Quality of Life Research

, 17:895

Parent–child agreement across child health-related quality of life instruments: a review of the literature

Article

Abstract

Aim

To systematically review the literature published since 1999 on paediatric health-related quality of life (HRQL) in relation to parent–child agreement.

Methods

Literature searches used to identify studies which evaluated parent–child agreement for child HRQL measures.

Results

Nineteen studies were identified, including four HRQL instruments. The Pediatric Quality of Life Inventory™ (PedsQL™) was most commonly used. Differences in parent–child agreement were noted between domains for different measures. The impact of child and parent characteristics were not consistently considered; however parents of children in a nonclinical sample tended to report higher child HRQL scores than children themselves, while parents of children with health conditions tended to underestimate child HRQL.

Conclusion

Despite increasing numbers of studies considering children’s HRQL, information about variables contributing to parent–child agreement levels remains limited. Authors need to consistently provide evidence for reliability and validity of measures, and design studies to systematically investigate variables that impact on levels of parent–child agreement.

Keywords

Children Quality of Life Proxy Raters Review 

Abbreviation

HRQL

Health-related quality of life

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Copyright information

© Springer Science+Business Media B.V. 2008

Authors and Affiliations

  1. 1.Department of Psychology and Health SciencesUniversity of WorcesterWorcesterUK
  2. 2.Division of Behavioral MedicineSt Jude Children’s Research HospitalMemphisUSA
  3. 3.Department of PsychologyUniversity of SheffieldSheffieldUK

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