Quality of Life Research

, Volume 17, Issue 10, pp 1239–1246

Cognitive interviewing in the evaluation of fatigue items: Results from the patient-reported outcomes measurement information system (PROMIS)

  • Christopher Christodoulou
  • Doerte U. Junghaenel
  • Darren A. DeWalt
  • Nan Rothrock
  • Arthur A. Stone
Article

Abstract

Objectives

Cognitive Interviewing (CI) is a technique increasingly used to obtain respondent feedback on potential items during questionnaire development. No standard guidelines exist by which to incorporate CI feedback in deciding to retain, revise, or eliminate potential items. We used CI in developing fatigue items for the National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System (PROMIS) Roadmap initiative. Our aims were to describe the CI process, formally evaluate the utility of decisions made on the basis of CI, and offer suggestions for future research.

Methods

Participants were 22 patients with a diverse range of chronic health conditions. During CI, each participant provided feedback on a series of items. We then reviewed the CI data and decided whether to retain, revise, or eliminate each potential item. Following this, we developed or adopted three quantitative methods to compare retained versus eliminated items.

Results

Retained items raised fewer serious concerns, were less likely to be viewed as non-applicable, and were less likely to display problems with clarity or to make incorrect assumptions about respondents.

Conclusions

CI was useful in developing the PROMIS fatigue items and the methods used to judge CI for the present item set may be useful for future investigations.

Keywords

Cognitive interviewing Outcomes assessment Qualitative methods Quality of life Questionnaire development 

Copyright information

© Springer Science+Business Media B.V. 2008

Authors and Affiliations

  • Christopher Christodoulou
    • 1
  • Doerte U. Junghaenel
    • 2
  • Darren A. DeWalt
    • 3
  • Nan Rothrock
    • 4
  • Arthur A. Stone
    • 2
  1. 1.Department of Neurology, HSC T12-028Stony Brook UniversityStony BrookUSA
  2. 2.Department of Psychiatry and Behavioral Sciences, Applied Behavioral Medicine Research InstituteStony Brook UniversityStony BrookUSA
  3. 3.Division of General Internal MedicineUniversity of North Carolina at Chapel HillChapel HillUSA
  4. 4.Center on Outcomes, Research, and Education (CORE)Evanston Northwestern Healthcare and Northwestern University Feinberg School of MedicineChicagoUSA

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