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Quality of Life Research

, Volume 22, Issue 3, pp 531–536 | Cite as

Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey

  • E. Tarakci
  • S. N. Baydogan
  • O. Kasapcopur
  • A. Dirican
Brief Communication

Abstract

Purpose

The aim of this study was to describe the cultural adaptation, validity, and reliability of a Turkish version of the pediatric quality-of-life inventory (PedsQL) 3.0 Arthritis Module in a population with juvenile idiopathic arthritis (JIA).

Methods

A total of 169 patients with JIA and their parents were enrolled in the study. The Turkish version of the childhood health assessment questionnaire (CHAQ) was used to evaluate the validity of related domains in the PedsQL 3.0 Arthritis Module. Both the PedsQL 3.0 Arthritis Module and CHAQ were filled out by children over 8 years of age and by the parents of children 2–7 years of age.

Results

Internal reliability was poor to excellent (Cronbach’s alpha coefficients 0.56–0.84 for self-reporting and 0.63–0.82 for parent reporting), and interobserver reliability varied from good to excellent (intraclass correlation coefficient (ICC) 0.79–0.91 for self-reporting and 0.80–0.88 for parent reporting) for the total scores of the PedsQL 3.0 Arthritis Module. Parent–child concordance for all scores was moderate to excellent (ICC 0.42–0.92). The PedsQL 3.0 Arthritis Module and CHAQ were highly positively correlated, with coefficients from 0.21 to 0.76, indicating concurrent validity.

Conclusions

We demonstrated the reliability and validity of quality-of-life measurement using the Turkish version of the PedsQL 3.0 Arthritis Module in our sociocultural context. The PedsQL 3.0 Arthritis Module can be utilized as a tool for the evaluation of quality of life in patients with JIA aged 2–18 years.

Keywords

Juvenile idiopathic arthritis Health-related quality of life Cultural adaptation Validity Reliability 

Abbreviations

HRQOL

Health-related quality of life

CAC

Cultural adaptation committee

CHAQ

Childhood health assessment questionnaire

ICC

Intraclass correlation coefficient

ILAR

International League of Associations for Rheumatology

JIA

Juvenile idiopathic arthritis

PedsQL

Pediatric quality-of-life inventory

SPSS

Statistical package for social sciences

Notes

Acknowledgments

We would like to thank Dr. J. W. Varni for permission to use the PedsQL 3.0 Arthritis Module. We are also grateful to all the children and their parents who participated in this study.

Conflict of interest

There was no conflict of interest with regard to the work.

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Copyright information

© Springer Science+Business Media B.V. 2012

Authors and Affiliations

  • E. Tarakci
    • 1
    • 5
  • S. N. Baydogan
    • 2
  • O. Kasapcopur
    • 3
  • A. Dirican
    • 4
  1. 1.Division of Physiotherapy and Rehabilitation, Faculty of Health SciencesIstanbul UniversityIstanbulTurkey
  2. 2.Institute of Medical SciencesIstanbul UniversityIstanbulTurkey
  3. 3.Department of Pediatric Rheumatology, Cerrahpasa Medical FacultyIstanbul UniversityIstanbulTurkey
  4. 4.Department of BiostatisticsIstanbul UniversityIstanbulTurkey
  5. 5.İstanbul Tıp Fakültesi Kampüsü Fizik Tedavi ve Rehabilitasyon Yüksek Okuluİstanbul ÜniversitesiFatih, IstanbulTurkey

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