Quality of Life Research

, Volume 14, Issue 2, pp 415–423

Self-perceived quality of life of children and adolescents with physical disabilities in Hong Kong

  • Susanna M. K. Chow
  • Sing Kai Lo
  • Robert A. Cummins
Article

Abstract

Although illnesses and diseases are thought to adversely affect quality of life (QoL), whether children who have physical disabilities (PD) from a young age adapt to the effect of developmental disabilities has rarely been investigated. This study attempted to assess the subjective wellbeing, and examine the correlation between objective and subjective QoL, of children with PD. Using a self-reported non-disease-specific questionnaire, the QoL of 72 young persons (13.5 ± 2.0 years) with PD was contrasted with those who do not have disabilities (n=510; age-matched). MANOVA analyses revealed that the PD group had lower objective QoL score (63.0 ± 7.4 vs. 66.8 ± 5.7, p > 0.001) but the two groups were not significantly different in subjective QoL score (70.9 ± 11.4 vs. 69.6 ± 13.6, p=0.466). No correlation was found between objective and subjective QoL in the PD group (r ranged from 0.06 to 0.19), while weak to medium correlations (r ranged from 0.03 to 0.41) were observed for the controls. The apparent detachment of subjective feeling and objective circumstances in the PD group may reflect adjustment to developmental disabilities.

Keywords

Children Objective quality of life Physical disability Subjective quality of life 

Abbreviations

ComQoL

Comprehensive Quality of Life Scale

PD

physical disability

%SM

percent of scale maximum

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References

  1. Allen, MC 2000Developmental outcome of neonatal intensive care: What questions are we asking?Current Opinion Pediatr12116122Google Scholar
  2. McLaughlin JF, Bjornson KF. Quality of life and developmental disabilities. Dev Med Child Neurol 1998; 40: 435 (Editorial).Google Scholar
  3. Ronen, GM, Rosenbaum, MP, Streiner, DL 2000Outcome measures in pediatric neurology: Why do we need them?J Child Neurol15275280Google Scholar
  4. Msall, ME, Tremont, MR 2000Functional outcomes in self-care, mobility, communication, and learning in extremely low-birth weight infants.Clin Perinatal27381401Google Scholar
  5. Skowronska-Gardas, A 1999Radiotherapy of central nervous system tumors in young children: Benefits and pitfalls.Med Pediatr Oncol33572576Google Scholar
  6. Palley, HA, Van Hollen, V 2000Long-term care for people with developmental disabilities: A critical analysis.Health Soc Work25181189Google Scholar
  7. Tawfik, R, Dickson, A, Clarke, M, Thomas, AG 1997Caregivers’ perceptions following gastrostomy in severely disabled children with feeding problems.Dev Med Child Neurol39746751Google Scholar
  8. Landgraf, JM 2002Quality-of-life measures in chronic diseases in childhood (Book review).Qual Life Res11609611Google Scholar
  9. Eiser, C, Morse, R 2001A review of measures of quality of life for children with chronic illness.Arch Dis Child84205211Google Scholar
  10. Felce, D 1997Defining and applying the concept of quality of life.J Intell Disabil Res41126135Google Scholar
  11. Connolly, MA, Johnson, JA 1999Measuring quality of life in paediatric patients.Pharmacoeconomics16605625Google Scholar
  12. Harding, L 2001Children’s quality of life assessment: A review of generic and health related quality of life measures completed by children and adolescents.Clin Psychol Psychother87996Google Scholar
  13. Cummins, RA 1995On the trail of the gold standard for life satisfaction.Soc Indic Res35179200Google Scholar
  14. Eiser, C, Morse, R 2001Can parents rate their child’s health-related quality of life?Results of a systemic review. Qual Life Res10347357Google Scholar
  15. Midgley, DE, Bradlee, TA, Donohoe, C, Kent, KP, Alonso, EM 2000Health-related quality of life in long-term survivors of pediatric liver transplantation.Liver Transplant6333339Google Scholar
  16. Gate, IMP, Kennedy, C, Stevenson, J 2002Disability and quality of life in spina bifida and hydrocephalus.Dev Med Child Neurol44317322Google Scholar
  17. Cummins, RA 1998The second approximation to an international standard of life satisfaction.Soc Indic Res43308334Google Scholar
  18. Cummins, RA, Nistico, H 2002Maintaining life satisfaction: The role of positive cognitive bias.J Happiness Stud33769Google Scholar
  19. Cummins RA, Gullone E, Lau ALD. A model of subjective well being homeostasis: The role of personality. In: Gullone E & Cummins RA (eds), The Universality of Subjective Wellbeing Indicators 2002. Soc Ind Res Series, 2000; 7–46.Google Scholar
  20. Hanestad, BR, Albrektsen, G 1992The stability of quality of life experience in people with Type 1 diabetes over a period of a year.J Adv Nurs17777784Google Scholar
  21. Headey, B, Wearing, A 1989Personality, life events, and subjective well-being: Toward a dynamic equilibrium model.J Pers Soc Psychol57731739Google Scholar
  22. Suh, E, Diener, E 1996Events and subjective well-being: Only recent events matter.J Pers Soc Psychol7010911102Google Scholar
  23. Cummins RA, Eckersley R, Lo SK, Okerstrom E, Hunter B, Davern M. Australian Unity Wellbeing Index: Report 9.0 The Wellbeing of Australians’ Melbourne: Australian Centre on Quality of Lite, School of Psychology, Deakin University 2004, ISBN 0 7300 IS 2609 4. http://acqol.deakin.edu.au/index_wellbeing/indexhtm.Google Scholar
  24. Cummins RA. Comprehensive Quality of Life Scale – Student (Grade 712): ComQoL-S5. 5th ed. Melbourne: School of Psychology, Deakin University, 1997. Google Scholar
  25. Rehabilitation Division. Rehabilitation programme plan. Hong Kong: Government Secretariat, 1999. Google Scholar
  26. Varni, JW, Seid, M, Rode, CA 1999The PedsQL: Measurement model for the peditatric quality of life inventory.Med Care37126139Google Scholar
  27. Cummins RA. The Comprehensive Quality of Life Scale: Development and evaluation. Proceedings. Health Outcomes and Quality of Life Measurement Conference. Australian Institute of Health Welfare 1995; 18–24 (reprinted in Health Outcomes Bulletin 7: 7–14).Google Scholar
  28. Cummins, RA 1996The domains of life satisfaction: An attempt to order chaos.Soc Indic Res38303332Google Scholar
  29. Schwartz, L, Engel, JM, Jensen, MP 1999Pain in persons with cerebral palsy.Archi Phys Med Rehab8012431246Google Scholar
  30. Sullivan, PB 1997Gastrointestinal problems in neurologically impaired child.Baillieres Clin Gastroenterol11529546Google Scholar
  31. Norrby, U, Carlsson, J, Beckung, E, Nordholm, L 1999Self-assessment of wellbeing in a group of children with epilepsy.Seizure8228234Google Scholar
  32. Brickman, P, Coates, D, Janoff-Bulman, R 1978Lottery winners and accident victims: Is happiness relative?J Pers Soc Psychol36917927Google Scholar
  33. Bowling, A, Farquhar, M, Grundy, E 1994Associations with changes in level of functional ability. Results from a follow-up survey at two and a half years of people aged 85 years; and over at baseline interview.Ageing Soc145373Google Scholar
  34. Rigby K, McCarron L, Rigby J. Quality of Life in a Nursing Home: A Report on the Perceptions of Residents and Staff at Julia Farr Centre. Adelaide: South Australian Institute of Technology, 1990. Google Scholar
  35. Franz, M, Meyer, T, Reber, T, Gallhofer, B 2000The importance of social comparisons for high levels of subjective quality of life in chronic schizophrenic patients.Qual Life Res9481489Google Scholar

Copyright information

© Springer 2005

Authors and Affiliations

  • Susanna M. K. Chow
    • 1
  • Sing Kai Lo
    • 2
  • Robert A. Cummins
    • 3
  1. 1.Department of Rehabilitation SciencesThe Hong Kong Polytechnic UniversityHong KongChina
  2. 2.The George Institute for International HealthUniversity of SydneyAustralia
  3. 3.School of PsychologyDeakin UniversityAustralia

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