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Quality of Life Research

, Volume 27, Issue 6, pp 1571–1581 | Cite as

The impact of caregiver’s role preference on decisional conflicts and psychiatric distresses in decision making to help caregiver’s disclosure of terminal disease status

  • Shin Hye Yoo
  • Young Ho YunEmail author
  • Kyoung-Nam Kim
  • Jung Lim Lee
  • Jeanno Park
  • Youn Seon Choi
  • Yeun Keun Lim
  • Samyong Kim
  • Hyun Sik Jeong
  • Jung Hun Kang
  • Ho-Suk Oh
  • Ji Chan Park
  • Si-Young Kim
  • Hong Suk Song
  • Keun Seok Lee
  • Dae Seog Heo
  • Young Seon Hong
Article

Abstract

Purpose

The objective of this study was to investigate the impact of caregivers’ role preference in decision making on conflicts and psychiatric distresses.

Methods

The responses of 406 caregivers of terminal cancer patients enrolled in a trial determining the efficacy of a decision aid focused on the disclosure of terminal disease status were included in this secondary analysis. The outcomes include the change scores of the Decision Conflict Scale (DCS) and depression and anxiety subscales of the Hospital Anxiety and Depression Scale (HADS) at the 1 and 3 months from baseline. The linear mixed model was employed to discover the impact of caregivers’ decisional role preference on the outcomes.

Findings

Of the 406, 137 (33.7%) showed an active role preference and 269 (66.3%) showed a passive role preference. In the post hoc analysis of the adjusted differences of change scores between passive caregivers who received decision aid (passive-decision aid) and active caregivers with decision aid (active-decision aid), non-significant differences were observed in the DCS. However, at the 3-month, the change scores of the HADS depression subscale increased by 4.43 (effect size, 0.71) and those of the HADS anxiety subscale increased by 4.14 (effect size, 0.61) in the passive-decision aid group than in active-decision aid group, showing moderate to large difference.

Conclusions

These findings suggest that information might be ethically recommended in a format that is interactive and tailored to how much an individual wishes to be involved in the decision-making process.

Keywords

Decision making Decision aid Caregiver Decisional role preference Cancer End of life 

Notes

Acknowledgements

Financial support for this study was provided in part by a grant from National Cancer Center (Grant Number: 0710420-1) and a grant of the Korea Health Technology R&D Project through the Korea Health Industry Development Institute (KHIDI), funded by the Ministry of Health & Welfare, Republic of Korea (Grant Number: HC13C1391). The funding agreement ensured the authors’ independence in designing the study, interpreting the data, writing, and publishing the report.

Compliance with Ethical Standards

Ethical approval

All procedures performed in this study were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards. The institutional review boards of the 13 hospitals and the National Cancer Center approved the protocol (reference: nccncs-08-142). Informed consent was obtained from all individual participants included in the study. This article does not contain any studies with animals performed by any of the authors.

Conflict of interest

The author(s) indicated no potential conflicts of interest.

Supplementary material

11136_2018_1814_MOESM1_ESM.docx (27 kb)
Supplementary material 1 (DOCX 26 KB)

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Copyright information

© Springer International Publishing AG, part of Springer Nature 2018

Authors and Affiliations

  • Shin Hye Yoo
    • 1
  • Young Ho Yun
    • 2
    Email author
  • Kyoung-Nam Kim
    • 3
  • Jung Lim Lee
    • 4
  • Jeanno Park
    • 5
  • Youn Seon Choi
    • 6
  • Yeun Keun Lim
    • 7
  • Samyong Kim
    • 8
  • Hyun Sik Jeong
    • 9
  • Jung Hun Kang
    • 10
  • Ho-Suk Oh
    • 11
  • Ji Chan Park
    • 12
  • Si-Young Kim
    • 13
  • Hong Suk Song
    • 14
  • Keun Seok Lee
    • 15
  • Dae Seog Heo
    • 1
  • Young Seon Hong
    • 16
  1. 1.Department of Internal MedicineSeoul National University College of MedicineSeoulRepublic of Korea
  2. 2.Department of Biomedical ScienceSeoul National University College of MedicineSeoulRepublic of Korea
  3. 3.Institute of Public Health and Medical ServiceSeoul National University HospitalSeoulRepublic of Korea
  4. 4.Department of Hemato-OncologyDaegu Fatima HospitalDaeguRepublic of Korea
  5. 5.Palliative Care and Hospice CenterBobath Memorial HospitalSeongnamRepublic of Korea
  6. 6.Department of Family MedicineKorea University Guro HospitalSeoulRepublic of Korea
  7. 7.Department of Internal MedicineKwangju Christian HospitalKwangjuRepublic of Korea
  8. 8.Division of Hemato-Oncology, Department of Internal Medicine, College of MedicineChungnam National UniversityDaejeonRepublic of Korea
  9. 9.Department of Hematology and OncologyGSAM HospitalGunpoRepublic of Korea
  10. 10.Department of Internal Medicine, Postgraduate Medical SchoolGyeongsang National UniversityJinjuRepublic of Korea
  11. 11.Department of Internal Medicine, Gangneung Asan HospitalUniversity of Ulsan College of MedicineGangneungRepublic of Korea
  12. 12.Division of Hemato-Oncology, Department of Internal Medicine, Daejeon St Mary’s HospitalThe Catholic University of KoreaDaejeonRepublic of Korea
  13. 13.Departments of Medical Oncology and HematologyKyung Hee University HospitalSeoulRepublic of Korea
  14. 14.Department of Internal MedicineKeimyung University Dongsan Medical CenterDaeguRepublic of Korea
  15. 15.Center for Breast Cancer, Research Institute and HospitalNational Cancer CenterGoyangRepublic of Korea
  16. 16.Department of Internal Medicine, Seoul St Mary’s HospitalThe Catholic University of KoreaSeoulRepublic of Korea

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