Psychiatric Quarterly

, Volume 86, Issue 1, pp 83–94 | Cite as

Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis: A Qualitative Study Within the TOP Project

  • Jens Einar Jansen
  • Peter Michael Wøldike
  • Ulrik Helt Haahr
  • Erik Simonsen
Original Paper

Abstract

Delays in initiating treatment are associated with poor clinical and functional outcomes, yet there remains unclarity as to what facilitates and what acts as barriers to accessing appropriate support for first-episode psychosis. To explore this we examined service users’ views of their illness trajectory and help-seeking behavior. To describe service-users' experiences with and understanding of their illness and pathway to care, including their need for treatment, the role of their relatives and experience with the treatment service. In-depth interviews were conducted with eleven randomly selected service users (median age 20, range 15–24, 6 males, 5 females) diagnosed with a first-episode psychosis and currently enrolled in treatment for this disorder. Fear of stigma, lack of knowledge about mental illness and normalisation of symptoms were barriers to accessing appropriate treatment, while support from significant others and information accessed by internet were reported as important elements in seeking appropriate treatment. The findings regarding barriers to treatment are in accordance with themes found in earlier studies and serve to validate these. Our study highlights the need to include psychological factors such as normalisation of symptoms and fear of stigma when attempting to reduce DUP in early psychosis, in addition to initiatives to reduce service delays. Also, a greater use of the potentials inherent in Internet and social media platforms seems important in this regard.

Keywords

Pathways to care FEP Early intervention Psychosis Qualitative 

Notes

Acknowledgments

This study was funded by a grant from the Lundbeck Foundation. We thank all the service users who participated in this study, and the staff at Opus for their involvement in recruitment.

Conflict of interest

None.

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Copyright information

© Springer Science+Business Media New York 2014

Authors and Affiliations

  • Jens Einar Jansen
    • 1
    • 2
  • Peter Michael Wøldike
    • 1
    • 5
  • Ulrik Helt Haahr
    • 2
    • 3
  • Erik Simonsen
    • 1
    • 3
    • 4
  1. 1.Psychiatric Research UnitPsychiatry Region ZealandRoskildeDenmark
  2. 2.Early Psychosis Intervention CenterPsychiatry East, Region ZealandRoskildeDenmark
  3. 3.Faculty of Health and Medical SciencesUniversity of CopenhagenCopenhagenDenmark
  4. 4.Institute of Clinical MedicineUniversity of CopenhagenCopenhagenDenmark
  5. 5.Institute of Psychology and Lifelong LearningRoskilde UniversityRoskildeDenmark

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