Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life InventoryTM 4.0 Generic Core Scales
- 267 Downloads
The aim of this study was to investigate the psychometric properties of the Greek version of the Pediatric Quality of Life InventoryTM 4.0 (PedsQLTM 4.0) as a population health outcome measure.
After cultural linguistic validation, a cross-sectional study with the participation of 645 children (8–12 years old) and their primary caregivers was conducted in a nation-wide representative school-based sample to evaluate the psychometric properties of the measure.
All PedsQL 4.0 scales showed satisfactory reliability, with Cronbach’s α exceeding 0.70—except in self-reported Physical Functioning (α = 0.65). Test–retest stability intraclass correlation coefficients (ICCs) were above 0.60 in all subscales. No floor effects were detected in either the self-report or parent proxy versions. Ceiling effects ranged from 2.2% (self-report Total Score) to 31.1% (parent-report Social Functioning). Poor to moderate agreement between self report and proxy report was observed, especially for the younger age groups of children. Impact of gender, health status, and family affluence status were detected, as hypothesised from previous bibliography, with girls reporting lower health-related quality of life (HRQOL) than boys on the Emotional Functioning subscale, healthy children scoring significantly higher on all scales than those with chronic illnesses, and lower socioeconomic groups scoring significantly lower than higher socioeconomic groups. Factor analysis showed mainly comparable results with the original version.
Present results support the reliability and validity of the PedsQL 4.0 Greek version. The instrument could be a valuable tool in HRQOL measurement in school health care settings and population-based studies in Greek-speaking children, though it should be stressed that when possible, the child should be considered the first informant of his/her HRQOL.
KeywordsSchool children Greece Health-related quality of life Pediatric Quality of Life InventoryTM 4.0 Validity PedsQL™
The project was co-funded by the European Social Fund & National Resources—EPEAEK II—PYTHAGORAS.
- 2.Reinfjell, T., Diseth, T. H., Veenstra, M., & Vikan, A. (2006). Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL) generic core scales. Health and Quality of Life Outcomes, 14, 4–61.Google Scholar
- 5.von Rueden, U., Gosh, A., Rajmil, L., Bisseger, C., Ravens-Sieberer, U., & the European Kidscreen Group (2006). Socioeconomic determinants of health related quality of life in childhood and adolescents: results from a European Study. Journal of Epidemiology and Community Health, 60, 130–135.CrossRefGoogle Scholar
- 10.Upton, P., Eiser, C., Cheung, I., Hutchings, H. A., Jenney, M., Maddocks, A., Russell, I. T., & Williams, J. G. (2005). Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales. Health and Quality of Life Outcomes, 1(3), 22.CrossRefGoogle Scholar
- 14.Chen, X., Origasa, H., Ichida, F., Kamibeppu, K., & Varni, J. W. (2007). Reliability and validity of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in Japan. Quality of Life Research, 16(7), 1239–1249.Google Scholar
- 15.Felder-Puig, R., Frey, E., Proksch, K., Varni, J. W., Gadner, H., & Topf, R. (2004). Validation of the German version of the Pediatric Quality of Life InventoryTM (PedsQLTM) in childhood cancer patients off treatment and children with epilepsy. Quality of Life Research, 13(1), 223–234.PubMedCrossRefGoogle Scholar
- 17.Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002). The PedsQL™ in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090–2106.PubMedCrossRefGoogle Scholar
- 19.Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL™ in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Type 1 Diabetes Module. Diabetes Care, 26, 631–637.PubMedCrossRefGoogle Scholar
- 20.Varni, J. W., Seid, M., Smith Knight, T., Burwinkle, T., Brown, J., & Szer, I. S. (2002). The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46, 714–725.PubMedCrossRefGoogle Scholar
- 21.National Population Housing Census, March 18 2001, National Statistical Service of Greece; http://www.statistics.gr/.
- 23.The MAPI Linguistic Validation Process provided on the web-side http://www.mapi-research-inst.com/lvprocess.asp.
- 24.Linguistic validation of the PedsQL™ —a Quality of Life Questionnaire Research and Evaluation, Limited Use translation of PedsQL™ retrieved from the website: www.pedsQL.org.Google Scholar
- 25.Gkoltsiou, K., Papaevangelou, V., Konstandopoulos, A. & Varni J.W. (2006). Pilot testing of the Greek Version of the PedsQL 4.0 Instrument. Patient Reported Outcomes Newsletter Number 37-Fall Issue, provided on the web-site http://www.mapi-research.fr/pdf/newsletter/PRON37.PDF.
- 39.Cremeens, J., Eiser, C., & Blades, M. (2006) Factors influencing agreement between child self-report and parent proxy reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health and Quality of Life Outcomes, 30, 4–58.Google Scholar