Quality of Life Research

, Volume 14, Issue 1, pp 231–241 | Cite as

International development of the Parents’ Index of Quality of Life in Atopic Dermatitis (PIQoL-AD)

  • Stephen P. McKenna
  • Diane Whalley
  • Abigail L. Dewar
  • Ruud A. M. Erdman
  • Thomas Kohlmann
  • Mauro Niero
  • Eva Baró
  • Sharon A. Cook
  • Beatrice Crickx
  • Feride Frech
  • Daniel van Assche
Article

Abstract

Objective: The international development of the Parents’ Index of Quality of Life in Atopic Dermatitis (PIQoL-AD), a quality of life (QoL) instrument specific to parents of children with atopic dermatitis (AD) is described. Method: The instrument was developed simultaneously in several countries. Its content was derived from 65 qualitative interviews with parents in the UK, Netherlands and Italy. The measure was then produced for the UK, Netherlands, Italy, Germany, France, US and Spain. Field-test interviews were conducted with approximately 20 patients in each country to assess face and content validity. A two time-point survey was conducted with between 45 and 328 parents in each country to finalise the instrument through application of the Rasch model and to evaluate the psychometric properties of the final instrument. Results: Application of the Rasch model to the survey data identified the final 28-item version. All language versions had good item fit, test–retest reliability (above 0.85), internal consistency and promising validity. Conclusions: The PIQoL-AD is a valuable instrument for inclusion in clinical trials and routine clinical practice. It provides distinct and complementary information to that of existing dermatology-specific measures and has been shown to be responsive to changes in QoL in clinical trials.

Keywords

Atopic dermatitis Eczema PIQoL-AD Quality of life 

Abbreviations

AD

atopic dermatitis

CDLQI

Children’s Dermatology Life Quality Index

DFI

Dermatitis Family Impact Questionnaire

GWBI

General Well-being Index

IDQOL

Infants’ Dermatitis QOL Index

PIQoL-AD

Parents’ Index of Quality of Life in Atopic Dermatitis

PGWB

Psychological General Well-being Schedule

QoL

quality of life

QoLIAD

Quality of Life Index for Atopic Dermatitis

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Copyright information

© Springer 2005

Authors and Affiliations

  • Stephen P. McKenna
    • 1
  • Diane Whalley
    • 1
  • Abigail L. Dewar
    • 1
  • Ruud A. M. Erdman
    • 2
  • Thomas Kohlmann
    • 3
  • Mauro Niero
    • 4
  • Eva Baró
    • 5
  • Sharon A. Cook
    • 1
  • Beatrice Crickx
    • 6
  • Feride Frech
    • 7
  • Daniel van Assche
    • 8
  1. 1.Galen ResearchManchesterUK
  2. 2.Department of Psychology and PsychotherapyErasmus Medical CenterThe Netherlands
  3. 3.University of GreifswaldGermany
  4. 4.University of VeronaItaly
  5. 5.3D Health ResearchBarcelonaSpain
  6. 6.CHU Bichat-AP-HP and UniversityParisFrance
  7. 7.Novartis Pharmaceuticals CorporationUS
  8. 8.Novartis Pharma AGBaselSwitzerland

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