Quality of Life Research

, Volume 23, Issue 6, pp 1859–1868 | Cite as

Impact of autism in adolescents on parental quality of life

  • Amaria Baghdadli
  • René Pry
  • Cécile Michelon
  • Cécile Rattaz



To study the impact of autism spectrum disorders (ASDs) on parental quality of life (QoL) at adolescence using the parental–developmental disorders-quality of life scale (Par–DD-QoL).


One hundred and fifty-two mothers of adolescents with ASD completed Par–DD-QoL. This scale assesses the following dimensions: emotional, daily disturbance and global QoL. This cross-sectional study uses a subset of data collected at the final time of a follow-up study (EpiTED cohort).


A polytomic regression identified an increase in aberrant behavior scores as the major independent risk factor for parental QoL. The identified protective factors were the increase in daily living, communication and object cognition scores and a higher number of siblings.


Those results suggest that there is a negative effect of externalizing behaviors and a protective effect of adaptive skills, communication and object cognition on parental QoL. Study limitations and implications are discussed.


Parental quality of life Autism spectrum disorders Risk factors Adolescents Cohort 



Quality of life


Autism spectrum disorders


Parental–developmental disorders-quality of life



This study was supported by a grant from the Orange Foundation and the PHRC 1997 and 2007. We are extremely grateful to all the teenagers and their families who took part in this study, and the whole EpiTED Team.

Conflict of interest

The authors have no conflict of interest to report.


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Copyright information

© Springer International Publishing Switzerland 2014

Authors and Affiliations

  • Amaria Baghdadli
    • 1
    • 2
  • René Pry
    • 1
    • 2
  • Cécile Michelon
    • 1
    • 2
  • Cécile Rattaz
    • 1
    • 2
  1. 1.Centre Ressources AutismeCHRU MontpellierMontpellier Cedex 05France
  2. 2.Laboratoire EpsylonUniversity of Montpellier, EA 4556MontpellierFrance

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