Quality of Life Research

, Volume 22, Issue 10, pp 2865–2876

An examination of the PROMIS® pediatric instruments to assess mobility in children with cerebral palsy

  • Anna L. Kratz
  • Mary D. Slavin
  • M. J. Mulcahey
  • Alan M. Jette
  • David S. Tulsky
  • Stephen M. Haley
Article

DOI: 10.1007/s11136-013-0397-6

Cite this article as:
Kratz, A.L., Slavin, M.D., Mulcahey, M.J. et al. Qual Life Res (2013) 22: 2865. doi:10.1007/s11136-013-0397-6

Abstract

Purpose

The Patient-Reported Outcomes Measurement Information System (PROMIS®) provides adult and pediatric self-report measures of health-related quality of life designed for use across medical conditions and the general population. The purpose of this study was to examine the feasibility and validity of the PROMIS® Pediatric Short Form and computer-adaptive test (CAT) mobility measures in children with cerebral palsy (CP).

Methods

Eighty-two children with CP completed self-report (PROMIS® Mobility Short Form, PROMIS® Mobility CAT, Pediatric Quality of Life Inventory™) and performance-based assessments of mobility (Timed Up and Go, Gross Motor Function Measure). Parents provided three proxy reports of child mobility (Pediatric Outcomes Data Collection Instrument, Functional Assessment Questionnaire, Shriners Hospitals for Children CP-CAT). Validity of PROMIS® instruments was examined through correlations with other measures and “known groups” analyses determined by Gross Motor Function Classification System (GMFCS).

Results

On average, the PROMIS® CAT required less than seven items and 2 minutes to administer. Both PROMIS® measures showed moderate to high correlations with child- and parent-proxy report of child mobility; correlations with performance-based measure were small for the PROMIS® Short Form and non-significant for the PROMIS® CAT. All measures except for the PROMIS® CAT were able to distinguish between GMFCS categories.

Conclusions

Results support the convergent and discriminant validity of the pediatric PROMIS® Mobility Short Form in children with CP. The PROMIS® Mobility CAT correlates well with child report and parent report of mobility but not with performance-based measures and does not differentiate between known mobility groups.

Keywords

Cerebral palsy PROMIS® Mobility Computer-adaptive test Validity 

Copyright information

© Springer Science+Business Media Dordrecht 2013

Authors and Affiliations

  • Anna L. Kratz
    • 1
  • Mary D. Slavin
    • 2
  • M. J. Mulcahey
    • 3
  • Alan M. Jette
    • 2
  • David S. Tulsky
    • 4
  • Stephen M. Haley
    • 2
  1. 1.Department of Physical Medicine and RehabilitationUniversity of MichiganAnn ArborUSA
  2. 2.Health and Disability Research InstituteBoston University School of Public HealthBostonUSA
  3. 3.Jefferson School of Health ProfessionsThomas Jefferson UniversityPhiladelphiaUSA
  4. 4.Department of Physical Medicine and Rehabilitation, The Center for Rehabilitation Outcomes and Assessment ResearchUniversity of MichiganAnn ArborUSA

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