Listening to Bedouin Mothers of Children with Autism
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This article examines how Bedouin mothers in Israel describe, perceive, and interpret their experiences raising a child with autism. Data were collected using semi-structured ethnographic interviews with 18 Bedouin mothers of children with autism, aged 6–16, living in recognized and unrecognized settlements in the Negev. Analysis of the study findings shows how the subaltern status of Bedouin women, which includes their husbands’ constant threats of divorce or taking a second wife, makes it difficult for them to be mobile and interact in the public sphere without the presence of a man and creates an experience unique to these mothers, which we call “Exclusion within Exclusion”. The Bedouin mothers report not only stigmatization, a lack of social support and loneliness but also structural–cultural characteristics that prevent them from obtaining information and participating in decision-making about the child with autism and that restrict their agency in dealing with and coping with their child’s autism. In light of this situation, the discussion highlights the unique connection between local cultural scripts and the phenomenology of autism.
KeywordsBedouin Mothers Autism Listening
Compliance with Ethical Standards
Conflict of interest
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Research involving human participants and informed consent was obtained from all individual participants included in the study.
- Abu Ajaj, O. 2017 Aspects of Coping Among Fathers of Adolescents Children with Autism in the Bedouin Community of the Negev. Master’s Thesis, University of Haifa, Haifa.Google Scholar
- Abudabbeh, N. 1996 Arab families. In M. McGoldrick, J. Giordano, & J. K. Pearce (Eds.), Ethnicity and Family Therapy (pp. 333–346). New York: Guilford.Google Scholar
- Al-Krenawi, A. & Graham, J.R. 2001 Polygamous family structure and its interaction with gender. Effect children’s on academic achievements? Implication for culturally diverse social work practice in schools. School Social Work Journal, 25(3), 1-16.Google Scholar
- Al-Odaib, A. N., Abu-Amero, K. K., Ozand, P. T., & Al-Hellani, A. M. 2003 A new era for preventive genetic programs in the Arabian Peninsula. Saudi Medical Journal, 24(11), 1168–1175.Google Scholar
- Berg, B. 2004. Qualitative Research Methods for the Social Sciences. Boston, MA: Pearson Education.Google Scholar
- Bourdieu, P. 2000. Pascalian Meditations. Stanford: Stanford University PressGoogle Scholar
- Creswell, J. 2007 Qualitative inquiry and research design: Choosing among five approaches. Thousand Oaks, CA: Sage Publishing House.Google Scholar
- Monthly Bulletin of Statistics 2017 Central Bureau of Statistics, Population. State of Israel.Google Scholar
- Peters, J.S. 2009 Review of Marginalization of People with Disabilities in Leabanon, Syria and Jordan. Background Paper Prepared for the Education for all Global Monitoring Report 2010. UNESCO. www.unesco.org/new/fileadmin/MULTIMEDIA/FIELD/Beirut/pdf
- Sabirski, S., A. Aconor-Attias 2006 A Social Snapshot. Tel Aviv: Adva Center.Google Scholar
- Spradley. P.J. 1979 The Ethnographic Interview. London: Holt Rinehart and Winston.Google Scholar