Sexuality and Disability

, Volume 34, Issue 3, pp 269–288 | Cite as

A Sexuality and Relationship Training Program for Women with Intellectual Disabilities: A Social Story Approach

Original Paper

Abstract

A multi-method study design involving three different phases was used to develop four social stories that could be used as part of a sexuality and relationship training program for women with intellectual disabilities. Phase 1 entailed a systematic review of the literature and results indicate that social stories provide a suitable methodology for teaching socially desirable responses related to sexuality and relationships. Phase 2 entailed a focus group with women with intellectual disabilities and results showed that they wanted more information about different types of relationships, including romantic relationships. They also wanted to understand what types of behavior (e.g. different types of greetings) were appropriate for the different types of relationships. Next, four social stories were written based on the results of these two phases. Finally, these four social stories were implemented in Phase 3 with ten caregivers of women with intellectual disabilities in order to evaluate the appropriateness of the stories. Results showed that three of the four social stories were appropriate, and that one required re-writing as it was not appropriate for the specific context, as women at that facility did not have the opportunity to go on dates. A suggestion was made that the story be re-written to reflect romantic relationships as opposed to dating.

Keywords

Caregivers Intellectual disability Relationship Social stories Women South Africa 

Notes

Acknowledgments

We are grateful for the substantive technical assistance of Liza Rosetti-Siefe.

References

  1. 1.
    Ali, S., Frederickson, N.: Investigating the evidence base of social stories. Educ. Psychol. Pract. 22(4), 355–377 (2006)CrossRefGoogle Scholar
  2. 2.
    Bernert, D.J.: Sexuality and disability in the lives of women with intellectual disabilities. Sex. Disabil. 29, 129–141 (2011)CrossRefGoogle Scholar
  3. 3.
    Bleazard, A.V.: Sexuality and Intellectual Disability: Perspectives of Young Women with Intellectual Disability (Unpublished doctoral thesis). Stellenbosch University, Stellenbosch (2010)Google Scholar
  4. 4.
    Boehning, A.: Sex education for students with disabilities. Indiana University Scholar Works. Law Disord. 1, 59–66 (2006)Google Scholar
  5. 5.
    Chan, J.M., O’Reilly, M.F.: A social stories intervention package for students with autism in inclusive classroom settings. J. Appl. Behav. Anal. 41(3), 405–409 (2008)CrossRefPubMedPubMedCentralGoogle Scholar
  6. 6.
    Couwenhoven, T.C.: Teaching Children with Down Syndrome About Their Bodies, Boundaries and Sexuality. Woodbine House, Bethesda (2007)Google Scholar
  7. 7.
    Deeley, S.: Professional ideology and learning disability: an analysis of internal conflict. Disabil. Soc. 17(1), 19–33 (2002)CrossRefGoogle Scholar
  8. 8.
    Del Valle, P.R., McEachern, A.G., Chambers, H.D.: Using social stories with autistic children. J. Poet. Ther. 14(4), 187–197 (2001)CrossRefGoogle Scholar
  9. 9.
    Den Hoogh, A.H.B., Den Hartog, D.N.: Ethical and despotic leadership, relationships with leader’s social responsibility, top management team effectiveness and subordinates’ optimism: a multi-method study. Leadersh. Q. 19, 297–311 (2008)CrossRefGoogle Scholar
  10. 10.
    Evans, D.S., McGuire, B.E., Healy, E., Carley, S.N.: Sexuality and personal relationships for people with an intellectual disability. Part II: staff and family carer perspectives. J. Intellect. Disabil. Res. 53(11), 913–921 (2009)CrossRefPubMedGoogle Scholar
  11. 11.
    Fitzgerald, C., Withers, P.: I don’t know what a proper woman means: what women with intellectual disabilities think about sex, sexuality and themselves. Br. J. Learn. Disabil. 41, 5–12 (2011)CrossRefGoogle Scholar
  12. 12.
    Gerhardt, S.: Why love matters: how affection shapes a baby’s brain. Infant Obs. 9(3), 305–309 (2006)CrossRefGoogle Scholar
  13. 13.
    Gougeon, N.A.: Sexuality education for students with intellectual disabilities, a critical pedagogical approach: outing the ignored curriculum. Sex Educ. 9(3), 277–291 (2009)CrossRefGoogle Scholar
  14. 14.
    Graetz, J.E., Mastropieri, M.A., Scruggs, T.E.: Decreasing inappropriate behaviours for adolescents with autism spectrum disorders using modified social stories. Educ. Train. Dev. Disabil. 44(1), 91–104 (2009)Google Scholar
  15. 15.
    Gray, C.: Your concerns result in a social story ratio: a closer look at directive sentences. Access Express 4, 4–5 (1995)Google Scholar
  16. 16.
    Gray, C.: My Social Stories Book (Illustrated edition). http://www.goodreads.com/book/show/696691.My_Social_Stories_Book (1997)
  17. 17.
    Gray, C.: The New Social Story Book, Illustrated edn. Future Horizons Inc, Arlington (2000)Google Scholar
  18. 18.
  19. 19.
    Hanna, R., Rogovsky, B.: Women with disabilities: two handicaps plus. Disabil. Handicap Soc. 6(1), 49–63 (1991)CrossRefGoogle Scholar
  20. 20.
    Kalyva, E., Agaliotis, I.: Can social stories enhance the interpersonal conflict resolution skills of children with learning disabilities? Res. Dev. Disabil. 1(30), 192–202 (2009)CrossRefGoogle Scholar
  21. 21.
    Klett, L.S., Turan, T.: Generalized social effects of social stories with task analysis for teaching menstrual care to three young girls with autism. Sex. Disabil. 30(3), 319–336 (2012)CrossRefGoogle Scholar
  22. 22.
    Lafferty, A., McConkey, R., Taggart, L.: Beyond friendship: the nature and meaning of close personal relationships as perceived by people with learning disabilities. Disabil. Soc. 28(8), 1074–1088 (2013)CrossRefGoogle Scholar
  23. 23.
    Mancil, G.R., Haydon, T., Whitby, P.: Differentiated effects of two social story™ formats, paper versus computer assisted on inappropriate behaviour of children with autism spectrum disorders. Focus Autism Other Dev. Disabil. 204, 205–215 (2009)CrossRefGoogle Scholar
  24. 24.
    Miodrag, N.: An Exploration of A Socio-Sexual Education Program for Individuals with Developmental Disabilities: Changes in Knowledge and Attitudes (Unpublished master’s dissertation). Concordia University, Montreal (2004)Google Scholar
  25. 25.
    Morales, G.E., Lopez, E.O., Mullet, E.: Acceptability of sexual relationships among people with learning disabilities: family and professional caregivers’ views in Mexico. Sex. Disabil. 29, 165–174 (2011)CrossRefGoogle Scholar
  26. 26.
    Moyes, R.A.: Incorporating Social Goals in the Classroom: A guide for Teachers and Parents of Children with High-Functioning Autism and Asperger Syndrome. Jessica Kingsley Publishers, London (2001)Google Scholar
  27. 27.
    Ozdemir, S.: The effectiveness of social stories on decreasing disruptive behaviours of children with autism: three case studies. J. Autism Dev. Disord. 38, 1689–1696 (2008)CrossRefPubMedGoogle Scholar
  28. 28.
    Pettigrew, J.D.C.: Effects of the Modelling of Verbal and Non-verbal Procedures for Interactions with Peers Through Social Stories and Scaffolded Activities on the Social Competence of 3- and 4-year-old Children with Specific Language Impairments (Unpublished doctoral thesis). Texas Woman’s University, Denton (1998)Google Scholar
  29. 29.
    Quilty, K.M.: Teaching paraprofessionals how to write and implement social stories for students with autism spectrum disorders. Remedial Spec. Educ. 28(3), 182–189 (2007)CrossRefGoogle Scholar
  30. 30.
    Quimbach, L.M., Lincoln, A.J., Feinberg-Gizzo, M.J., Ingersoll, B.R., Andrews, S.M.: Social stories: mechanisms of effectiveness in increasing game play skills in children diagnosed with autism spectrum disorder using a pretest posttest repeated measures randomized control group design. J. Autism Dev. Disord. 39, 299–321 (2009)CrossRefGoogle Scholar
  31. 31.
    Rathbone, L.: The Effect of A Sexuality Training Programme on the Knowledge and Attitudes of Caregivers Working with Women with Intellectual Disabilities Who Live in Residential Care Facilities: A Social Story Approach (Unpublished doctoral thesis). University of Pretoria, Pretoria (2015). http://hdl.handle.net/2263/52552
  32. 32.
    Szollos, A.A., McCabe, M.P.: The sexuality of people with mild intellectual disability: perceptions of clients and caregivers. Aust. N. Z. J. Dev. Disabil. 20(3), 205–222 (1995)Google Scholar
  33. 33.
    Tarnai, B., Wolfe, P.S.: Social stories for sexuality education for persons with autism/pervasive developmental disorder. Sex. Disabil. 26, 29–36 (2008)CrossRefGoogle Scholar
  34. 34.
    Toplis, R., Hadwin, J.A.: Using social stories to change problematic lunchtime behaviour in school. Educ. Psychol. Pract. Theory 22(1), 53–67 (2006)CrossRefGoogle Scholar
  35. 35.
    Wang, P., Spillane, A.: Evidence-based social skills interventions for children with autism: a meta analysis. Educ. Train. Dev. 44(3), 318–342 (2009)Google Scholar

Copyright information

© Springer Science+Business Media New York 2016

Authors and Affiliations

  1. 1.Centre for Augmentative and Alternative Communication (CAAC), Communication Pathology BuildingUniversity of PretoriaPretoriaSouth Africa

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