In the context of HIV, women’s sexual rights and sexual autonomy are important but frequently overlooked and violated. Guided by community voices, feminist theories, and qualitative empirical research, we reviewed two decades of global quantitative research on sexuality among women living with HIV. In the 32 studies we found, conducted in 25 countries and composed mostly of cis-gender heterosexual women, sexuality was narrowly constructed as sexual behaviours involving risk (namely, penetration) and physiological dysfunctions relating to HIV illness, with far less attention given to the fullness of sexual lives in context, including more positive and rewarding experiences such as satisfaction and pleasure. Findings suggest that women experience declines in sexual activity, function, satisfaction, and pleasure following HIV diagnosis, at least for some period. The extent of such declines, however, is varied, with numerous contextual forces shaping women’s sexual well-being. Clinical markers of HIV (e.g., viral load, CD4 cell count) poorly predicted sexual outcomes, interrupting widely held assumptions about sexuality for women with HIV. Instead, the effects of HIV-related stigma intersecting with inequities related to trauma, violence, intimate relations, substance use, poverty, aging, and other social and cultural conditions primarily influenced the ways in which women experienced and enacted their sexuality. However, studies framed through a medical lens tended to pathologize outcomes as individual “problems,” whereas others driven by a public health agenda remained primarily preoccupied with protecting the public from HIV. In light of these findings, we present a new feminist approach for research, policy, and practice toward understanding and enhancing women’s sexual lives—one that affirms sexual diversity; engages deeply with society, politics, and history; and is grounded in women’s sexual rights.
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Abbott-Anderson, K., & Kwekkeboom, K. L. (2012). A systematic review of sexual concerns reported by gynecological cancer survivors. Gynecologic Oncology, 124(3), 477–489. https://doi.org/10.1016/j.ygyno.2011.11.030.
Abrams, A. (2017). Bodily autonomy. Retrieved from https://pwn-usa.org/pwnspeaks-blog/bodily-autonomy/. Accessed 25 June 2017.
Agaba, P., Meloni, S., Sule, H., Agaba, E., Idoko, J., & Kanki, P. (2017). Sexual dysfunction and its determinants among women infected with HIV. International Journal of Gynaecology and Obstetrics, 137(3), 301–308. https://doi.org/10.1002/ijgo.12140.
AIDES. (2016). #Révélation. Retrieved from http://www.aides.org/campagne/revelation. Accessed 25 June 2017.
American Psychiatric Association. (1980). Diagnostic and statistical manual for mental disorders (3rd ed.). Arlington: American Psychiatric Press.
American Psychiatric Association. (1987). Diagnostic and statistical manual for mental disorders (3rd ed., Revised ed.). Arlington: American Psychiatric Press.
American Psychiatric Association. (1994). Diagnostic and statistical manual for mental disorders (4th ed.). Arlington: American Psychiatric Press.
American Psychiatric Association. (2000). Diagnostic and statistical manual for mental disorders (4th ed., Revised ed.). Arlington: American Psychiatric Press.
American Psychiatric Association. (2013). Diagnostic and statistical manual for mental disorders (5th ed.). Arlington: American Psychiatric Press.
Anderson, M., Elam, G., Gerver, S., Solarin, I., Fenton, K., & Easterbrook, P. (2010). “It took a piece of me”: Initial responses to a positive HIV diagnosis by Caribbean people in the UK. AIDS Care, 22(12), 1493–1498. https://doi.org/10.1080/09540121.2010.482125.
Angel, K. (2010). The history of ‘female sexual dysfunction’as a mental disorder in the 20th century. Current Opinion in Psychiatry, 23(6), 536. https://doi.org/10.1097/YCO.0b013e32833db7a1.
Angel, K. (2012). Contested psychiatric ontology and feminist critique ‘Female Sexual Dysfunction’and the Diagnostic and Statistical Manual. History of the Human Sciences, 25(4), 3–24. https://doi.org/10.1177/0952695112456949.
Angel, K. (2013). Commentary on Spurgas's “Interest, Arousal, and Shifting Diagnoses of Female Sexual Dysfunction”. Studies in Gender and Sexuality, 14(3), 206–216. https://doi.org/10.1080/15240657.2013.818862.
Arksey, H., & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616.
Balon, R. (2008). The DSM criteria of sexual dysfunction: Need for a change. Journal of Sex & Marital Therapy, 34(3), 186–197. https://doi.org/10.1080/00926230701866067.
Bancroft, J. (2002). The medicalization of female sexual dysfunction: The need for caution. Archives of Sexual Behavior, 31(5), 451–455. https://doi.org/10.1023/A:1019800426980.
Bancroft, J., Graham, C. A., Janssen, E., & Sanders, S. A. (2009). The dual control model: Current status and future directions. Journal of Sex Research, 46(2–3), 121–142. https://doi.org/10.1080/00224490902747222.
Bancroft, J., Loftus, J., & Long, J. S. (2003). Distress about sex: A national survey of women in heterosexual relationships. Archives of Sexual Behavior, 32(3), 193–208. https://doi.org/10.1023/A:1023420431760.
Barker, M., & Richards, C. (2013). What does Bancroft’s Human Sexuality and its Problems tell us about current understandings of sexuality? Feminism & Psychology, 23(2), 243–251. https://doi.org/10.1177/0959353511434664.
Barrington, C., Kerrigan, D., Ureña, F. I. C., & Brudney, K. (2017). La vida normal: Living with HIV in Santo Domingo, Dominican Republic. Culture, Health & Sexuality, 1–15. https://doi.org/10.1080/13691058.2017.1323350.
Basson, R. (2000). The female sexual response: A different model. Journal of Sex & Marital Therapy, 26(1), 51–65. https://doi.org/10.1080/009262300278641.
Basson, R. (2010). Sexual Function of Women with Chronic Illness and Cancer. Women's Health, 6(3), 407–429. https://doi.org/10.2217/WHE.10.23.
Basson, R. (2014). On the Definition of Female Sexual Interest/Arousal Disorder. Archives of Sexual Behavior, 43(7), 1225–1226. https://doi.org/10.1007/s10508-014-0324-0.
Basson, R., Leiblum, S., Brotto, L., Derogatis, L., Fourcroy, J., Fugl-Meyer, K., … Meston, C. (2003). Definitions of women's sexual dysfunction reconsidered: Advocating expansion and revision. Journal of Psychosomatic Obstetrics and Gynecology, 24(4), 221–229. https://doi.org/10.1007/s10508-014-0324-0.
Basson, R., Leiblum, S., Brotto, L., Derogatis, L., Fourcroy, J., Fugl-Meyer, K., … Meston, C. (2004). Revised definitions of women's sexual dysfunction. The Journal of Sexual Medicine, 1(1), 40–48. https://doi.org/10.1111/j.1743-6109.2004.10107.x.
Bay-Cheng, L. Y., & Eliseo-Arras, R. K. (2008). The making of unwanted sex: Gendered and neoliberal norms in college women's unwanted sexual experiences. Journal of Sex Research, 45(4), 386–397. https://doi.org/10.1080/00224490802398381.
Bayer, R. (1997). Responsibility and Intimacy in the AIDS Epidemic. The Responsive Community, 7(4), 45–55. http://hdl.handle.net/10822/906326.
Becker, D. (2014). The dating game: Accepting the past and living in the present. Positive Living Newsletter: Girl Talk, 6–7. http://positivelivingbc.org/wp-content/uploads/2015/2003/issue2091_lowres.pdf.
Beckerman, N. L., & Auerbach, C. (2002). Couples of mixed HIV status: Psychosocial issues affecting intimacy. Journal of Couple & Relationship Therapy, 1(4), 73–85 13p. https://doi.org/10.1300/J398v01n04_04.
Berger. (2010). Workable sisterhood: The political journey of stigmatized women with HIV/AIDS. New Jersey: Princeton University Press.
Bernier, A., Lefèvre, M., Henry, E., Verdes, L., Acosta, M.-E., Benmoussa, A., … Préau, M. (2016). HIV seropositivity and sexuality: Cessation of sexual relations among men and women living with HIV in five countries. AIDS Care, 28(sup1), 26–31. https://doi.org/10.1080/09540121.2016.1146208.
Bogart, L. M., Collins, R. L., Kanouse, D. E., Cunningham, W., Beckman, R., Golinelli, D., & Bird, C. E. (2006). Patterns and correlates of deliberate abstinence among men and women with HIV/AIDS. American Journal of Public Health, 96(6), 1078–1084. https://doi.org/10.2105/AJPH.2005.070771.
Bouhnik, A.-D., Préau, M., Schiltz, M.-A., Obadia, Y., Spire, B., & Group, V. S. (2008). Sexual difficulties in people living with HIV in France—results from a large representative sample of outpatients attending French hospitals (ANRS-EN12-VESPA). AIDS and Behavior, 12(4), 670–676. https://doi.org/10.1007/s10461-007-9355-z.
Bova, C., & Durante, A. (2003). Sexual functioning among HIV-infected women. AIDS Patient Care and STDs, 17(2), 75–83. https://doi.org/10.1089/108729103321150809.
Bowleg, L. (2008). When Black+ lesbian+ woman≠ Black lesbian woman: The methodological challenges of qualitative and quantitative intersectionality research. Sex Roles, 59(5–6), 312–325. https://doi.org/10.1007/s11199-008-9400-z.
Bowleg, L., Lucas, K. J., & Tschann, J. M. (2004). “The ball was always in his court”: An exploratory analysis of relationship scripts, sexual scripts, and condom use among African American women. Psychology of Women Quarterly, 28(1), 70–82. https://doi.org/10.1111/j.1471-6402.2004.00124.x.
Brady, S., Gallagher, D., Berger, J., & Vega, M. (2002). Physical and sexual abuse in the lives of HIV-positive women enrolled in a primary medicine health maintenance organization. AIDS Patient Care and STDs, 16(3), 121–125. https://doi.org/10.1089/108729102317330463.
Bredström, A. (2006). Intersectionality: A challenge for feminist HIV/AIDS research? European Journal of Women's Studies, 13(3), 229–243. https://doi.org/10.1177/1350506806065754.
Brotto, L. A. (2010). The DSM diagnostic criteria for hypoactive sexual desire disorder in women. Archives of Sexual Behavior, 39(2), 221–239. https://doi.org/10.1007/s10508-009-9543-1.
Brotto, L. A. (2013). Mindful sex. The Canadian Journal of Human Sexuality, 22(2), 63–68. https://doi.org/10.3138/cjhs.2013.2132.
Brotto, L. A., & Basson, R. (2014). Group mindfulness-based therapy significantly improves sexual desire in women. Behaviour Research and Therapy, 57, 43–54. https://doi.org/10.1016/j.brat.2014.04.001.
Brotto, L. A., Heiman, J. R., & Tolman, D. L. (2009). Narratives of desire in mid-age women with and without arousal difficulties. Journal of Sex Research, 46(5), 387–398. https://doi.org/10.1080/00224490902792624.
Byers, E. S., Demmons, S., & Lawrance, K.-A. (1998). Sexual satisfaction within dating relationships: A test of the interpersonal exchange model of sexual satisfaction. Journal of Social and Personal Relationships, 15(2), 257–267. https://doi.org/10.1177/0265407598152008.
Byers, E. S., & Macneil, S. (2006). Further validation of the interpersonal exchange model of sexual satisfaction. Journal of Sex & Marital Therapy, 32(1), 53–69. https://doi.org/10.1080/00926230500232917.
Byers, E. S., Wang, A., Harvey, J., Wenzel, A., & Sprecher, S. (2004). Understanding sexuality in close relationships from the social exchange perspective. In A. W. J. H. Harvey, S. Sprecher, J. H. Harvey, A. Wenzel, & S. Sprecher (Eds.), The handbook of sexuality in close relationships (pp. 203–234). Mahwah: Lawrence Erlbaum Associates Publishers.
Caballero, M. (2016). Pleasure is a human right. HIV Equal. Retrieved from http://www.hivequal.org/hiv-equal-online/feature-pleasure-is-a-human-right. Accessed 25 June 2017.
Cacchioni, T. (2007). Heterosexuality and 'the labour of love': A contribution to recent debates on female sexual dysfunction. Sexualities, 10(3), 299–320. https://doi.org/10.1177/1363460707078320.
Cacchioni, T., & Wolkowitz, C. (2011). Treating women’s sexual difficulties: The body work of sexual therapy. Sociology of Health & Illness, 33(2), 266–279. https://doi.org/10.1111/j.1467-9566.2010.01288.x.
Cain, R., Jackson, R., Prentice, T., Collins, E., Mill, J., & Barlow, K. (2013). The experience of HIV diagnosis among Aboriginal people living with HIV/AIDS and depression. Qualitative Health Research, 23(6), 815–824. https://doi.org/10.1177/1049732313482525.
Canadian AIDS Society. (2011). Positive Prevention Position Statement (March 2011). Retrieved from http://www.cdnaids.ca/positive-prevention-position-statement-march-2011. Accessed 25 June 2017.
Cardinal, C., Lee, M., Nicholson, V., Webster, K., Carter, A., & Kaida, A. (2014, March 30) Women! It’s our time to talk about sexuality. Positive Gathering Conference 2014, Vancouver, BC.
Carlsson-Lalloo, E., Rusner, M., Mellgren, Å., & Berg, M. (2016). Sexuality and reproduction in HIV-positive women: A meta-synthesis. AIDS Patient Care and STDs, 30(2), 59–69. https://doi.org/10.1089/apc.2015.0260.
Carpenter, L. M. (2010). Gendered sexuality over the life course: A conceptual framework. Sociological Perspectives, 53(2), 155–177. https://doi.org/10.1525/sop.2010.53.2.155.
Carter, A., Greene, S., Nicholson, V., O’Brien, N., Sanchez, M., Pokomandy, A. D., … Team, R. H. C. S. R. (2014). Breaking the Glass Ceiling: Increasing the meaningful involvement of women living with HIV/AIDS (MIWA) in the design and delivery of HIV/AIDS services. Health Care for Women International, 36(8), 1–29. https://doi.org/10.1080/07399332.2014.954703.
Carvalheira, A. A., Brotto, L. A., & Leal, I. (2010). Women's motivations for sex: Exploring the diagnostic and statistical manual, text revision criteria for hypoactive sexual desire and female sexual arousal disorders. The Journal of Sexual Medicine, 7(4pt1), 1454–1463. https://doi.org/10.1111/j.1743-6109.2009.01693.x.
Castro, D. R., Le Gall, J. M., Andreo, C., & Spire, B. (2010). Stigma, discrimination, and sexual (dis) satisfaction among people living with HIV: Results from the “AIDES et toi” survey. AIDS Care, 22(8), 961–969. https://doi.org/10.1080/09540121003758614.
Closson, E. F., Mimiaga, M. J., Sherman, S. G., Tangmunkongvorakul, A., Friedman, R. K., Limbada, M., … Team, H. S. (2015). Intimacy versus Isolation: A qualitative study of sexual practices among sexually active HIV-infected patients in HIV Care in Brazil, Thailand, and Zambia. PLoS One, 10(3), 16. https://doi.org/10.1371/journal.pone.0120957.
Cohen, M. S., Chen, Y. Q., McCauley, M., Gamble, T., Hosseinipour, M. C., Kumarasamy, N., … Pilotto, J. H. (2011). Prevention of HIV-1 infection with early antiretroviral therapy. New England Journal of Medicine, 365(6), 493–505. https://doi.org/10.1056/NEJMoa1105243.
Collazos, J. (2007). Sexual dysfunction in the highly active antiretroviral therapy era. AIDS Reviews, 9(4), 237–245. http://tinyurl.com/ydfk239dcd.
Colson, A. E., Keller, M. J., Sax, P. E., Pettus, P. T., Platt, R., & Choo, P. W. (2002). Male sexual dysfunction associated with antiretroviral therapy. JAIDS Journal of Acquired Immune Deficiency Syndromes, 30(1), 27–32. http://journals.lww.com/jaids/Abstract/2002/05010/Male_Sexual_Dysfunction_Associated_With.05014.aspx.
Conrad, P. (1989). The social meaning of AIDS. In R. C. Rist (Ed.), Policy issues for the 1990s. Policy Studies Review Annual. Volume 9 (pp. 75–88). London: Transaction Publishers.
Courtenay-Quirk, C., Zhang, J., & Wolitski, R. J. (2009). Intentional abstinence among homeless and unstably housed persons living with HIV/AIDS. AIDS and Behavior, 13(6), 1119–1128. https://doi.org/10.1007/s10461-008-9461-6.
Craft, S. M., & Serovich, J. M. (2007). The impact of mental health, sexual desire and sexual importance on the sexual behaviour of women with HIV. AIDS Care, 19(10), 1219–1222. https://doi.org/10.1080/09540120701402822.
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. http://chicagounbound.uchicago.edu/uclf/vol1989/iss1981/1988
De Vries, E., Gwyther, L., & Mkhabela, M. (2013). Sexuality in patients with human immunodeficiency virus at Embhuleni Hospital in Mpumalanga province. South African Family Practice, 55(2), 171–174. https://doi.org/10.1080/20786204.2013.10874328.
Denis, A., & Sung-Mook, H. (2003). Sexual functioning of women with HIV: A comparison with non-HIV women. The Canadian Journal of Human Sexuality, 12(2), 97–107. http://tinyurl.com/yb107y107mwf.
Devries, K. M., & Free, C. J. (2011). Boyfriends and booty calls: Sexual partnership patterns among Canadian Aboriginal young people. Canadian Journal of Public Health, 102(1), 13–17. https://doi.org/10.17269/cjph.102.2112.
Dworkin, S. L. (2005). Who is epidemiologically fathomable in the HIV/AIDS epidemic? Gender, sexuality, and intersectionality in public health. Culture, Health & Sexuality, 7(6), 615–623. https://doi.org/10.1080/13691050500100385.
Edwards, W., & Coleman, E. (2004). Defining sexual health: A descriptive overview. Archives of Sexual Behavior, 33(3), 189–195. https://doi.org/10.1023/B:ASEB.0000026619.95734.d5.
El Fane, M., Bensghir, R., Sbai, S., Chakib, A., Kadiri, N., Ayouch, A., & Himmich, H. (2011). Quality of sexual life for people living with HIV (PLWHA). Sexologies, 20(3), 158–162. https://doi.org/10.1016/j.sexol.2010.12.006.
Emilee, G., Ussher, J., & Perz, J. (2010). Sexuality after breast cancer: A review. Maturitas, 66(4), 397–407. https://doi.org/10.1016/j.maturitas.2010.03.027.
Fahs, B. (2014). ‘Freedom to’and ‘freedom from’: A new vision for sex-positive politics. Sexualities, 17(3), 267–290. https://doi.org/10.1177/1363460713516334.
Fahs, B., & McClelland, S. I. (2016). When sex and power collide: An argument for critical sexuality studies. The Journal of Sex Research, 53(4–5), 392–416. https://doi.org/10.1080/00224499.2016.1152454.
Fahs, B., & Swank, E. (2011). Social identities as predictors of women’s sexual satisfaction and sexual activity. Archives of Sexual Behavior, 40(5), 903–914. https://doi.org/10.1007/s10508-010-9681-5.
Fair, C., & Albright, J. (2012). "Don't Tell Him You Have HIV Unless He's 'The One'": Romantic relationships among adolescents and young adults with perinatal HIV infection. AIDS Patient Care and STDs, 26(12), 746–754. https://doi.org/10.1089/apc.2012.0290.
Farrell, J., & Cacchioni, T. (2012). The medicalization of women's sexual pain. Journal of Sex Research, 49(4), 328–336. https://doi.org/10.1080/00224499.2012.688227.
Fernet, M., Otis, J., Massie, L., St-Pierre-Gagné, S., Nengeh Mensah, M., de Pokomandy, A., … Hot, A. (2017). PLURIELLES : Evaluation of a Quebec-based program aimed at improving HIV-positive women’s sexual health beyond HIV. Paper presented at the 26th Canadian Association of HIV Research (CAHR) Conference, Montreal, Canada.
Florence, E., Schrooten, W., Dreezen, C., Gordillo, V., Schönnesson, L. N., Asboe, D., … The Eurosupport Study Group. The Eurosupport Study Group. (2004). Prevalence and factors associated with sexual dysfunction among HIV-positive women in Europe. AIDS Care, 16(5), 550–557. https://doi.org/10.1080/09540120410001716333.
Fortenberry, J. D. (2013). The evolving sexual health paradigm: Transforming definitions into sexual health practices. AIDS, 27, S127–S133. https://doi.org/10.1097/QAD.0000000000000048.
Fratti, K. (2017). I am HIV positive. This is what it's like to date. Redbook Magazine. Retrieved from http://www.redbookmag.com/love-sex/relationships/a48131/dating-with-hiv/. Accessed 25 June 2017.
Gagnon, M., & Holmes, D. (2011). Bodies in mutation: Understanding lipodystrophy among women living with HIV/AIDS. Research and Theory for Nursing Practice, 25(1), 23–38. https://doi.org/10.1891/0889-722.214.171.124.
Gagnon, M., & Holmes, D. (2012). Women living with HIV/AIDS and the bodily transformation process known as the lipodystrophy syndrome: A grounded theory study. Journal of Research in Nursing, 17(3), 215–228. https://doi.org/10.1177/1744987110389407.
Gielen, A. C., Fogarty, L., O'Campo, P., Anderson, J., Keller, M. J., & Faden, R. (2000a). Women living with HIV: Disclosure, violence, and social support. Journal of Urban Health, 77(3), 480–491. https://doi.org/10.1007/BF02386755.
Gielen, A. C., McDonnell, K. A., Burke, J. G., & O'Campo, P. (2000b). Women's lives after an HIV-positive diagnosis: Disclosure and violence. Maternal and Child Health Journal, 4(2), 111–120. https://doi.org/10.1023/A:1009522321240.
Gielen, A. C., O'Campo, P., Faden, R. R., & Eke, A. (1997). Women's disclosure of HIV status: Experiences of mistreatment and violence in an urban setting. Women & Health, 25(3), 19–31. https://doi.org/10.1300/J013v25n03_02.
Giraldi, A., & Kristensen, E. (2010). Sexual dysfunction in women with diabetes mellitus. Journal of Sex Research, 47(2–3), 199–211. https://doi.org/10.1080/00224491003632834.
Global Network of People Living with HIV (GNP+) (2011). Positive health, dignity and prevention: A policy framework. Retrieved from http://www.unaids.org/sites/default/files/media_asset/20110701_PHDP_0.pdf. Accessed 25 June 2017.
Goggin, K., Engelson, E. S., Rabkin, J. G., & Kotler, D. P. (1998). The relationship of mood, endocrine, and sexual disorders in human immunodeficiency virus positive (HIV+) women: An exploratory study. Psychosomatic Medicine, 60(1), 11–16. http://journals.lww.com/psychosomaticmedicine/Abstract/1998/01000/The_Relationship_of_Mood,_Endocrine,_and_Sexual.01003.aspx.
Goldhammer, D. L., & McCabe, M. P. (2011). A qualitative exploration of the meaning and experience of sexual desire among partnered women. The Canadian Journal of Human Sexuality, 20(1/2), 19–29. http://dro.deakin.edu.au/eserv/DU:30036733/goldhammer-aqualitative-30032011.pdf.
Graham, C. A. (2010). The DSM diagnostic criteria for female sexual arousal disorder. Archives of Sexual Behavior, 39(2), 240–255. https://doi.org/10.1007/s10508-009-9535-1.
Graham, C. A. (2016). Reconceptualising women’s sexual desire and arousal in DSM-5. Psychology & Sexuality, 7(1), 34–47. https://doi.org/10.1080/19419899.2015.1024469.
Graham, C. A., Sanders, S. A., Milhausen, R. R., & McBride, K. R. (2004). Turning on and turning off: A focus group study of the factors that affect women's sexual arousal. Archives of Sexual Behavior, 33(6), 527–538. https://doi.org/10.1023/B:ASEB.0000044737.62561.fd.
Greenhalgh, C., Evangeli, M., Frize, G., Foster, C., & Fidler, S. (2013). Intimate relationships in young adults with perinatally acquired HIV: Partner considerations. AIDS Care, 25(4), 447–450. 444p. https://doi.org/10.1080/09540121.2012.712671.
Greenhalgh, C., Evangeli, M., Frize, G., Foster, C., & Fidler, S. (2016). Intimate relationships in young adults with perinatally acquired HIV: A qualitative study of strategies used to manage HIV disclosure. AIDS Care, 28(3), 283–288. https://doi.org/10.1080/09540121.2015.1093594.
Gruskin, L., Gange, S. J., Celentano, D., Schuman, P., Moore, J. S., Zierler, S., & Vlahov, D. (2002). Incidence of Violence against HIV-infected and uninfected women: Findings from the HIV Epidemiology Research (HER) study. Journal of Urban Health, 79(4), 512–524. https://doi.org/10.1093/jurban/79.4.512.
Gurevich, M., Mathieson, C. M., Bower, J., & Dhayanandhan, B. (2007). Disciplining Bodies, Desires and Subjectivities: Sexuality and HIV-positive women. Feminism & Psychology, 17(1), 9–38. https://doi.org/10.1177/0959353507072910.
Haavio-Mannila, E., & Kontula, O. (1997). Correlates of increased sexual satisfaction. Archives of Sexual Behavior, 26(4), 399–419.
Hamilton, L. D., & Meston, C. M. (2013). Chronic stress and sexual function in women. The Journal of Sexual Medicine, 10(10), 2443–2454. https://doi.org/10.1111/jsm.12249.
Hancock, A.-M. (2007). Intersectionality as a normative and empirical paradigm. Politics & Gender, 3(02), 248–254. https://doi.org/10.1017/S1743923X07000062.
Hankins, C., Gendron, S., Tran, T., Lamping, D., & Lapointe, N. (1997). Sexuality in Montreal women living with HIV. AIDS Care, 9(3), 261–272. https://doi.org/10.1080/713613156.
Harnois, C. E. (2013). Feminist measures in survey research. California: SAGE Publications.
Hayfield, N., & Clarke, V. (2012). “I'd be just as happy with a cup of tea”: Women's accounts of sex and affection in long-term heterosexual relationships. Women's Studies International Forum, 35(2), 67–74. https://doi.org/10.1016/j.wsif.2012.01.003.
Heiman, J. R. (2002). Sexual dysfunction: Overview of prevalence, etiological factors, and treatments. Journal of Sex Research, 39(1), 73–78. https://doi.org/10.1080/00224490209552124.
Henderson, A. W., Lehavot, K., & Simoni, J. M. (2009). Ecological models of sexual satisfaction among lesbian/bisexual and heterosexual women. Archives of Sexual Behavior, 38(1), 50–65. https://doi.org/10.1007/s10508-008-9384-3.
Herek, G. M., & Capitanio, J. P. (1994). Conspiracies, contagion, and compassion: Trust and public reactions to AIDS. AIDS Education and Prevention, 6(4), 365–375. https://www.researchgate.net/publication/15211898_Conspiracies_contagion_and_compassion_Trust_and_public_reactions_to_AIDS.
Herek, G. M., & Capitanio, J. P. (1998). Symbolic prejudice or fear of infection? A functional analysis of AIDS-related stigma among heterosexual adults. Basic and Applied Social Psychology, 20(3), 230–241. https://doi.org/10.1207/s15324834basp2003_5.
Holland, J., Ramazanoglu, C., Scott, S., Sharpe, S., & Thomson, R. (1990). Sex, gender and power: Young women's sexuality in the shadow of AIDS. Sociology of Health & Illness, 12(3), 336–350. https://doi.org/10.1111/1467-9566.ep11347264.
Holland, J., Ramazanoglu, C., Sharpe, S., & Thomson, R. (1994). Power and desire: The embodiment of female sexuality. Feminist Review, 46(1), 21–38. http://www.jstor.org/stable/1395415.
Holland, J., Ramazonoglu, C., Sharpe, S., & Thomson, R. (1992). Pleasure, pressure and power: Some contradictions of gendered sexuality1. The Sociological Review, 40(4), 645–674. https://doi.org/10.1111/j.1467-954X.1992.tb00406.x.
Iacono, M. (2016). 5 tips para chupar la vagina, vulva y màs de una mujer con VIH+. Facción Latina. Retrieved from http://faccionlatina.org/2015/10/14/5-tips-para-chupar-la-vagina-de-una-mujer-con-vih/. Accessed 25 June 2017.
Impett, E., Muise, A., & Breines, J. (2013). From risk to pleasure: Toward a positive psychology of sexuality. In M. Hojjat and Duncan Cramer (Ed.), Positive psychology of love (pp. 57–76). New York: Oxford University Press.
Inoue, Y., Yamazaki, Y., Seki, Y., Wakabayashi, C., & Kihara, M. (2004). Sexual activities and social relationships of people with HIV in Japan. AIDS Care, 16(3), 349–362. 314p. https://doi.org/10.1080/09540120410001665358.
International Community of Women Living with HIV/AIDS. (2016). Criminalization of Women Living with HIV: Non-Disclosure, Exposure and Transmission. http://www.iamicw.org/resources/document-library/criminalization-of-women-living-with-hiv-non-disclosure-exposure-and-transmission.
Jolly, S., Cornwall, A., & Hawkins, K. (2013). Women, sexuality and the political power of pleasure. London: Zed Books Ltd..
Kahn, S. (2000). Let’s Get It On: Positive women struggle to regain their sexual lives. HIV Plus (8), 1–5.
Kaida, A., Carter, A., de Pokomandy, A., Patterson, S., Proulx-Boucher, K., Nohpal, A., … Thomas-Pavanel, J. (2015). Sexual inactivity and sexual satisfaction among women living with HIV in Canada in the context of growing social, legal and public health surveillance. Journal of the International AIDS Society, 18(5), 20284–20294. https://doi.org/10.7448/IAS.18.6.20284.
Kaplan, H. (1974). The new sex therapy. New York: Mazel.
Kaplan, H. S., Sager, C. J., & Schiavi, R. C. (1985). Editorial: AIDS and the sex therapist. Journal of Sex & Marital Therapy, 11(4), 210–214. https://doi.org/10.1080/00926238508405448.
Kaplan, R. L., El Khoury, C., Field, E. R., & Mokhbat, J. (2016). Living day by day the meaning of living with HIV/AIDS among women in Lebanon. Global Qualitative Nursing Research, 3, 1–13. https://doi.org/10.1177/2333393616650082.
Kaplan, S. A., Reis, R. B., Kohn, I. J., Ikeguchi, E. F., Laor, E., Te, A. E., & Martins, A. C. (1999). Safety and efficacy of sildenafil in postmenopausal women with sexual dysfunction. Urology, 53(3), 481–486. https://doi.org/10.1016/S0090-4295(98)00633-5.
Kashy, D. A., Kenny, D. A., Reis, H., & Judd, C. (2000). The analysis of data from dyads and groups. In H. T. Reis & C. M. Judd (Eds.), Handbook of research methods in social and personality psychology (Vol. 38, pp. 451–477). New York: Cambridge University Press.
Keegan, A., Lambert, S., & Petrak, J. (2005). Sex and relationships for HIV-positive women since HAART: A qualitative study. AIDS Patient Care and STDs, 19(10), 645–654. https://doi.org/10.1089/apc.2005.19.645.
Kilmarx, P. H., Hamers, F. F., & Peterman, T. A. (1998). Living With HIV: Experiences and perspectives of HIV-infected sexually transmitted disease clinic patients after posttest counseling. Sexually Transmitted Diseases, 25(1), 28–37. https://www.ncbi.nlm.nih.gov/pubmed/9437782.
Kleinplatz, P. J., Ménard, A. D., Paquet, M.-P., Paradis, N., Campbell, M., Zuccarino, D., & Mehak, L. (2009). The components of optimal sexuality: A portrait of" great sex". The Canadian Journal of Human Sexuality, 18(1/2), 1–13. https://www.researchgate.net/publication/232545283_The_components_of_optimal_sexuality_A_portrait_of_great_sex.
Lamb, S. (2010). Feminist ideals for a healthy female adolescent sexuality: A critique. Sex Roles, 62(5–6), 294–306. https://doi.org/10.1007/s11199-009-9698-1.
Lamba, H., Goldmeier, D., Mackie, N. E., & Scullard, G. (2004). Antiretroviral therapy is associated with sexual dysfunction and with increased serum oestradiol levels in men. International Journal of STD & AIDS, 15(4), 234–237. https://www.ncbi.nlm.nih.gov/pubmed/15075015.
Lambert, S., Keegan, A., & Petrak, J. (2005). Sex and relationships for HIV positive women since HAART: A quantitative study. Sexually Transmitted Infections, 81(4), 333–337. https://doi.org/10.1136/sti.2004.013516.
Lanza, S., Bray, B., & Collins, L. (2013). An introduction to latent class and latent transition analysis. I. B. Weiner (Series Ed.), Handbook of psychology,2, 691–716.
Lawless, S., Crawford, J., Kippax, S., & Spongberg, M. (1996a). 'If It's Not On...': Heterosexuality for HIV positive women. Venereology, 9(1), 15–23. http://search.informit.com.au/documentSummary;dn=561250395072397;res=IELAPA.
Lawless, S., Kippax, S., & Crawford, J. (1996b). Dirty, diseased and undeserving: The positioning of HIV positive women. Social Science & Medicine, 43(9), 1371–1377. https://doi.org/10.1016/0277-9536(96)00017-2.
Lawrance, K. A., & Byers, E. S. (1995). Sexual satisfaction in long-term heterosexual relationships: The interpersonal exchange model of sexual satisfaction. Personal Relationships, 2(4), 267–285. https://doi.org/10.1111/j.1475-6811.1995.tb00092.x.
Liamputtong, P., Haritavorn, N., & Kiatying-Angsulee, N. (2011). Living Positively: The experiences of Thai women living with HIV/AIDS in Central Thailand. Qualitative Health Research, 22(4), 441–451. https://doi.org/10.1177/1049732311421680.
Little, M. H. (1991). Women's Sexuality: On the socialist feminist road to discovery. Problematique, 1, 84–107. https://www.yorku.ca/problema/Issues/Problematique0105.pdf.
Logie, C., James, L., Tharao, W., & Loutfy, M. (2011). HIV, gender, race, sexual orientation, and sex work: A qualitative study of intersectional stigma experienced by HIV-positive women in Ontario, Canada. PLoS Medicine, 8(11), e1001124. https://doi.org/10.1371/journal.pmed.1001124.
Logie, C. H., Kaida, A., Marcus, N., de Pokomandy, A., Ding, E., Wang, L., … On Behalf of the CHIWOS Research Team. (2017a). Prevalence and correlates of experiencing multi-dimensional forms of violence in adulthood among women living with HIV in Canada. AIDS (Under review as of 2017).
Logie, C. H., Kaida, A., Marcus, N., de Pokomandy, A., Ding, E., Wang, L., … On Behalf of the CHIWOS Research Team. (2017b). Prevalence and correlates of forced sex as a mode of HIV acquisition among a cohort of women living with HIV in Canada. Journal of Interpersonal Violence, 00(0), 1–36. https://doi.org/10.1177/0886260517718832.
Longfield, K. (2004). Rich fools, spare tyres and boyfriends: Partner categories, relationship dynamics and Ivorian women's risk for STIs and HIV. Culture, Health & Sexuality, 6(6), 483–500. https://doi.org/10.1080/13691050410001701920.
Loutfy, M., de Pokomandy, A., Carter, A., O’Brien, N., Lewis, J., Nicholson, V., … CHIWOS Research Team. (2017). Cohort Profile: The Canadian HIV Women’s Sexual and Reproductive Health Cohort Study (CHIWOS). PLoS ONE. (Accepted for publication).
Loutfy, M., Greene, S., Kennedy, V. L., Lewis, J., Thomas-Pavanel, J., Conway, T., … On Behalf of the CHIWOS Research Team. (2016). Establishing the Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS): Operationalizing community-based research in a large national quantitative study. BMC Medical Research Methodology, 16(1), 101–110. https://doi.org/10.1186/s12874-016-0190-7.
Luzi, K., Guaraldi, G., Murri, R., De Paola, M., Orlando, G., Squillace, N., … Martinez, E. (2009). Body image is a major determinant of sexual dysfunction in stable HIV-infected women. Antiviral Therapy, 14(1), 85–92. https://www.intmedpress.com/serveFile.cfm?sUID=30d551a552-3297-3294da3293-3298e3290d-bcac3223e3296ac3290.
Lykins, A. D., Janssen, E., & Graham, C. A. (2006). The relationship between negative mood and sexuality in heterosexual college women and men. Journal of Sex Research, 43(2), 136–143. https://doi.org/10.1080/00224490609552308.
Machtinger, E., Wilson, T., Haberer, J. E., & Weiss, D. (2012). Psychological trauma and PTSD in HIV-positive women: A meta-analysis. AIDS and Behavior, 16(8), 2091–2100. https://doi.org/10.1007/s10461-012-0158-5.
Manlove, J., Welti, K., Wildsmith, E., & Barry, M. (2014). Relationship Types and Contraceptive Use Within Young Adult Dating Relationships. Perspectives on Sexual and Reproductive Health, 46(1), 41–50. https://doi.org/10.1363/46e0514.
Masters, W. H., & Johnson, V. E. (1966). Human sexual response. Boston: Little Brown & Co..
Maticka-Tyndale, E., Adam, B. D., & Cohen, J. (2002). Sexual desire and practice among people living with HIV and using combination anti-retroviral therapies. Canadian Journal of Human Sexuality, 11(1), 33–40 38p.
Mattes, D. (2014). Caught in transition: The struggle to live a ‘normal’life with HIV in Tanzania. Medical Anthropology, 33(4), 270–287. https://doi.org/10.1080/01459740.2013.877899.
Maxwell, C. (2006). Understanding young women's sexual relationship experiences: The nature and role of vulnerability. Journal of Youth Studies, 9(2), 141–158. https://doi.org/10.1080/13676260600635615.
Mazanderani, F. (2012). An ethics of intimacy: Online dating, viral-sociality and living with HIV. BioSocieties, 7(4), 393–409. https://doi.org/10.1057/biosoc.2012.24.
Mazanderani, F., & Paparini, S. (2015). The stories we tell: Qualitative research interviews, talking technologies and the ‘normalisation’of life with HIV. Social Science & Medicine, 131, 66–73. https://doi.org/10.1016/j.socscimed.2015.02.041.
McClelland, A., & Whitbread, J. (2016). PosterVirus: Claiming Sexual Autonomy for People with HIV through Collective Action. In C. Kelly & M. Orsini (Eds.), Mobilizing Metaphor: Art, Culture, and Disability Activism in Canada (pp. 76–97). Vancouver: UBC Press.
McClelland, S. I. (2010). Intimate justice: A critical analysis of sexual satisfaction. Social and Personality Psychology Compass, 4(9), 663–680. https://doi.org/10.1111/j.1751-9004.2010.00293.x.
McClelland, S. I. (2011). Who is the “self” in self reports of sexual satisfaction? Research and policy implications. Sexuality Research & Social Policy, 8(4), 304–320. https://doi.org/10.1007/s13178-011-0067-9.
McClelland, S. I. (2013). “What do you mean when you say that you are sexually satisfied?” A mixed methods study. Feminism & Psychology, 0(0), 1–23. https://doi.org/10.1177/0959353513508392.
McDonnell, K. A., Gielen, A. C., & O’Campo, P. (2003). Does HIV status make a difference in the experience of lifetime abuse? Descriptions of lifetime abuse and its context among low-income urban women. Journal of Urban Health, 80(3), 494–509. https://doi.org/10.1093/jurban/jtg047.
Meadows, M. (1997). Exploring the Invisible: Listening to mid-life women about heterosexual sex. Women's Studies International Forum, 20(1), 145–152. https://doi.org/10.1016/S0277-5395(96)00093-3.
Mejia, M. (2017). We Demanded U Equals U! We Demanded the Truth and We Got It in IAS 2017. The Body. Retrieved from http://www.thebody.com/content/80218/we-demanded-u-equals-u-we-demanded-the-truth-and-w.html. Accessed 1 August 2017.
Mergui, A., & Giami, A. (2014). Representations of sexuality among HIV-positive young adults. Sexologies, 23(1), e5–e8. https://doi.org/10.1016/j.sexol.2013.11.004.
Mitchell, A., Whitbread, J., & McClelland, A. (2011). Fuck Positive Women. Facción Latina. Retrieved from http://nomorepotlucks.org/site/fuck-positive-women/. Accessed 25 June 2017.
Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Annals of Internal Medicine, 151(4), 264–269. https://doi.org/10.1371/journal.pmed.1000097.
Montaner, J. S. (2011). Treatment as prevention—a double hat-trick. Lancet, 378. https://doi.org/10.1016/s0140-6736(11)60821-0.
Montaner, J. S., Lima, V. D., Harrigan, P. R., Lourenço, L., Yip, B., Nosyk, B., … Moore, D. (2014). Expansion of HAART Coverage Is Associated with Sustained Decreases in HIV/AIDS Morbidity, Mortality and HIV Transmission: The “HIV treatment as prevention” experience in a canadian setting. PLoS One, 9(2), e87872. https://doi.org/10.1371/journal.pone.0087872.
Morrison, M. F., Petitto, J. M., Have, T. T., Gettes, D. R., Chiappini, M. S., Weber, A. L., … Evans, D. L. (2002). Depressive and anxiety disorders in women with HIV infection. American Journal of Psychiatry, 159(5), 789–796. https://doi.org/10.1176/appi.ajp.159.5.789.
Moynihan, R. (2003). The making of a disease: Female sexual dysfunction. British Medical Journal, 326(7379), 45–47. https://doi.org/10.1136/bmj.326.7379.45.
Mykhalovskiy, E., Hastings, C., Sanders, C., Hayman, M., & Bisaillon, L. (2016). Callous, Cold, and Deliberately Duplicitous: Racialization, Immigration, and Represntation of HIV Criminalization in Canadian Mainstream Newspapers (1911–0227). http://www.publicimpactpr.com/images/clients/can/callous_cold_report_final.pdf.
Nade’ge. (2016). Dealing with your looks. Retrieved from http://www.icwglobal.org/news-and-media/icw-blog/dealing-with-your-looks. Accessed 25 June 2017.
Narasimhan, M., Payne, C., Caldas, S., Beard, J. R., & Kennedy, C. E. (2016). Ageing and healthy sexuality among women living with HIV. Reproductive Health Matters, 24(48), 43–51. https://doi.org/10.1016/j.rhm.2016.11.001.
Negin, J., Geddes, L., Brennan-Ing, M., Kuteesa, M., Karpiak, S., & Seeley, J. (2016). Sexual Behavior of Older Adults Living with HIV in Uganda. Archives of Sexual Behavior, 45(2), 441–449. https://doi.org/10.1007/s10508-015-0582-5.
Nelson, L. E., Morrison-Beedy, D., Kearney, M. H., & Dozier, A. (2011). Sexual Partner Type Taxonomy Use Among Black Adolescent Mothers in the United States. The Canadian Journal of Human Sexuality, 20(1), 1–10. http://pubmedcentralcanada.ca/pmcc/articles/PMC4220588/.
Nevedal, A., & Sankar, A. (2015). The Significance of Sexuality and Intimacy in the Lives of Older African Americans With HIV/AIDS. The Gerontologist, 56(4), 762–771. https://doi.org/10.1093/geront/gnu160.
Nicholson, V., Sanchez, M., Webster, K., & Carter, A. (2016, March 20) Life and love after HIV: A woman's sharing circle. Positive Gathering Conference 2016, Vancouver, BC.
Orza, L. (2012, July 27). In my opinion…MIWA: Meaningful investment in women living with HIV. Mujeres Adelante - Daily newsletter on women’s rights and HIV. http://www.athenanetwork.org/assets/files/MujeresAdelante/MujeresAdelante@AIDS2012--27July2012.pdf
Oyedokun, A., Odeigah, L., Alabi, K., Adegunloye, O., & Akujobi, H. (2014). Sexual Dysfunction in HIV-Positive Women Attending a Tertiary Health Facility in North Central Nigeria. AIDS & Clinical Research, 5(398), 1–5. https://doi.org/10.4172/2155-6113.1000398.
Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science & Medicine, 57(1), 13–24.
Patterson, S., Cescon, A., Samji, H., Chan, K., Zhang, W., Raboud, J., … Rourke, S. B. (2015). Life expectancy of HIV-positive individuals on combination antiretroviral therapy in Canada. BMC Infectious Diseases, 15(1), 274. https://doi.org/10.1186/s12879-015-0969-x.
Payne, K. A., Reissing, E. D., Lahaie, M.-A., Binik, Y. M., Amsel, R., & Khalifé, S. (2006). What is sexual pain? A critique of DSM's classification of dyspareunia and vaginismus. Journal of Psychology and Human Sexuality, 17(3–4), 141–154. https://doi.org/10.1300/J056v17n03_10.
Peltzer, K. (2011). Sexual dissatisfaction and associated factors in a sample of patients on antiretroviral treatment in KwaZulu-Natal, South Africa. South African Journal of Psychiatry, 17(3), 74–80. https://www.ajol.info/index.php/sajpsyc/article/view/70014.
Persson, A. (2005). Women, HIV, and the heterosexual encounter. Paper presented at the The Pozhet Women’s Forum, Sydney, Australia.
Persson, A. (2008). Sero-silence and sero-sharing: Managing HIV in serodiscordant heterosexual relationships. AIDS Care, 20(4), 503–506. https://doi.org/10.1080/09540120701787487.
Persson, A. (2014). Significant ambivalence: Perspectives of Australian HIV service providers on universal treatment-as-prevention (TasP) for serodiscordant couples. Critical Public Health, 25(2), 153–164. https://doi.org/10.1080/09581596.2014.886005.
Persson, A., & Newman, C. (2008). Making monsters: Heterosexuality, crime and race in recent Western media coverage of HIV. Sociology of Health & Illness, 30(4), 632–646. https://doi.org/10.1111/j.1467-9566.2008.01082.x.
Peterson, Z. D., & Muehlenhard, C. L. (2007a). Conceptualizing the “wantedness” of women's consensual and nonconsensual sexual experiences: Implications for how women label their experiences with rape. Journal of Sex Research, 44(1), 72–88. https://doi.org/10.1080/00224490709336794.
Peterson, Z. D., & Muehlenhard, C. L. (2007b). What is sex and why does it matter? A motivational approach to exploring individuals' definitions of sex. Journal of Sex Research, 44(3), 256–268. https://doi.org/10.1080/00224490701443932.
Petretti, S. (2017). Love positive women. Retrieved from https://hivpolicyspeakup.wordpress.com/2017/02/16/love-positive-women/. Accessed 25 June 2017.
Pfaus, J. G., Quintana, G. R., Mac Cionnaith, C., & Parada, M. (2016). The whole versus the sum of some of the parts: Toward resolving the apparent controversy of clitoral versus vaginal orgasms. Socioaffective neuroscience & psychology, 6(1), 1–16. https://doi.org/10.3402/snp.v6.32578.
Pinzone, M., Gussio, M., Bellissimo, F., Coco, C., Bisicchia, F., Pellicanò, G., ... Nunnari, G. (2015). Self-reported sexual dysfunction in HIV-positive subjects: A cross-sectional study. Infectious Disease Tropical Medicine, 1(2), E104–109. http://www.infectiousjournal.com/wp-content/uploads/sites/106/2015/2007/IDTM-2015-2012-2104-Celesia.pdf.
POZ Magazine. (2010). Sexual problems more common among HIV-positive women. Retrieved from https://www.poz.com/article/hiv-women-sexual-18153-2878. Accessed 25 June 2017.
Prevention Access Campaign. (2017). Undetectable=untransmittable. Retrieved from https://www.preventionaccess.org/undetectable. Accessed 25 June 2017.
Psaros, C., Barinas, J., Robbins, G. K., Bedoya, C. A., Safren, S. A., & Park, E. R. (2012). Intimacy and sexual decision making: Exploring the perspective of HIV positive women over 50. AIDS Patient Care and STDs, 26(12), 755–760. https://doi.org/10.1089/apc.2012.0256.
Purdie-Vaughns, V., & Eibach, R. P. (2008). Intersectional invisibility: The distinctive advantages and disadvantages of multiple subordinate-group identities. Sex Roles, 59(5–6), 377–391. https://doi.org/10.1007/s11199-008-9424-4.
Rabkin, J. G. (2008). HIV and depression: 2008 review and update. Current HIV/AIDS Reports, 5(4), 163–171. https://doi.org/10.1007/s11904-008-0025-1.
Reddy, S., & Dunne, M. (2007). Risking It: Young heterosexual femininities in South African context of HIV/AIDS. Sexualities, 10(2), 159–172. https://doi.org/10.1177/136346070707797.
Riessman, C. K. (1983). Women and medicalization: A new perspective. Social Policy, 14(1), 3–18. https://www.ncbi.nlm.nih.gov/pubmed/10264493.
Rispel, L. C., Metcalf, C. A., Moody, K., Cloete, A., & Caswell, G. (2011). Sexual relations and childbearing decisions of HIV-discordant couples: An exploratory study in South Africa and Tanzania. Reproductive Health Matters, 19(37), 184–193. https://doi.org/10.1016/S0968-8080(11)37552-0.
Robinson, S., Gardner, S., Loutfy, M., Light, L., Tharao, W., Rourke, S. B., & Burchell, A. N. (2017). Sexual behaviors among women living with HIV in Ontario, Canada. AIDS Care, 29(5), 587–592. https://doi.org/10.1080/09540121.2016.1226477.
Rodger, A., Cambiano, V., Bruun, T., Vernazza, P., Collins, S., van Lunzen, J., … Beloukas, A. (2016). Sexual activity without condoms and risk of HIV transmission in serodifferent couples when the HIV-positive partner is using suppressive antiretroviral therapy. Journal of the American Medical Association (JAMA), 316(2), 171–181. https://doi.org/10.1001/jama.2016.5148.
Rosen, C. B., Heiman, J., Leiblum, S., Meston, C., Shabsigh, R., Ferguson, D., D'Agostino, R., & R. (2000). The Female Sexual Function Index (FSFI): A multidimensional self-report instrument for the assessment of female sexual function. Journal of Sex & Marital Therapy, 26(2), 191–208. https://doi.org/10.1080/009262300278597.
Rosen, R. C., Riley, A., Wagner, G., Osterloh, I. H., Kirkpatrick, J., & Mishra, A. (1997). The international index of erectile function (IIEF): A multidimensional scale for assessment of erectile dysfunction. Urology, 49(6), 822–830. https://doi.org/10.1016/S0090-4295(97)00238-0.
Rosenbaum, T. Y. (2013). An integrated mindfulness-based approach to the treatment of women with sexual pain and anxiety: Promoting autonomy and mind/body connection. Sexual and Relationship Therapy, 28(1–2), 20–28. https://doi.org/10.1080/14681994.2013.764981.
Rosenberg, M. S., Gómez-Olivé, F. X., Rohr, J. K., Houle, B. C., Kabudula, C. W., Wagner, R. G., … Tollman, S. M. (2017). Sexual Behaviors and HIV Status: A population-based study among older adults in rural South Africa. Journal of Acquired Immune Deficiency Syndromes (JAIDS), 74(1), e9–e17. https://doi.org/10.1097/QAI.0000000000001173.
Ryan, A. (2001). Feminism and Sexual Freedom in an Age of AIDS. Sexualities, 4(1), 91–107. https://doi.org/10.1177/136346001004001005.
Ryan, L., & Golden, A. (2006). ‘Tick the box please’: A reflexive approach to doing quantitative social research. Sociology, 40(6), 1191–1200. https://doi.org/10.1177/0038038506072287.
Salmander Trust. (2014). Building a safe house on firm ground: Key findings from a global values and preferences survey regarding the sexual and reproductive health and human rights of women living with HIV. Geneva: World Health Organization. http://salamandertrust.net/wp-content/uploads/2016/09/BuildingASafeHouseOnFirmGroundFINALreport190115.pdf.
Samji, H., Cescon, A., Hogg, R. S., Modur, S. P., Althoff, K. N., Buchacz, K., … Gill, M. J. (2013). Closing the gap: Increases in life expectancy among treated HIV-positive individuals in the United States and Canada. PLoS One, 8(12), e81355. https://doi.org/10.1371/journal.pone.0081355.
Sanchez, D. T., Crocker, J., & Boike, K. R. (2005). Doing gender in the bedroom: Investing in gender norms and the sexual experience. Personality and Social Psychology Bulletin, 31(10), 1445–1455. https://doi.org/10.1177/0146167205277333.
Sanchez, M., Webster, K., Salters, K., Kaida, A., & Carter, A. (2017, March 23). Life, love and lunch: A pleasureful pre-positive gathering for women. Positive Gathering Conference 2017, Vancouver, BC.
Sanders, S. A., Hill, B. J., Yarber, W. L., Graham, C. A., Crosby, R. A., & Milhausen, R. R. (2010). Misclassification bias: Diversity in conceptualisations about having 'had sex'. Sexual Health, 7(1), 31–34. https://doi.org/10.1071/SH09068.
Sandfort, T. G., & Ehrhardt, A. A. (2004). Sexual health: A useful public health paradigm or a moral imperative? Archives of Sexual Behavior, 33(3), 181–187. https://doi.org/10.1023/B:ASEB.0000026618.16408.e0.
Sassler, S. (2010). Partnering across the life course: Sex, relationships, and mate selection. Journal of Marriage and Family, 72(3), 557–575. https://doi.org/10.1111/j.1741-3737.2010.00718.x.
Scanavino, M. D. T. (2011). Sexual dysfunctions of HIV-positive men: Associated factors, pathophysiology issues, and clinical management. Advances in Urology, 2011, 1–10. https://doi.org/10.1155/2011/854792.
Schrooten, W., Colebunders, R., Youle, M., Molenberghs, G., Dedes, N., Koitz, G., ... The Eurosupport Study Group. (2001). Sexual dysfunction associated with protease inhibitor containing highly active antiretroviral treatment. AIDS, 15(8), 1019–1023. https://www.ncbi.nlm.nih.gov/pubmed/11399984.
Segraves, R., Balon, R., & Clayton, A. (2007). Reviews: Proposal for changes in diagnostic criteria for sexual dysfunctions. The Journal of Sexual Medicine, 4(3), 567–580. https://doi.org/10.1111/j.1743-6109.2007.00455.x.
Shaw, R. (2010). Embedding reflexivity within experiential qualitative psychology. Qualitative Research in Psychology, 7(3), 233–243. https://doi.org/10.1080/14780880802699092.
Shields, S. A. (2008). Gender: An intersectionality perspective. Sex Roles, 59(5), 301–311. https://doi.org/10.1007/s11199-008-9501-8.
Siegel, K., Schrimshaw, E., & Lekas, H.-M. (2006). Diminished sexual activity, interest, and feelings of attractiveness among HIV-infected women in two eras of the AIDS epidemic. Archives of Sexual Behavior, 35(4), 437–449. https://doi.org/10.1007/s10508-006-9043-5.
Siegel, K., & Schrimshaw, E. W. (2003). Reasons for the adoption of celibacy among older men and women living with HIV/AIDS. Journal of Sex Research, 40(2), 189–200. https://doi.org/10.1080/00224490309552180.
Sontag, S. (1988). Illness as metaphor and AIDS and its metaphors. New York: Picador.
Sprague, J. (2016). How feminists count: Critical strategies for quantitative methods. In J. Sprague (Ed.), Feminist methodologies for critical researchers: Bridging differences (pp. 94–143). London: Rowman and Littlefield.
Spurgas, A. K. (2013). Interest, arousal, and shifting diagnoses of female sexual dysfunction, or: How women learn about desire. Studies in Gender and Sexuality, 14(3), 187–205. https://doi.org/10.1080/15240657.2013.818854.
Spurgas, A. K. (2016). Low desire, trauma and femininity in the DSM-5: A case for sequelae. Psychology & Sexuality, 7(1), 48–67. https://doi.org/10.1080/19419899.2015.1024471.
Squire, C. (2003). Can an HIV-positive woman find true love?: Romance in the stories of women living with HIV. Feminism & Psychology, 13(1), 73–100. https://doi.org/10.1177/0959353503013001009.
Stevens, P., & Galvao, L. (2007). 'He won't use condoms': HIV-infected women's struggles in primary relationships with serodiscordant partners. American Journal of Public Health, 97(6), 1015–1022. 1018p. https://doi.org/10.2105/AJPH.2005.075705.
Stevens, P., & Tighe Doerr, B. (1997). Trauma of discovery: Women's narratives of being informed they are HIV-infected. AIDS Care, 9(5), 523–538. https://doi.org/10.1080/713613201.
Stevens, P. E., & Hildebrandt, E. (2006). Life changing words: Women's responses to being diagnosed with HIV infection. Advances in Nursing Science, 29(3), 207–221. https://www.ncbi.nlm.nih.gov/pubmed/17139203.
Taylor, T. N., Munoz-Plaza, C. E., Goparaju, L., Martinez, O., Holman, S., Minkoff, H. L., … Golub, E. T. (2006). Using the extended PLISSIT model to address sexual healthcare needs. Nursing Standard, 21(11), 35–40. https://doi.org/10.7748/ns2006.11.21.11.35.c6382.
Taylor, T. N., Munoz-Plaza, C. E., Goparaju, L., Martinez, O., Holman, S., Minkoff, H. L., … Golub, E. T. (2016). “The Pleasure Is Better as I’ve Gotten Older”: Sexual health, sexuality, and sexual risk behaviors among older women living with HIV. Archives of Sexual Behavior, 46(4), 1137–1150. https://doi.org/10.1007/s10508-016-0751-1.
Taylor, T. N., Weedon, J., Golub, E. T., Karpiak, S. E., Gandhi, M., Cohen, M. H., … Goparaju, L. (2015). Longitudinal trends in sexual behaviors with advancing age and menopause among women with and without HIV-1 infection. AIDS and Behavior, 19(5), 931–940. https://doi.org/10.1007/s10461-014-0901-1.
ter Kuile, M. M., Vigeveno, D., & Laan, E. (2007). Preliminary evidence that acute and chronic daily psychological stress affect sexual arousal in sexually functional women. Behaviour Research and Therapy, 45(9), 2078–2089. https://doi.org/10.1016/j.brat.2007.03.006.
The Well Project. (2017). Getting your sexy on!! Retrieved from http://www.thewellproject.org/hiv-information/getting-your-sexy.
Thomassilli, J. C. (2010). Navigating sexuality in the stigmatizing context of HIV/AIDS: A study of HIV-positive men and women in New York City. (PhD). The University of New York, New York City.
Tiefer, L. (1991). Historical, scientific, clinical and feminist criticisms of “the human sexual response cycle” model. Annual Review of Sex Research, 2(1), 1–23. http://www.tandfonline.com/doi/abs/10.1080/10532528.10531991.10559865?journalCode=hzsr10532520.
Tiefer, L. (1996). The medicalization of sexuality: Conceptual, normative, and professional issues. Annual Review of Sex Research, 7(1), 252–282. https://doi.org/10.1080/10532528.1996.10559915.
Tiefer, L. (2001). A new view of women's sexual problems: Why new? WHY now? Journal of Sex Research, 38, 89–96. https://doi.org/10.1080/00224490109552075.
Tiefer, L. (2002). Arriving at a “new view” of women's sexual problems: Background, theory, and activism. Women & Therapy, 24(1–2), 63–98. https://doi.org/10.1300/J015v24n01_12.
Tiefer, L. (2003). Female sexual dysfunction (FSD): Witnessing social construction in action 1. Sexualities, Evolution & Gender, 5(1), 33–36. https://doi.org/10.1080/14616660310001594962.
Tiefer, L. (2004). Sex is not a natural act and other essays (2nd ed.). Colorado: Westview Press.
Tosh, J., & Carson, K. (2016). A Desire to be ‘Normal’? A Discursive and Intersectional Analysis of ‘Penetration Disorder’. Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice, 5(3), 151–172. http://journals.library.mun.ca/ojs/index.php/IJ/article/view/1607.
Trotta, M. P., Ammassari, A., Murri, R., Marconi, P., Zaccarelli, M., Cozzi-Lepri, A., … Tozzi, V. (2008). Self-reported sexual dysfunction is frequent among HIV-infected persons and is associated with suboptimal adherence to antiretrovirals. AIDS Patient Care and STDs, 22(4), 291–299. https://doi.org/10.1089/apc.2007.0061.
UNAIDS. (2016). Global AIDS Update. Retrieved from Geneva: http://www.unaids.org/sites/default/files/media_asset/global-AIDS-update-2016_en.pdf.
Valadares, A. L., Pinto-Neto, A. M., de C Gomes, D., D'Avanzo, W. C., Moura, A. S., Costa-Paiva, L., … Akl, L. (2014). Dyspareunia in HIV-positive and HIV-negative middle-aged women: A cross-sectional study. British Medical Journal Open, 4(11), e004974. https://doi.org/10.1136/bmjopen-2014-004974.
van der Straten, A., Vernon, K. A., Knight, K. R., Gomez, C. A., & Padian, N. S. (1998). Managing HIV among serodiscordant heterosexual couples: Serostatus, stigma and sex. AIDS Care, 10(5), 533–548. https://doi.org/10.1080/09540129848406.
Vance, C. S., & Pollis, C. A. (1990). Introduction a special issue on feminist perspectives on sexuality. Journal of Sex Research, 27(1), 1–5. https://doi.org/10.1080/00224499009551538.
VanDevanter, N., Thacker, A. S., Bass, G., & Arnold, M. (1999). Heterosexual couples confronting the challenges of HIV infection. AIDS Care, 11(2), 181–193. https://doi.org/10.1080/09540129948072.
Vasilenko, S. A., Kugler, K. C., & Lanza, S. T. (2015). Latent Classes of Adolescent Sexual and Romantic Relationship Experiences: Implications for adult sexual health and relationship outcomes. The Journal of Sex Research, 1–12. https://doi.org/10.1080/00224499.2015.1065952.
Vasilenko, S. A., Ram, N., & Lefkowitz, E. S. (2011). Body Image and First Sexual Intercourse in Late Adolescence. Journal of Adolescence, 34(2), 327–335. https://doi.org/10.1016/j.adolescence.2010.04.005.
Vernazza, P., & Bernard, E. (2016). HIV is not transmitted under fully suppressive therapy: The Swiss statement – eight years later. Swiss Medical Weekly, 146(w14246), 1–6. https://doi.org/10.4414/smw.2016.14246.
Vernazza, P., Hirschel, B., Bernasconi, E., & Flepp, M. (2008). Les personnes séropositives ne souffrant d’aucune autre MST et suivant un traitement antirétroviral efficace ne transmettent pas le VIH par voie sexuelle. Bulletin des Médecins Suisses, 89(5), 165–169. https://www.unige.ch/sciences-societe/socio/files/4814/0533/6055/Vernazza_2008.pdf.
Wallen, K., & Lloyd, E. A. (2011). Female sexual arousal: Genital anatomy and orgasm in intercourse. Hormones and Behavior, 59(5), 780–792. https://doi.org/10.1016/j.yhbeh.2010.12.004.
Wang, Q., Young, J., Bernasconi, E., Cavassini, M., Vernazza, P., Hirschel, B., … Bucher, H. C. (2013). The prevalence of erectile dysfunction and its association with antiretroviral therapy in HIV-infected men: The Swiss HIV cohort study. Antiviral Therapy, 18(3), 337–344. https://doi.org/10.3851/imp2372.
Welbourn, A. (2013). Denied desire: Sexual pleasure in the context of HIV. In S. Jolly, A. Cornwall, & K. Hawkins (Eds.), Women, sexuality and the political power of pleasure (pp. 142–161). London: Zed Books.
Wentland, J. J., & Reissing, E. (2014). Casual sexual relationships: Identifying definitions for one night stands, booty calls, fuck buddies, and friends with benefits. The Canadian Journal of Human Sexuality, 23(3), 167–177. https://doi.org/10.3138/cjhs.2744.
Wessman, M., Aho, I., Thorsteinsson, K., Storgaard, M., Johansen, I. S., Lunding, S., … Weis, N. (2015). Perception of sexuality and fertility in women living with HIV: A questionnaire study from two Nordic countries. Journal of the International AIDS Society, 18(19962), 1–10. https://doi.org/10.7448/ias.18.1.19962.
Whetten, K., Leserman, J., Lowe, K., Stangl, D., Thielman, N., Swartz, M., … Van Scoyoc, L. (2006). Prevalence of childhood sexual abuse and physical trauma in an HIV-positive sample from the deep south. American Journal of Public Health, 96(6), 1028–1030. https://doi.org/10.2105/AJPH.2005.063263.
Whitbread, J. L. (2016). Space dates. Retrieved from http://jessicawhitbread.com/project/space-dates/. Accessed 25 June 2017.
Whitbread, J. (2017). Love positive women. Retrieved from http://jessicawhitbread.com/project/love-positive-women/. Accessed 25 June 2017.
Wilson, T. E., Jean-Louis, G., Schwartz, R., Golub, E. T., Cohen, M. H., Maki, P., … Goparaju, L. (2010). HIV infection and women’s sexual functioning. Journal of Acquired Immune Deficiency Syndromes (JAIDS), 54(4), 360–367. https://doi.org/10.1097/QAI.0b013e3181d01b14.
Wood, J. M., Koch, P. B., & Mansfield, P. K. (2006). Women's sexual desire: A feminist critique. Journal of Sex Research, 43(3), 236–244. https://doi.org/10.1080/00224490609552322.
World Association for Sexual Health. (2014). Declaration of Sexual Rights. http://www.worldsexology.org.
World Health Organization. (2006). Defining sexual health: Report of a technical consultation on sexual health. Geneva: World Health Organization.
World Health Organization. (2017). Consolidated guideline on sexual and reproductive health and rights of women living with HIV. Geneva: World Health Organization.
Young, M., Denny, G., Luquis, R., & Young, T. (1998). Correlates of sexual satisfaction in marriage. The Canadian Journal of Human Sexuality, 7(2), 115–127. http://psycnet.apa.org/psycinfo/1998-12452-12002.
Zierler, S., Mayer, K., Moore, J., Stein, M., Schoenbaum, E., Schuman, P., & Rompalo, A. (1999). Sexual practices in a cohort of US women with and without human immunodeficiency virus. HERS Study. HIV Epidemiology Research Study. Journal of the American Medical Women's Association, 54(2), 79–83. https://www.ncbi.nlm.nih.gov/pubmed/10319596.
We would like to thank all of the women living with HIV, researchers, providers, and policymakers who supported this grant and review. We also thank Dr. Robert S. Hogg for his involvement as a Doctoral Supervisory Committee Member, and Alexandra de Pokomandy, Mary Kestler, Gina McGowan, Joanne Otis, and Wangari Tharao for their contributions to the grant. Lastly, we thank the editor and reviewers for their critical comments and suggestions, which strengthened the final manuscript. We dedicate this work to the many women living with HIV around the world.
The present review was supported by a Knowledge Synthesis Grant from the Canadian Institutes of Health Research (CIHR, 147983). AC and KS received support through a Doctoral Research Award from the CIHR HIV/AIDS Research Initiative and the Canadian Association for HIV Research (CAHR). AK received salary support through a Tier 2 Canada Research Chair in Global Perspectives on HIV and Sexual and Reproductive Health.
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Carter, A., Greene, S., Money, D. et al. The Problematization of Sexuality among Women Living with HIV and a New Feminist Approach for Understanding and Enhancing Women’s Sexual Lives. Sex Roles 77, 779–800 (2017). https://doi.org/10.1007/s11199-017-0826-z
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