Maternal and Child Health Journal

, Volume 9, Issue 2, pp 207–218 | Cite as

Financial Burden for Families of Children with Special Health Care Needs

  • Karen Kuhlthau
  • Kristen Smith Hill
  • Recai Yucel
  • James M Perrin


Objectives: We describe family finance-related burden experienced by families with children with special health care needs (CSHCN). The paper further seeks to describe correlates of family financial burden. Methods: We examined correlates of family finance-related burden using multivariate methods and the National Survey of CSHCN, a nationally representative cross-sectional survey of CSHCN. We also examined state-level correlations. Results: Fully 40% of families with CSHCN, or 3,746,000 families nation-wide, experience financial burden related to their child’s condition. Experiencing a finance-related problem is negatively associated with Maternal and Child Health Bureau (MCHB) indicators and positively associated with poor-child health status. States that better meet MCHB indicators generally have lower levels of family finance-related problems. Conclusions: Families with CSHCN have high levels of finance-related family problems. Development of appropriate systems of care appears to offer a mechanism for alleviating the financial burdens of these families.


disability special health care need child pediatric family financial. 


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Copyright information

© Springer Science + Business Media, Inc. 2005

Authors and Affiliations

  • Karen Kuhlthau
    • 1
    • 2
  • Kristen Smith Hill
    • 1
  • Recai Yucel
    • 1
  • James M Perrin
    • 1
  1. 1.Center for Child and Adolescent Health PolicyMassachusetts General HospitalBoston
  2. 2.Center for Child and Adolescent Health PolicyMassachusetts General HospitalBoston

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