Quality of Life Research

, Volume 18, Issue 5, pp 531–533 | Cite as

Modification, translation and adaptation of questionnaires should copyright laws be observed?

  • Elizabeth F. Juniper


This commentary is intended to start a discussion about whether people should be allowed to modify, translate, adapt or sell copyrighted questionnaires without the permission of the developer (copyright-holder).


Copyright Modification Questionnaires Translation 


  1. 1.
    Juniper, E. F., Buist, A. S., Cox, F. M., Ferrie, P. J., & King, D. R. (1999). Validation of a standardized version of the asthma quality of life questionnaire. Chest, 115, 1265–1270. doi: 10.1378/chest.115.5.1265.PubMedCrossRefGoogle Scholar
  2. 2.
    Grammatopoulou, E., Skordilis, E., Koutsouki, D., & Baltopoulos, G. (2008). An 18-item standardised asthma quality of life questionnaire—AQLQ(S). Quality of Life Research, 17, 323–332. doi: 10.1007/s11136-007-9297-y.PubMedCrossRefGoogle Scholar
  3. 3.
    Acquadro, C., Conway, K., Giroudet, C., & Mear, I. (2004). Linguistic validation manual for patient-reported outcomes (PRO) instruments. Lyon, France: MAPI Research Institute.Google Scholar
  4. 4.
    Juniper, E. F., Guyatt, G. H., Epstein, R. S., Ferrie, P. J., Jaeschke, R., & Hiller, T. K. (1992). Evaluation of impairment of health-related quality of life in asthma: Development of a questionnaire for use in clinical trials. Thorax, 47, 76–83. doi: 10.1136/thx.47.2.76.PubMedCrossRefGoogle Scholar
  5. 5.
    Juniper, E. F., Guyatt, G. H., Streiner, D. L., & King, D. R. (1997). Clinical impact versus factor analysis for quality of life questionnaire construction. Journal of Clinical Epidemiology, 50, 233–238. doi: 10.1016/S0895-4356(96)00377-0.PubMedCrossRefGoogle Scholar
  6. 6.
    Juniper, E. F., Guyatt, G. H., Cox, F. M., Ferrie, P. J., & King, D. R. (1999). Development and validation of the mini asthma quality of life questionnaire. The European Respiratory Journal, 14, 32–38. doi: 10.1034/j.1399-3003.1999.14a08.x.PubMedCrossRefGoogle Scholar
  7. 7.
    Juniper, E. F., Schatz, M., Juniper, B. A., & Zeiger, R. S. (2008). Evaluation of two interactive voice response telephone versions of health-related quality of life questionnaires. The Journal of Allergy and Clinical Immunology, 122, 654–655. doi: 10.1016/j.jaci.2008.05.003.PubMedCrossRefGoogle Scholar
  8. 8.
    Juniper, E. F., Langlands, J. M., & Juniper, B. A. (2008). Patients may respond differently to paper and electronic versions of the same questionnaires. Respiratory Medicine. doi: 10.1016/j.rmed.2008.10.019 PubMedGoogle Scholar
  9. 9.
    Caro, J. J., Caro, I., Caro, J., Wouters, F., & Juniper, E. F. (2001). Does electronic implementation of questionnaires used in asthma alter responses compared to paper implementation. Quality of Life Research, 10, 683–691. doi: 10.1023/A:1013811109820.PubMedCrossRefGoogle Scholar
  10. 10.
    Juniper, E. F., Riis, B., & Juniper, B. A. (2007). Development and validation of an electronic version of the Rhinoconjunctivitis quality of life questionnaire. Allergy, 62, 1091–1093. doi: 10.1111/j.1398-9995.2007.01370.x.PubMedCrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media B.V. 2009

Authors and Affiliations

  1. 1.Department of Clinical EpidemiologyMcMaster UniversityHamiltonCanada
  2. 2.BoshamUK

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