Theoretical Medicine and Bioethics

, Volume 25, Issue 5–6, pp 387–398 | Cite as

Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy

  • Ludvig Beckman


Should a growing market for genetic self-tests be welcomed or feared? From the point of view of personal autonomy the increasing availability of predictive health information seems promising. Yet it is frequently pointed out that genetic information about future health may cause anxiety, distress and even loss of “life-hopes.” In this article the argument that genetic self-tests undermine personal autonomy is assessed and criticized. I contend that opportunities for autonomous choice are not reduced by genetic information but by misperceptions and misunderstandings of the results of genetic tests. Since the interpretation of genetic information is sometimes distorted by the information provided about the genetic products, more attention should be given to deceitful marketing that overblows the utility of genetic products. Yet personal autonomy is reduced neither by genetic tests nor by genetic information and there is consequently no compelling case for the conclusion that genetic self-tests should be prohibited.


commercialization of genetic services genetic information genetic testing personal autonomy self-control self-realization 


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  1. Andrews, Lori 2001Future Perfect: Confronting Decisions About Genetics.Columbia University PressNew YorkGoogle Scholar
  2. Bonadona, V.,  et al. 2002“Cancer Patients Who Experienced Diagnostic Genetic Testing for Cancer Susceptibility: Reactions and Behavior After the Disclosure of a Positive Test Result”Cancer Epidemiology Biomarkers and Prevention1197104Google Scholar
  3. Carson, Thomas,  et al. 1985“An Ethical Analysis of Deception in Advertising”Journal of Business Ethics493104Google Scholar
  4. Caulfield, Tim et al. “Providing Genetic Testing Through the Private Sector: A View from Canada”. Isuma (2002): 72–81.Google Scholar
  5. Chandros, Sara, Kiran Prasad,  2001“Reading Between the Lines: Direct-to-consumer Advertising of Genetic Testing”Hastings Center Report94448Google Scholar
  6. Childress, James. “The Place of Autonomy in Bioethics”. Hastings Center Report, Jan/Feb (1990): 12–17.Google Scholar
  7. Christman, John 1994The Myth of Property.Oxford University PressNew YorkGoogle Scholar
  8. Gevers, Sjef 1999“The Role of Law with Respect to Self-testing”European Journal of Health Law6155164Google Scholar
  9. Gollust, Sarah,  et al. 2002“Limitations of Direct-to-consumer Advertising for Clinical Genetic Testing”The Journal of the American Medical Association28817621767Google Scholar
  10. Gollust, Sarah,  et al. 2003“Direct-to-consumer Sales of Genetic Services on the Internet”Genetics in Medicine5332337Google Scholar
  11. Hildt, Elisabeth 1999“Influences of Genetic Testing on a Person’s Freedom”Thompson, AlisonChadwick , Ruth eds. Genetic Information: Acquisition: Access and Control.Kluwer and Plenum PublishersNew York and Dordrecht235241Google Scholar
  12. Hildt, Elisabeth 2002“Autonomy and Freedom of Choice in Prenatal Genetic Diagnosis”Medicine, Health Care and Philosophy56571Google Scholar
  13. Hoedemaekers, Rogeer, Henk ten Have,  1998“Commercialization of Genetic Services”Medicine Healthcare and Philosophy1217224Google Scholar
  14. Holtzman, NeilWatson, Michael S. eds. 1997Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing.National Institutes of HealthBethesda, MDGoogle Scholar
  15. Hull, Sara Chandros, Kiran Prasad,  2001“Reading Between the Lines: Direct-to-consumer Advertising of Genetic Testing”Hastings Center Report94448Google Scholar
  16. The Human Genetics Commission2003Genes Direct: Ensuring the Effective Oversight of Genetic Tests Supplies Directly to the Public.Department of HealthLondonGoogle Scholar
  17. Husted, Jörgen.,  et al. 1997“Autonomy and a Right Not to Know”Chadwick, Ruth eds. The Right to Know and the Right Not to KnowAshgateAldershot5568Google Scholar
  18. Häyry, Matti 2001Playing God: Essays on Bioethics.Helsinki University PressHelsinkiGoogle Scholar
  19. Bris, Sonia 2001“Give Me Your DNA, and I’ll Tell You Who You Are... Or Who You’ll Become–Questions Surrounding the Use of Genetic Information in Europe”Isuma290101Google Scholar
  20. Levitt, Mairi 2001“Let the Consumer Decide? The Regulation of Commercial Genetic Testing”Journal of Medical Ethics27398403Google Scholar
  21. O’Neill, Onora 2002Autonomy and Trust in Bioethics.Cambridge University PressCambridgeGoogle Scholar
  22. Raz, Joseph 1986The Morality of Freedom.Clarendon PressOxfordGoogle Scholar
  23. Senior, V.,  et al. 1999“Will Genetic Testing for Predisposition of Disease Result in Fatalism?”Social Science and Medicine4818571860Google Scholar

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© Kluwer Academic Publishers 2004

Authors and Affiliations

  • Ludvig Beckman

There are no affiliations available

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