Quality of Life Research

, Volume 14, Issue 8, pp 1889–1899

The Keele Assessment of Participation: A New Instrument to Measure Participation Restriction in Population Studies. Combined Qualitative and Quantitative Examination of its Psychometric Properties

  • Ross Wilkie
  • George Peat
  • Elaine Thomas
  • Helen Hooper
  • Peter R. Croft


The World Health Organization has proposed participation restriction to reflect the societal consequences of health conditions. Despite its importance, participation restriction appears to be inconsistently represented or absent from the content of many health status instruments. This paper describes the development and testing of a new self-complete measure of participation restriction from the conceptual basis of participation as an individual’s perception of their actual involvement in life situations. The psychometric properties (face, content and construct validity, responder burden, performance and repeatability) of the instrument were examined using qualitative and quantitative methods. Person-perceived participation restriction did not reflect the frequency of participation but was associated with participants’ expectations, aspirations, and needs, as well as contextual factors. We conclude that the instrument can provide estimates of person-perceived participation restriction in population surveys.


ICF Instrument Participation restriction Person-perceived Psychometric properties 


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Copyright information

© Springer 2005

Authors and Affiliations

  • Ross Wilkie
    • 1
  • George Peat
    • 1
  • Elaine Thomas
    • 1
  • Helen Hooper
    • 1
  • Peter R. Croft
    • 1
  1. 1.Primary Care Sciences Research CentreKeele UniversityKeeleUnited Kingdom

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