Sexuality and Disability

, Volume 26, Issue 2, pp 75–81 | Cite as

Caregiver Perception of Sexual Behaviors of Individuals with Intellectual Disabilities

Original Paper

Abstract

Sexuality defines how we interact with others, what relationships we develop, how we love and show affection, and how we feel about our bodies. Individuals afflicted with intellectual disabilities often lack skills to make sensible decisions regarding their safety and well being. Caregivers are in the position to provide social skills and experiences needed to develop exploration of sexuality and awareness of self protection skills. The purpose of this descriptive survey study was to determine the perception of caregivers toward the sexuality of individuals with intellectual disabilities. The Perception of Sexuality scale was used to measure caregiver attitude toward sexual behaviors of individuals with intellectual disability. The survey format was sent to 160 caregivers and yielded responses from 87 participants. Inferential statistics was used to determine basic characteristics of the responses.

Keywords

Caregiver Perception Sexuality Individuals with intellectual disabilities Individuals with Intellectual disorders Intellectually disabled 

References

  1. 1.
    Hingsburger, D., Tough, S.: Healthy sexuality: attitudes, systems, and policy. Res. Pract. Pers. Sev. Disabil. 27, 8–17 (2002)CrossRefGoogle Scholar
  2. 2.
    Lunsky, Y., Konstantareas, M.: The attitudes of individuals with autism and intellectual disability towards sexuality. Educ. Train. Intellect. Disabil. Dev. Disabil. 33, 24–33 (1998)Google Scholar
  3. 3.
    Shepperdson, B.: The control of sexuality in young people with Down’s syndrome. Child Care Health Dev. 21, 333–349 (1995)PubMedCrossRefGoogle Scholar
  4. 4.
    Halstead, S.: Service-user and professional issues. J. Intellect. Disabil. Res. 46, 31–46 (2002)PubMedCrossRefGoogle Scholar
  5. 5.
    McCabe, M.: Sexual knowledge, experience, and feelings among people with disability. Sex. Disabil. 17, 57–170 (1999)CrossRefGoogle Scholar
  6. 6.
    McConkey, R., Ryan, D.: Experiences of staff dealing with client sexuality in services for teenagers and adults with intellectual disability. J. Intellect. Disabil. Res. 45, 83–87 (2001)PubMedCrossRefGoogle Scholar
  7. 7.
    McCarthy, M., Thompson, D.: A prevalence study of sexual abuse of adults with intellectual disabilities referred for sex education. J. Appl. Res. Intellect. Disabil. 10, 105–124 (1997)CrossRefGoogle Scholar
  8. 8.
    Walcott, D.: Family life education for persons with developmental disabilities. Sex. Disabil. 15, 91–97 (1997)CrossRefGoogle Scholar
  9. 9.
    Wilcox, D., Dowrick, P., Ward, K.: Effectiveness of a model for training direct service personnel in rural and remote locations. J. Intellect. Dev. Disabil. 26, 311–323 (2001)CrossRefGoogle Scholar
  10. 10.
    Karellou, J.: Development of the Greek Sexuality Attitudes Questionnaire-Learning Disabilities (GSAQ-LD). Sex. Disabil. 21, 113–135 (2003a)CrossRefGoogle Scholar
  11. 11.
    Karellou, J.: Laypeople’s attitudes toward the sexuality of people with learning disabilities in Greece. Sex. Disabil. 21, 65–84 (2003b)CrossRefGoogle Scholar
  12. 12.
    Oliver, M., Anthony, A., Leimkuhl, T.: Attitudes toward acceptable socio-sexual behaviors for persons with intellectual disability: implications for normalization and community integration. Educ. Train. Intellect. Disabil. Dev. Disabil. 37, 193–201 (2002)Google Scholar
  13. 13.
    Owen, F., Griffiths, D., Feldman, M., Sales, C., Richards, D.: Attitude of a acceptable boundaries by persons with developmental disabilities and their careproviders. J. Dev. Disabil. 7, 34–49 (2000)Google Scholar
  14. 14.
    Reid, D.: Sexual activity in people with learning disability. Br. J. Learn. Disabil. 23, 56–58 (1995)CrossRefGoogle Scholar
  15. 15.
    Scotti, J., Slack, B., Bowman, R., Morris, T.: College student attitudes concerning the sexuality of persons with mental retardation: development of the perceptions of sexuality scale. Sex. Disabil. 14, 249–263 (1996)CrossRefGoogle Scholar
  16. 16.
    Ajzen I., Fishbein M.: Understanding Attitudes and Predicting Social Behavior. Prentice-Hall, Englewood Cliffs (1980)Google Scholar
  17. 17.
    Wolfensberger, W., Tullman, S.: A brief outline of the principle of normalization. Rehabil. Psychol. 27, 131–145 (1982)CrossRefGoogle Scholar
  18. 18.
    Cuskelly, M., Bryde, R.: Attitudes towards the sexuality of adults with intellectual disability: parents support staff, and community sample. J. Intellect. Dev. Disabil. 29, 255–264 (2004)CrossRefGoogle Scholar
  19. 19.
    DiGiulio, G.: Sexuality and people living with physical or developmental disabilities: a review of key issues. Can. J. Hum. Sex. 12, 53–68 (2003)Google Scholar
  20. 20.
    Kendall, M., Booth, S., Fronek, P., Miller, D., Geraghty, T.: The development of a scale to assess the training needs of professionals in providing sexuality rehabilitation following spinal cord injury. Sex. Disabil. 21, 49–64 (2003)CrossRefGoogle Scholar
  21. 21.
    Lumley, V., Scotti, J.: Supporting the sexuality of adults with mental retardation: Current status and future directions. J. Posit Behav. Interv. 3, 109–119 (2001)CrossRefGoogle Scholar
  22. 22.
    Milligan, M., Neufeldt, A.: The myth of asexuality: a survey of social and empirical evidence. Sex. Disabil. 19, 91–109 (2001)CrossRefGoogle Scholar
  23. 23.
    Beart, S., Hardy, G., Buchan, L.: How people with intellectual disabilities view their social identity: a review of the literature. J. Appl. Res. Intellect. Disabil. 18, 47–56 (2005)CrossRefGoogle Scholar
  24. 24.
    Lofgren-Martenson, L.: “May I?” About sexuality and love in the new generation with intellectual disabilities. Sex. Disabil. 22, 197–207 (2004)CrossRefGoogle Scholar
  25. 25.
    Aunos, M., Feldman, M.: Attitude towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. J. Appl. Res. Intellect. Disabil. 15, 285–296 (2002)CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2008

Authors and Affiliations

  1. 1.School of NursingUniversity of Alaska AnchorageAnchorageUSA
  2. 2.Hope Community ResourcesAnchorageUSA
  3. 3.AnchorageUSA
  4. 4.Walden UniversityMinneapolisUSA

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