cancer. Social Science and Medicine 19: 831–837CrossRefGoogle Scholar
  4. Bloom J.R., Kang S.H., Romano P. (1991) Cancer and stress: The effect of social support as a resource. In Cooper C.L., Watson M. (Eds.) Cancer and Stress: Psychological, Biological and Coping Studies John Wiley & Sons: New York 171–196Google Scholar
  5. Brannon L., Feist J. (1997) Health Psychology: An Introduction to Behaviour and Health. Brooks/ Coles: New YorkGoogle Scholar
  6. Cherry K., Smith D. (1993) Sometimes I cry: The experience of loneliness for men with AIDS. Health Communication 5: 181–208CrossRefGoogle Scholar
  7. Clark W.: 2002, Time alone. Canadian Social Trends, Statistics Canada # 11-008, pp. 2–6Google Scholar
  8. Cohen I.S. (1985) Psychosomatic death: Voodoo death in modern perspective. Integrative Psychiatry 16: 46–51Google Scholar
  9. Dunkel-Schetter C. (1984) Social support and cancer: Findings based on patient interviews and their implications. Journal of Social Issues 40: 77–98CrossRefGoogle Scholar
  10. Engleberg L. and L. Hilbrone: 1982, Psychosocial aspects of cancer, in D.M. Prescott and A.S. Flexer (eds.), Cancer, the Misguided Cell (Sinauer Associates, Sunderlander, MA)Google Scholar
  11. Friedman G., Florian V., Zernitsky-Shurka E. (1989) The experience of loneliness among young adult cancer patients. Journal of Psychosocial Oncology 7: 1–15CrossRefGoogle Scholar
  12. Fromm-Reichmann F. (1959) Loneliness. Psychiatry 22: 1–15Google Scholar
  13. Gordon S. (1976) Lonely in America. Simon & Schuster: New YorkGoogle Scholar
  14. De Haes J.C.J.M., Van Knippeberg F.C.E. (1985) The quality of life of cancer patients: A review of the literature. Social Science and Medicine 20: 809–817CrossRefGoogle Scholar
  15. Hagerty B.M., Williams R.A., Coyne J.C., Early M.R. (1996) Sense of belonging and indicators of social and psychological functioning. Archives of Psychiatric Nursing 10(4): 235–244CrossRefGoogle Scholar
  16. Halper J. (2001) Advanced Concepts in Multiple Sclerosis Nursing Care. Demos: New YorkGoogle Scholar
  17. Hansson R.O., Jones W.H., Carpenter B.N., Remondet I. (1986) Loneliness and adjustment to old age. International Journal of Aging and Human Development 24: 41–53Google Scholar
  18. Hartog J. (1980) The anatomization. In Hartog J., Audy R.J., Cohen Y.A. (Eds.) The Anatomy of Loneliness. International Universities Press: New York 1–12Google Scholar
  19. Holland J. (1977). Psychological aspects of oncology. Medical clinics of North America 61: 737–748Google Scholar
  20. Jones W.H., Rose J., Russell D. (1990) Loneliness and social anxiety. In Leitenberg H. (Eds.) Handbook of Social and Evaluation Anxiety Plenum: New York 247–266Google Scholar
  21. Kalb R.C. and L.C. Scheinberg (eds.): 1992, Multiple Sclerosis and the Family (Demos, New␣York)Google Scholar
  22. Keizer B. (1997) Dancing with Mr. D. Black Sueun: LondonGoogle Scholar
  23. Kennedy S., Kielcolt-Glaser J.K., Glaser R. (1988) Immunological consequences of acute and chronic stressors: Mediating role of interpersonal relationships. British Journal of Medical Psychology 61: 77–85Google Scholar
  24. Kiecolt-Glaser J.K., McGuire L., Robles T.F., Glaser R. (2002) Psychoneuroimmunology: Psychological influences on immune function and health. Journal of Consulting and Clinical Psychology 70(3): 537–547CrossRefGoogle Scholar
  25. Kitto P. (1988) The patient as healer: how we can take part in our own recovery. In Kidel M., Rowe-Leete S. (Eds.) The Meaning of Illness Routledge: New York 109–119Google Scholar
  26. Kohut H. (1977) The Restoration of the Self. International Universities Press: New YorkGoogle Scholar
  27. Koopman C., Hermanson K., Diamond S., Angell K., Spiegel D. (1998) Social support, life stress, pain and emotional adjustment to advanced breast cancer. Psycho-oncology 7: 101–111CrossRefGoogle Scholar
  28. LeShan L.L. (1989) Cancer as a Turning Point. Plume: New YorkGoogle Scholar
  29. Mages N.L., Mendelson G.A. (1979) Effects of cancer patients’ lives: A personological approach. In Stone G.C., Cohen F., Adler N.E. (Eds.) Health Psychology: A handbook. Jossey-Bass: San Francisco 103–122Google Scholar
  30. Mahrer A.R. (1980) The treatment of cancer through experiential psychotherapy. Psychotherapy: Theory, Research and Practice 17: 335–342Google Scholar
  31. Martin R., Davis G.M., Baron R.S., Suls J., Blanchard E.B. (1994) Specificity in social support: Perceptions of helpful and unhelpful provider behaviors among irritable bowel syndrome, headache, and cancer patients. Health Psychology 13: 432–439CrossRefGoogle Scholar
  32. Mathieson C.M., Stam H.J. (1991) What good is psychotherapy when I am ill? Psychosocial problems and interventions with cancer patients. In Cooper C.I., Watson M. (Eds.) Cancer and Stress: Psychological Biological and Coping Strategies. John Wiley & Sons: New York 171–196Google Scholar
  33. Matthews B., Rice-Oxley M. (2001) Multiple Sclerosis: The Facts. Oxford University Press: Oxford, UKGoogle Scholar
  34. Mayer Gaev D. (1976) The Psychology of Loneliness. Adams Press: ChicagoGoogle Scholar
  35. Mijuskovic B. (1992) Organic communities, atomistic societies and loneliness. Journal of Sociology and Social Welfare 19(2): 147–164Google Scholar
  36. Moustakas C.E.: 1972, Loneliness and Love (Englewood Cliffs, NJ: Prentice-Hall)Google Scholar
  37. Ornish D. (1998) Love & Survival: The Scientific Basis of Healing Power of Intimacy. HarperCollins: New YorkGoogle Scholar
  38. Revenson T.A., Wollman A., Felton B.J. (1983) Social supports as stress buffers for adult cancer patients. Psychosomatic Medicine 45: 321–331Google Scholar
  39. Rokach A. (1988) The experience of loneliness: A tri-level model. Journal of Psychology 122(6): 531–544Google Scholar
  40. Rokach A. (1999) Cultural background and coping with loneliness. Journal of Psychology 133(2): 217–229Google Scholar
  41. Rokach A., Brock H. (1997) Loneliness and the effects of life changes. Journal of Psychology 131(3): 284–298Google Scholar
  42. Rokach A., Brock H. (1998) Coping with loneliness. Journal of Psychology 132(1): 107–127Google Scholar
  43. Rokach A., Bacani H., Ramberan G. (2000) Coping with loneliness: A cross-cultural comparison. European Psychologis, 5(4): 302–311CrossRefGoogle Scholar
  44. Schwartz M.D. (1977) An information and discussion program for women after mastectomy. Archives of Surgery 12: 1313–1321Google Scholar
  45. Seligman M.E.P., Csikszentmihalyi M. (2000) Positive psychology: An introduction. American Psychologist 55(1): 5–14CrossRefGoogle Scholar
  46. Silberfarb P.M., Greer S. (1982) Psychological concomitants of cancer: Clinical aspects. American Journal of Psychotherapy 36: 470–479Google Scholar
  47. Singer B.A. (1983) Psychosocial trauma, defense strategies, and treatment considerations in cancer patients and their families. American Journal of the Family 11: 15–21Google Scholar
  48. Soderberg J. (2001) MS and the family system. In Kalb R.C., Scheinberg L.C. (Eds.) Multiple Sclerosis and the Family. Demos: New York 1–8Google Scholar
  49. Stearns N., Lauria M., Hermann F., Fogelberg P. (1993) Oncology Social Work: A Clinician’s Guide. American Cancer Society: New YorkGoogle Scholar
  50. U.S. Department of Health and Human Services, the National Cancer Institute (Bethesda, Maryland), and the Canadian Cancer Society: 1996, Taking time: Support for people living with cancer and people who care about them (Author, Washington, DC)Google Scholar
  51. Weil A. (1997) Eight Weeks to Optimum Health: A Proven Program for Taking Full Advantage of Your Body’s Natural Healing Power. Knopf: New YorkGoogle Scholar
  52. Weintrob, H.L.: 1987, Self-disclosure as a marketable commodity, in M. Hojat and R. Crandall (eds.), Loneliness: Theory, Research and Application [special issue]. Journal of Social Behavior and Personality 2(2), pp. 77–88Google Scholar
  53. Weisman A.D. (1979) Coping with Cancer. McGraw-Hill: New YorkGoogle Scholar
  54. Wortman, C.B. and C. Dunkel-Schetter: 1979, ‘Interpersonal relationships and cancer: A theoretical analysis’. Journal of Social Issues 35: 120–155Google Scholar

Copyright information

© Springer Science+Business Media B.V. 2006

Authors and Affiliations

  1. 1.The Institute for the Study and Treatment of Psychosocial StressTorontoCanada

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