Skip to main content
Log in

Intergenerational volunteering and quality of life: mixed methods evaluation of a randomized control trial involving persons with mild to moderate dementia

  • Published:
Quality of Life Research Aims and scope Submit manuscript

Abstract

Purpose

This article reports on a mixed methods evaluation of a randomized control trial in Cleveland, Ohio, USA, that assessed whether an intergenerational volunteering intervention could enhance quality of life (QOL) for persons with mild to moderate dementia.

Methods

Fifteen participants were randomized into intervention and control groups. The intervention group participated in hour-long volunteer sessions with a kindergarten class and an older elementary class in alternating weeks over a 5-month interval. Psychometric data on cognitive functioning, stress, depression, sense of purpose, and sense of usefulness were collected at baseline and at the close of the intervention, and change scores were computed and analyzed for all variables. Ethnography was carried out through the duration of the study, and narrative interviews were held with participants and caregivers. A modified grounded theory approach was used for qualitative analysis.

Results

Quantitative analysis demonstrated a significant decrease in stress for the intervention group. Qualitative analysis identified three main pathways through which intergenerational volunteering affected QOL: perceived health benefits, sense of purpose and sense of usefulness, and relationships.

Conclusions

Mixed methods evaluation demonstrated that intergenerational volunteering might enhance quality of life through several key pathways, most significantly reduced stress.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

Abbreviations

JP:

Judson Park

QOL:

Quality of life

RCT:

Randomized control trial

TIS:

The Intergenerational School

References

  1. WHO-QOL. (1993). Measuring quality of life: The development of the World Health Organization Quality of Life Instrument (WHOQOL). Genevea.

  2. Cotrell, V., & Schulz, R. (1993). The perspective of the patient with Alzheimer’s disease: A neglected dimension of dementia research. Gerontologist, 33(2), 205–211.

    Article  PubMed  CAS  Google Scholar 

  3. Brayne, C., et al. (2006). Dementia before death in ageing societies–the promise of prevention and the reality. PLoS Medicine, 3(10), e397.

    Article  PubMed  Google Scholar 

  4. Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing and Society, 12, 269–287.

    Article  PubMed  Google Scholar 

  5. Kitwood, T. M. (1997). Dementia reconsidered: The person comes first. Rethinking ageing series. Buckingham [England]; Philadelphia: Open University Press.

  6. Seymour, D. G., et al. (2008). Quality of life and its correlates in octogenarians. Use of the SEIQoL-DW in Wave 5 of the Aberdeen Birth Cohort 1921 Study (ABC1921). Quality of Life Research, 17(1), 11–20.

    Article  PubMed  Google Scholar 

  7. Trigg, R., Skevington, S. M., & Jones, R. W. (2007). How can we best assess the quality of life of people with dementia? The Bath Assessment of Subjective Quality of Life in Dementia (BASQID). Gerontologist, 47(6), 789–797.

    Article  PubMed  Google Scholar 

  8. Levasseur, M., Desrosiers, J., & St-Cyr Tribble, D. (2008). Subjective quality-of-life predictors for older adults with physical disabilities. American Journal of Physical Medicine and Rehabilitation, 87(10), 830–841.

    Article  PubMed  Google Scholar 

  9. Dragomirecka, E., et al. (2008). Demographic and psychosocial correlates of quality of life in the elderly from a cross-cultural perspective. Clinical Psychology & Psychotherapy, 15(3), 193–204.

    Article  Google Scholar 

  10. Puts, M. T., et al. (2007). What does quality of life mean to older frail and non-frail community-dwelling adults in the Netherlands? Quality of Life Research, 16(2), 263–277.

    Article  PubMed  CAS  Google Scholar 

  11. Whitehouse, P. J., et al. (1997). Quality-of-life assessment in dementia drug development. Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines. Alzheimer Dis Assoc Disord, 11 Suppl 3, 56–60.

    CAS  Google Scholar 

  12. Logsdon, R. G., et al. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510–519.

    PubMed  Google Scholar 

  13. Joyce, C. R. (1995). Use, misuse and abuse of questionnaires on quality of life. Patient Education and Counseling, 26(1–3), 319–323.

    Article  PubMed  CAS  Google Scholar 

  14. Whitehouse, P., & George, D. R. (2008). The myth of Alzheimer’s : What you aren’t being told about today’s most dreaded diagnosis. New York: St. Martin’s Press.

    Google Scholar 

  15. Fossey, J., Lee, L., & Ballard, C. (2002). Dementia Care Mapping as a research tool for measuring quality of life in care settings: Psychometric properties. International Journal of Geriatric Psychiatry, 17(11), 1064–1070.

    Article  PubMed  Google Scholar 

  16. Ballard, C., et al. (2001). Quality of life for people with dementia living in residential and nursing home care: The impact of performance on activities of daily living, behavioral and psychological symptoms, language skills, and psychotropic drugs. International Psychogeriatrics, 13(1), 93–106.

    Article  PubMed  CAS  Google Scholar 

  17. Lawton, M. P. (1997). Assessing quality of life in Alzheimer disease research. Alzheimer Disease and Associated Disorders, 11 Suppl 6, 91–99.

    PubMed  CAS  Google Scholar 

  18. Lenderking, W. R., & Revicki, D. A. (2005). Advancing health outcomes research methods and clinical applications. McLean, VA: International society for quality of life research.

    Google Scholar 

  19. Fayers, P. H., & Hays, R. D. (2005). Assessing quality of life in clinical trials: Methods and practice. Oxford: Oxford University Press.

    Google Scholar 

  20. Moen, P., Dempster-McClain, D., & Williams, R., Jr. (1992). Successful ageing: A life-course perspective on women’s multiple roles and health. The American Journal of Sociology, 97(6), 1612–1638.

    Article  Google Scholar 

  21. Musick, M. A., Herzog, A. R., & House, J. S. (1999). Volunteering and mortality among older adults: Findings from a national sample. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 54B(3), S173–S180.

    Article  Google Scholar 

  22. Oman, D., Thoresen, C. E., & Mcmahon, K. (1999). Volunteerism and mortality among the community-dwelling elderly. Journal of Health Psychology, 4(3), 301–316.

    Article  Google Scholar 

  23. Van Willigen, M. (2000). Differential benefits of volunteering across the life course. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 55(5), S308–S318.

    Article  Google Scholar 

  24. Post, S. ed. (2007). Altruism and health: Perspectives from empirical research, Oxford University Press: Oxford.

  25. Post, S., & Neimark, J. (2007). Why good things happen to good people. New York: Random House.

    Google Scholar 

  26. de Souza, E. M. (2003). Intergenerational interaction in health promotion: A qualitative study in Brazil. Revista de sa˙de p˙blica, 37(4), 463–469.

    Google Scholar 

  27. Fried, L. P., et al. (2004). A social model for health promotion for an aging population: Initial evidence on the Experience Corps model. Journal of Urban Health, 81(1), 64–78.

    PubMed  Google Scholar 

  28. Gigliotti, C., et al. (2005). An intergenerational summer program involving persons with dementia and preschool children. Educational Gerontology, 31(6), 425–441.

    Article  Google Scholar 

  29. Jarrott, S., & Bruno, K. (2007). Shared site intergenerational programs: A case study. Journal of Applied Gerontology, 26(3), 239–257.

    Article  Google Scholar 

  30. Jarrott, S. E., & Bruno, K. (2003). Intergenerational activities involving persons with dementia: an observational assessment. American Journal of Alzheimer’s Disease and Other Dementias, 18(1), 31–37.

    Article  PubMed  Google Scholar 

  31. de Souza, E. M., & Grundy, E. (2007). Intergenerational interaction social capital and health: Results from a randomised controlled trial in Brazil. Social Science and Medicine, 65(7), 1397–1409.

    Article  PubMed  Google Scholar 

  32. Chung, J. C. (2009). An intergenerational reminiscence programme for older adults with early dementia and youth volunteers: Values and challenges. Scandinavian Journal of Caring Sciences, 23(2), 259–264.

    Article  PubMed  Google Scholar 

  33. George, D., & Singer, M. (2010). Intergenerational volunteering and quality of life for persons with mild to moderate dementia: Results from a 5-month intervention study in the United States. American Journal of Geriatric Psychiatry. (In Press).

  34. Strauss, A. L. (1987). Qualitative analysis for social scientists. Cambridge [Cambridgeshire]. New York: Cambridge University Press.

    Book  Google Scholar 

  35. Wykle, M. L., Whitehouse, P. J., & Morris, D. L. (2005). Successful aging through the life span: Intergenerational issues in health. New York: Springer Pub. Co.

    Google Scholar 

  36. Hayes, C. L. (2003). An observational study in developing an intergenerational shared site program: Challenges and insights. Journal of Intergenerational Relationships, 1(1), 113–132.

    Article  Google Scholar 

  37. Mays, N., & Pope, C. (2000). Qualitative research in health care. Assessing quality in qualitative research. BMJ, 320(7226), 50–52.

    Article  PubMed  CAS  Google Scholar 

  38. Corbin, J. M., & Strauss, A. L. (2008). Basics of qualitative research : Techniques, procedures for developing grounded theory. Los Angeles, Calif: Sage Publications, Inc.

    Google Scholar 

  39. Ziebland, S., & McPherson, A. (2006). Making sense of qualitative data analysis: An introduction with illustrations from DIPEx (personal experiences of health and illness). Medical Education, 40(5), 405–414.

    Article  PubMed  Google Scholar 

  40. George, D., & Whitehouse, P. J. (2010). Can intergenerational volunteering enhance quality of life for persons with mild to moderate dementia? Results from a 5-month mixed methods intervention study in the United States. Journal of the American Geriatric Society, 58(4), 796.

    Article  Google Scholar 

  41. Kang, J. E., et al. (2007). Acute stress increases interstitial fluid amyloid-beta via corticotropin-releasing factor and neuronal activity. Proceedings of the National Academy of Sciences of the United States of America, 104(25), 10673–10678.

    Article  PubMed  CAS  Google Scholar 

  42. Wilson, R. S., et al. (2003). Proneness to psychological distress is associated with risk of Alzheimer’s disease. Neurology, 61(11), 1479–1485.

    PubMed  CAS  Google Scholar 

  43. Lupien, S. J., et al. (2005). The douglas hospital longitudinal study of normal and pathological aging: Summary of findings. Journal of Psychiatry & Neuroscience, 30(5), 328–334.

    Google Scholar 

  44. Sapolsky, R. M. (2000). Glucocorticoids and hippocampal atrophy in neuropsychiatric disorders. Archives of General Psychiatry, 57(10), 925–935.

    Article  PubMed  CAS  Google Scholar 

  45. Sabat, S. R. (2003). Some potential benefits of creating research partnerships with people with Alzheimer’s disease. Research, Policy and Planning: The Journal of the Social Services Research Group, 21, 5–12.

  46. Whitehouse, P. (1999). Quality of life in Alzheimer’s disease: Future directions. Journal of Mental Health and Aging, 5(1), 107–111.

    Google Scholar 

  47. Moore, L. A., & Davis, B. (2002). Quilting narrative: Using repetition techniques to help elderly communicators. Geriatric Nursing, 23(5), 262–266.

    Article  PubMed  Google Scholar 

  48. Kontos, P. C., & Naglie, G. (2006). Expressions of personhood in Alzheimer’s: Moving from ethnographic text to performing ethnography. Qualitative Research, 6(3), 301–318.

    Article  Google Scholar 

  49. Kontos, P. C. (2004). Ethnographic reflections on selfhood, embodiment and Alzheimer’s disease. Ageing and Society, 24(6), 829–849.

    Article  Google Scholar 

Download references

Acknowledgments

This research was undertaken as part of the author’s doctoral research in the Institute for Social and Cultural Anthropology at Oxford University, which was supported by the Overseas Research Student fund. Additional funding for fieldwork was provided by the Shigeo & Megumi Takayama Foundation and the Greenwall Foundation through The Intergenerational School, and funding for the writing up of results was provided through a grant from the Fondation Médéric Alzheimer and Alzheimer’s Disease International. A special acknowledgment to Peter Whitehouse and Cathy Whitehouse, co-founders of TIS, as well as Stanley Ulijaszek and Harvey Whitehouse of Oxford University, Lin Bartel of the Judson Park Retirement Community, and Darryl Wilkinson of Columbia University, all of whom provided ongoing support.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Daniel R. George.

Rights and permissions

Reprints and permissions

About this article

Cite this article

George, D.R. Intergenerational volunteering and quality of life: mixed methods evaluation of a randomized control trial involving persons with mild to moderate dementia. Qual Life Res 20, 987–995 (2011). https://doi.org/10.1007/s11136-010-9837-8

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11136-010-9837-8

Keywords

Navigation