Young People with Intellectual Disability Talking About Sexuality Education and Information
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When young people with intellectual disability (ID) begin to explore their sexuality they face a number of challenges accessing information and support. Unlike most of their non-disabled peers, young people with ID face the challenge of developing their sexuality and relationships within a narrow and regulated social and private life. For young men with ID their sexuality is often pathologised and for young women there is a focus on hygiene, self-protection, and pregnancy. For both young men and young women, their education is dominated by a biological focus and taught as ‘rules’. Mainstream sexuality education curriculum has progressed to a more holistic approach. This holistic approach is missing from programs experienced by young people with ID. In this study we spoke to young people with ID about their experiences and opinions of the effectiveness of sexuality education. Gender-specific focus groups were conducted with 14 young men and 11 young women with ID attending transition programs in Australia. Qualitative data were analysed using a constant comparative method informed by Grounded Theory and highlighted three issues: (1) the young people knew facts and rules but not the ‘how to’ of relationships and sex (2) access to information was limited and mediated by risk averse informants (3) the young people were full of unanswered questions - they wanted to know more and do more.
KeywordsIntellectual disability Sexuality and relationships Young people Transition to Adulthood Sexuality education Gender
This research was funded by the 2012 Australasian Society for Intellectual Disability (ASID) research prize. The views expressed herein are those of the authors.
Compliance with Ethical Standards
Conflict of interest
No conflicts of interest are declared.
- 2.Disabiliy Rights Commission and MORI.: Survey of Young Disabled People Aged 16–24. Disability Rights Commission (2002)Google Scholar
- 6.UNESCO: International Guidelines on Sexuality Education. UNESCO, Paris (2009)Google Scholar
- 7.CRPD. Convention on the rights of persons with disabilities. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html (2006). Accessed 26 May 2016
- 8.Centre for Disability Research.: Report of Audit of Disability Research in Australia. Centre for Disability Research and Policy (2014)Google Scholar
- 11.Heenan, M., Murray, S.: Study of Reported Rapes in Victoria 2000–2003. Statewide Steering Committee to reduce sexual violence, Melbourne (2006)Google Scholar
- 20.Lambrick, F., Glaser, W.: Sex offenders with an intellectual disability. Sex. Abuse: J. Res. Treat. 16(4), 381–392 (2004)Google Scholar
- 22.Azzopardi-Lane, C., Callus, A.-M.: Constructing sexual identities: people with intellectual disability talking about sexuality. Br. J. Learn. Disabil. 43(1), 32–37 (2015)Google Scholar
- 23.Slater, J.: Youth and Disability. A Challenge to Mr Reasonable. Ashgate, Farnham (2015)Google Scholar
- 24.Povilaitienė, N., Radzevičienė, L.: Parents’ and teachers’ attitude to family planning of adolescents with mild intellectual disabilities in the context of conceptions of gender and sexuality. Soc. Welf. Interdiscip. Approach 3(2), 8–18 (2013)Google Scholar
- 29.Johnson, B., et al.: ‘It’s Not all About Sex’. Young People’s Views About Sexuality and Relationships Education. Report of Stage 1 of the Engaging Young People in Sexuality Education Research Project. University of South Australia, Adelaide (2016)Google Scholar
- 31.CHANGE: Talking About Sex and Relationships: The Views of Young People with Learning Disabilities. CHANGE, Leeds (2010)Google Scholar
- 32.Hillier, L., Johnson, K., Harrison, H.: Sex, secrets and desire: people with intellectual disabilities talk about their lives. Intellect. Disabil. Aust. 23(1), 6–8 (2002)Google Scholar
- 34.Patton, M.Q.: Qualitative Research and Evaluation Methods, 3rd edn. Sage, Thousand Oaks (2002)Google Scholar
- 36.Wilson, N.J., Frawley, P.: Transition staff discuss sex education and support for young men and women with intellectual and developmental disability. J. Intellect. Dev. Disabil., 1–13 (2016)Google Scholar