Abstract
Purpose
This article reports on a mixed methods evaluation of a randomized control trial in Cleveland, Ohio, USA, that assessed whether an intergenerational volunteering intervention could enhance quality of life (QOL) for persons with mild to moderate dementia.
Methods
Fifteen participants were randomized into intervention and control groups. The intervention group participated in hour-long volunteer sessions with a kindergarten class and an older elementary class in alternating weeks over a 5-month interval. Psychometric data on cognitive functioning, stress, depression, sense of purpose, and sense of usefulness were collected at baseline and at the close of the intervention, and change scores were computed and analyzed for all variables. Ethnography was carried out through the duration of the study, and narrative interviews were held with participants and caregivers. A modified grounded theory approach was used for qualitative analysis.
Results
Quantitative analysis demonstrated a significant decrease in stress for the intervention group. Qualitative analysis identified three main pathways through which intergenerational volunteering affected QOL: perceived health benefits, sense of purpose and sense of usefulness, and relationships.
Conclusions
Mixed methods evaluation demonstrated that intergenerational volunteering might enhance quality of life through several key pathways, most significantly reduced stress.
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Abbreviations
- JP:
-
Judson Park
- QOL:
-
Quality of life
- RCT:
-
Randomized control trial
- TIS:
-
The Intergenerational School
References
WHO-QOL. (1993). Measuring quality of life: The development of the World Health Organization Quality of Life Instrument (WHOQOL). Genevea.
Cotrell, V., & Schulz, R. (1993). The perspective of the patient with Alzheimer’s disease: A neglected dimension of dementia research. Gerontologist, 33(2), 205–211.
Brayne, C., et al. (2006). Dementia before death in ageing societies–the promise of prevention and the reality. PLoS Medicine, 3(10), e397.
Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing and Society, 12, 269–287.
Kitwood, T. M. (1997). Dementia reconsidered: The person comes first. Rethinking ageing series. Buckingham [England]; Philadelphia: Open University Press.
Seymour, D. G., et al. (2008). Quality of life and its correlates in octogenarians. Use of the SEIQoL-DW in Wave 5 of the Aberdeen Birth Cohort 1921 Study (ABC1921). Quality of Life Research, 17(1), 11–20.
Trigg, R., Skevington, S. M., & Jones, R. W. (2007). How can we best assess the quality of life of people with dementia? The Bath Assessment of Subjective Quality of Life in Dementia (BASQID). Gerontologist, 47(6), 789–797.
Levasseur, M., Desrosiers, J., & St-Cyr Tribble, D. (2008). Subjective quality-of-life predictors for older adults with physical disabilities. American Journal of Physical Medicine and Rehabilitation, 87(10), 830–841.
Dragomirecka, E., et al. (2008). Demographic and psychosocial correlates of quality of life in the elderly from a cross-cultural perspective. Clinical Psychology & Psychotherapy, 15(3), 193–204.
Puts, M. T., et al. (2007). What does quality of life mean to older frail and non-frail community-dwelling adults in the Netherlands? Quality of Life Research, 16(2), 263–277.
Whitehouse, P. J., et al. (1997). Quality-of-life assessment in dementia drug development. Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines. Alzheimer Dis Assoc Disord, 11 Suppl 3, 56–60.
Logsdon, R. G., et al. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510–519.
Joyce, C. R. (1995). Use, misuse and abuse of questionnaires on quality of life. Patient Education and Counseling, 26(1–3), 319–323.
Whitehouse, P., & George, D. R. (2008). The myth of Alzheimer’s : What you aren’t being told about today’s most dreaded diagnosis. New York: St. Martin’s Press.
Fossey, J., Lee, L., & Ballard, C. (2002). Dementia Care Mapping as a research tool for measuring quality of life in care settings: Psychometric properties. International Journal of Geriatric Psychiatry, 17(11), 1064–1070.
Ballard, C., et al. (2001). Quality of life for people with dementia living in residential and nursing home care: The impact of performance on activities of daily living, behavioral and psychological symptoms, language skills, and psychotropic drugs. International Psychogeriatrics, 13(1), 93–106.
Lawton, M. P. (1997). Assessing quality of life in Alzheimer disease research. Alzheimer Disease and Associated Disorders, 11 Suppl 6, 91–99.
Lenderking, W. R., & Revicki, D. A. (2005). Advancing health outcomes research methods and clinical applications. McLean, VA: International society for quality of life research.
Fayers, P. H., & Hays, R. D. (2005). Assessing quality of life in clinical trials: Methods and practice. Oxford: Oxford University Press.
Moen, P., Dempster-McClain, D., & Williams, R., Jr. (1992). Successful ageing: A life-course perspective on women’s multiple roles and health. The American Journal of Sociology, 97(6), 1612–1638.
Musick, M. A., Herzog, A. R., & House, J. S. (1999). Volunteering and mortality among older adults: Findings from a national sample. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 54B(3), S173–S180.
Oman, D., Thoresen, C. E., & Mcmahon, K. (1999). Volunteerism and mortality among the community-dwelling elderly. Journal of Health Psychology, 4(3), 301–316.
Van Willigen, M. (2000). Differential benefits of volunteering across the life course. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 55(5), S308–S318.
Post, S. ed. (2007). Altruism and health: Perspectives from empirical research, Oxford University Press: Oxford.
Post, S., & Neimark, J. (2007). Why good things happen to good people. New York: Random House.
de Souza, E. M. (2003). Intergenerational interaction in health promotion: A qualitative study in Brazil. Revista de sa˙de p˙blica, 37(4), 463–469.
Fried, L. P., et al. (2004). A social model for health promotion for an aging population: Initial evidence on the Experience Corps model. Journal of Urban Health, 81(1), 64–78.
Gigliotti, C., et al. (2005). An intergenerational summer program involving persons with dementia and preschool children. Educational Gerontology, 31(6), 425–441.
Jarrott, S., & Bruno, K. (2007). Shared site intergenerational programs: A case study. Journal of Applied Gerontology, 26(3), 239–257.
Jarrott, S. E., & Bruno, K. (2003). Intergenerational activities involving persons with dementia: an observational assessment. American Journal of Alzheimer’s Disease and Other Dementias, 18(1), 31–37.
de Souza, E. M., & Grundy, E. (2007). Intergenerational interaction social capital and health: Results from a randomised controlled trial in Brazil. Social Science and Medicine, 65(7), 1397–1409.
Chung, J. C. (2009). An intergenerational reminiscence programme for older adults with early dementia and youth volunteers: Values and challenges. Scandinavian Journal of Caring Sciences, 23(2), 259–264.
George, D., & Singer, M. (2010). Intergenerational volunteering and quality of life for persons with mild to moderate dementia: Results from a 5-month intervention study in the United States. American Journal of Geriatric Psychiatry. (In Press).
Strauss, A. L. (1987). Qualitative analysis for social scientists. Cambridge [Cambridgeshire]. New York: Cambridge University Press.
Wykle, M. L., Whitehouse, P. J., & Morris, D. L. (2005). Successful aging through the life span: Intergenerational issues in health. New York: Springer Pub. Co.
Hayes, C. L. (2003). An observational study in developing an intergenerational shared site program: Challenges and insights. Journal of Intergenerational Relationships, 1(1), 113–132.
Mays, N., & Pope, C. (2000). Qualitative research in health care. Assessing quality in qualitative research. BMJ, 320(7226), 50–52.
Corbin, J. M., & Strauss, A. L. (2008). Basics of qualitative research : Techniques, procedures for developing grounded theory. Los Angeles, Calif: Sage Publications, Inc.
Ziebland, S., & McPherson, A. (2006). Making sense of qualitative data analysis: An introduction with illustrations from DIPEx (personal experiences of health and illness). Medical Education, 40(5), 405–414.
George, D., & Whitehouse, P. J. (2010). Can intergenerational volunteering enhance quality of life for persons with mild to moderate dementia? Results from a 5-month mixed methods intervention study in the United States. Journal of the American Geriatric Society, 58(4), 796.
Kang, J. E., et al. (2007). Acute stress increases interstitial fluid amyloid-beta via corticotropin-releasing factor and neuronal activity. Proceedings of the National Academy of Sciences of the United States of America, 104(25), 10673–10678.
Wilson, R. S., et al. (2003). Proneness to psychological distress is associated with risk of Alzheimer’s disease. Neurology, 61(11), 1479–1485.
Lupien, S. J., et al. (2005). The douglas hospital longitudinal study of normal and pathological aging: Summary of findings. Journal of Psychiatry & Neuroscience, 30(5), 328–334.
Sapolsky, R. M. (2000). Glucocorticoids and hippocampal atrophy in neuropsychiatric disorders. Archives of General Psychiatry, 57(10), 925–935.
Sabat, S. R. (2003). Some potential benefits of creating research partnerships with people with Alzheimer’s disease. Research, Policy and Planning: The Journal of the Social Services Research Group, 21, 5–12.
Whitehouse, P. (1999). Quality of life in Alzheimer’s disease: Future directions. Journal of Mental Health and Aging, 5(1), 107–111.
Moore, L. A., & Davis, B. (2002). Quilting narrative: Using repetition techniques to help elderly communicators. Geriatric Nursing, 23(5), 262–266.
Kontos, P. C., & Naglie, G. (2006). Expressions of personhood in Alzheimer’s: Moving from ethnographic text to performing ethnography. Qualitative Research, 6(3), 301–318.
Kontos, P. C. (2004). Ethnographic reflections on selfhood, embodiment and Alzheimer’s disease. Ageing and Society, 24(6), 829–849.
Acknowledgments
This research was undertaken as part of the author’s doctoral research in the Institute for Social and Cultural Anthropology at Oxford University, which was supported by the Overseas Research Student fund. Additional funding for fieldwork was provided by the Shigeo & Megumi Takayama Foundation and the Greenwall Foundation through The Intergenerational School, and funding for the writing up of results was provided through a grant from the Fondation Médéric Alzheimer and Alzheimer’s Disease International. A special acknowledgment to Peter Whitehouse and Cathy Whitehouse, co-founders of TIS, as well as Stanley Ulijaszek and Harvey Whitehouse of Oxford University, Lin Bartel of the Judson Park Retirement Community, and Darryl Wilkinson of Columbia University, all of whom provided ongoing support.
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George, D.R. Intergenerational volunteering and quality of life: mixed methods evaluation of a randomized control trial involving persons with mild to moderate dementia. Qual Life Res 20, 987–995 (2011). https://doi.org/10.1007/s11136-010-9837-8
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DOI: https://doi.org/10.1007/s11136-010-9837-8