Quality of life in patients with inflammatory bowel disease: translation, validity, reliability and sensitivity to change of the Norwegian version of the Short Health Scale (SHS)
The aims of this study were to investigate the psychometric properties of the Norwegian version of the Short Health Scale (SHS), and to study the impact of socio-demographic and clinical data.
A total of 140 patients without severe disease activity were included. The participants completed the SHS and three other well-validated HRQoL questionnaires Short Form 36, Inflammatory Bowel Disease Questionnaire and the Rating Form of Inflammatory Bowel Disease Patient Concerns at the baseline. Sixty-three participants completed the SHS at a second visit after 6 months in order to calculate test–retest reliability and responsiveness. In addition, socio-demographic and clinical variables were obtained and entered into a linear regression analysis if they were found to be significantly associated with SHS outcome.
Validity was confirmed by good correlation with other similar HRQoL constructs and the ability to discriminate between IBD symptom scores. The reliability was strong (Cronbach’s α 0.85). The test–retest reliability in three out of four SHS items was weak, but the questionnaire demonstrated a good responsiveness. Current IBD symptoms were the most important predictor of SHS outcome.
The Norwegian SHS demonstrated satisfactory psychometrical properties and is suitable for use in the follow-up of IBD patients.
KeywordsInflammatory bowel diseases Psychometrical testing Health-related quality of life Short health scale
- 3.Bernklev, T., Jahnsen, J., Lygren, I., Henriksen, M., Vatn, M., & Moum, B. (2005). Health-related quality of life in patients with inflammatory bowel disease measured with the short form-36: Psychometric assessments and a comparison with general population norms. Inflammatory Bowel Diseases, 11(10), 909–918.PubMedCrossRefGoogle Scholar
- 4.Bernklev, T., Jahnsen, J., Henriksen, M., Lygren, I., Aadland, E., Sauar, J., et al. (2006). Relationship between sick leave, unemployment, disability and health-related quality of life in patients with inflammatory bowel disease. Inflammatory Bowel Diseases, 12(5), 402–412.PubMedCrossRefGoogle Scholar
- 6.Fayers, P. M., & Machin, D. (2007). Quality of life: The assessment, analysis and interpretation of patient-reported outcomes. Chichester: Wiley.Google Scholar
- 11.Bernklev, T., Moum, B., Moum, T., & Inflammatory Bowel South-Eastern Norway (IBSEN) Group of Gastroenterologists. (2002). Quality of life in patients with inflammatory bowel disease: Translation, data quality, scaling assumption, validity, reliability and sensitivity to change of the Norwegian version of IBDQ. Scandinavian Journal of Gastroenterology, 37(10), 1164–1174.PubMedCrossRefGoogle Scholar
- 12.Streiner, D. R., & Norman, G. R. (1995). Devising the items. In D. L. Streiner & G. R. Norman (Eds.), Health measurement scales: A practical guide to their development (pp. 15–27). New York: Oxford University Press.Google Scholar
- 13.Ware, J. E., Gandek, P., Keller, S. D., & IQOLA Group. (1996). Evaluating instruments used cross-nationally: Methods from the IQOLA project. In B. Spilker (Ed.), Quality of life and pharmaeconomics in clinical trials (pp. 681–692). Philadelphia: Lippincott-Raven Press.Google Scholar
- 15.Jelsness-Jørgensen, L. P., Moum, B., & Bernklev, T. (2011). Worries and concerns among inflammatory bowel disease patients followed prospectively over 1 year. Gastroenterology Research and Practice, 2011, 492034.Google Scholar
- 20.Cohen, J. (1988). Statistical power analysis for the behavioural sciences. Mahwah: Lawrence Erlbaum Associate.Google Scholar
- 21.Probst, T. M. (2009). Job insecurity, unemployment, and organizational well-being: Oxymoron or possibility? In S. Cartwright & C. L. Cooper (Eds.), The Oxford handbook of organizational well-being (pp. 398–410). Oxford: Oxford University Press.Google Scholar
- 23.Carmines, E. G., & Zeller, R. A. (1997). Reliability and validity assessment. Beverly Hills: Sage.Google Scholar
- 24.Spector, P. E. (1992). Summated rating scale construction: An introduction. London: Sage.Google Scholar