Financial Burden for Families of Children with Special Health Care Needs
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Objectives: We describe family finance-related burden experienced by families with children with special health care needs (CSHCN). The paper further seeks to describe correlates of family financial burden. Methods: We examined correlates of family finance-related burden using multivariate methods and the National Survey of CSHCN, a nationally representative cross-sectional survey of CSHCN. We also examined state-level correlations. Results: Fully 40% of families with CSHCN, or 3,746,000 families nation-wide, experience financial burden related to their child’s condition. Experiencing a finance-related problem is negatively associated with Maternal and Child Health Bureau (MCHB) indicators and positively associated with poor-child health status. States that better meet MCHB indicators generally have lower levels of family finance-related problems. Conclusions: Families with CSHCN have high levels of finance-related family problems. Development of appropriate systems of care appears to offer a mechanism for alleviating the financial burdens of these families.
KEY WORDSdisability special health care need child pediatric family financial.
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- 1.Newacheck PW, Budetti PP, Halfon N. Trends in activity-limiting chronic conditions among children. AJPH 1986;76:178–84.Google Scholar
- 2.Newacheck PW, Budetti PP, McManus P. Trends in childhood disability. AJPH 1984;74:232–6.Google Scholar
- 3.Perrin JM, Shayne MW, Bloom SR. Home and community care for chronically Ill children. New York: Oxford University Press, 1993.Google Scholar
- 4.Medicaid source book: Background data and analysis (A 1993 update). Washington: U.S. Government Printing Office, 1993.Google Scholar
- 6.Hirst M. Young adults with disabilities: Health, employment and financial costs for family. Child care health and development 1985;11:291–307.Google Scholar
- 10.Breslau, N, Staruch, KS, Mortimer Jr, EA. Psychological distress in mother of disabled children. Archives of Pediatrics 1982;136(8).Google Scholar
- 12.Silver EJ, Westbrook LE, Stein, RE. Relationship of parental psychological distress to consequences of chronic health conditions in children. J Pediatrc Psychol 1998;23(1):5–15.Google Scholar
- 13.Dyson LL. Response to the presence of a child with disabilities: Parental stress and family functioning over time. Am J Mental Retard 1993;98(2):207–18.Google Scholar
- 17.Curran AL, et al. Time costs of caring for children with severe disabilities compared with caring for children without disabilities. Dev Med Child Neuro 2001;43:529–33.Google Scholar
- 20.The Health Care Experiences of Families of Children with Special Health Care Needs: Summary Report of Findings from a National Survey http://www.familyvoices.org/YourVoiceCounts/sum-rep-find.html accessed 3/15/04.
- 22.U.S. Department of Health and Human Services. Healthy People 2010: Understanding and Improving Health, 2nd edn. Washington DC: U.S. Government Printing Office, November 2000.Google Scholar
- 23.Achieving and measuring success: A national agenda for children with special health care needs. http://mchb.hrsa.gov/programs/specialneeds/measuresuccess.htm accessed 3/17/04.
- 26.Blumberg SJ, et al. Design and operation of the National survey of children with special health care needs., 2001 National Center for Health Statistics. Vital Health Stat 2004;1(41).Google Scholar
- 27.“GCT-P14. Income and poverty in 1999: 2000. Census 2000 summary File 3 (SF 3) Sample Data. United States—State; and Puerto Rico.” Ame FactFinder 2000. Bureau of the Census. Retrieved January 15, 2004. http://factfinder.census.gov.
- 28.Progress Toward implementing community-based systems of services for CSHCN: Summary tables from the national survey of children with special health care needs, 2001 DHHS April 28 2003 http://www.cdc.gov/nchs/data/slaits/CSHCN%20Progress%20Tables1.pdf accessed March 17, 2004.
- 29.SUDAAN software for the statistical analysis of correlated data. [computer program]. Version 8.0.1. Research Triangle Park, NC; Research Triangle Institute;2001.Google Scholar
- 30.Schafer JL. Analysis of incomplete multivariate data, London, UK: Chapman & Hall 1997.Google Scholar
- 31.Rubin DB. Multiple imputation after 18+ years. J Ame Stat Associ, 1996;91:473—89.Google Scholar
- 32.Yucel RM, Schafer JL. Computational strategies for multivariate linear mixed-effects models with missing values, 2002;11:437–57.Google Scholar
- 33.U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The national survey of children with special health care needs chartbook 2001. Rockville, Maryland: US Department of Health and Human Services, 2004.Google Scholar