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Quality of Life Research

, Volume 19, Issue 5, pp 721–727 | Cite as

Measurement of quality of life using EQ-5D in patients on prolonged mechanical ventilation: comparison of patients, family caregivers, and nurses

  • Mei-Chuan Hung
  • Yuan-Horng Yan
  • Po-Sheng Fan
  • Ming-Shian Lin
  • Cheng-Ren Chen
  • Lu-Cheng Kuo
  • Chong-Jen Yu
  • Grace Yao
  • Ching-Lin Hsieh
  • Jung-Der WangEmail author
Article

Abstract

Purpose

This study reports how QOL (quality of life) assessments differ between patients on prolonged mechanical ventilation (PMV) and their proxies (family caregivers and nurses).

Methods

We enrolled consecutive subjects on PMV for more than 21 days from five institutions. We conducted QOL assessments using the Taiwanese version of the EQ-5D in face-to-face interviews. Direct caregivers (family members and nurses) also completed the EQ-5D from the patient’s point of view.

Results

For 55 of the 142 enrolled patients who were able to assess their QOL, we recruited 44 patient–family caregiver pairs, 53 patient–nurse pairs, and 42 family caregiver–nurse pairs. There were 81 family caregiver–nurse pairs out of 87 patients with poor cognition. The agreement between patient–family caregiver pairs was generally higher than that of patient–nurse pairs. As the proportions of exact agreement between family caregivers and nurses for patients with poor cognition were 98–99% for observable dimensions of mobility, self-care, and usual activities, they lead to a minimal difference in the final values.

Conclusions

QOL assessments from family caregivers agreed more closely with patients than did those from nurses using EQ-5D evaluations for patients with clear cognition, but either proxy was acceptable for rating PMV patients with poor cognition.

Keywords

Prolonged mechanical ventilation Proxy Quality of life EQ-5D Utility 

Abbreviations

PMV

Prolonged mechanical ventilation

QO

Quality of life

ICU

Intensive care unit

RCC

Respiratory care center

RCW

Respiratory care ward

IRB

Institutional review board

MMSE

Mini-mental status examination

EQ-5D

EuroQol five-dimensional

ICC

Intra-class correlation coefficient

Notes

Acknowledgments

This work was partially supported by grants from the National Health Research Institute (NHRI, Grant 97A1-HDPP01-014 and 98A1-PHAPHD-014), Chia-Yi Christian Hospital (CYCH, Grant R98-3), and the National Science Council (NSC, Grant 98-2341-B-002-129) in Taiwan. The authors also thank the members of the respiratory care ward of Chia-Yi Hospital, the Department of Health, Executive Yuan, Taiwan; the private Chen Ren-Der Hospital; Yang Ming Hospital (Chia-Yi); and the National Taiwan University Hospital for helping us to recruit study subjects.

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Copyright information

© Springer Science+Business Media B.V. 2010

Authors and Affiliations

  • Mei-Chuan Hung
    • 1
  • Yuan-Horng Yan
    • 2
  • Po-Sheng Fan
    • 2
  • Ming-Shian Lin
    • 2
  • Cheng-Ren Chen
    • 2
  • Lu-Cheng Kuo
    • 3
  • Chong-Jen Yu
    • 3
  • Grace Yao
    • 4
  • Ching-Lin Hsieh
    • 5
  • Jung-Der Wang
    • 1
    • 3
    • 6
    Email author
  1. 1.Institute of Occupational Medicine and Industrial Hygiene, College of Public HealthNational Taiwan UniversityTaipeiTaiwan
  2. 2.Department of Internal MedicineChia-Yi Christian HospitalChiayiTaiwan
  3. 3.Department of Internal MedicineNational Taiwan University HospitalTaipeiTaiwan
  4. 4.Department of PsychologyNational Taiwan UniversityTaipeiTaiwan
  5. 5.Department of Occupational TherapyNational Taiwan UniversityTaipeiTaiwan
  6. 6.Department of Environmental and Occupational MedicineNational Taiwan University HospitalTaipeiTaiwan

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