Journal of Medical Systems

, 37:9921

Design of a Personal Health Record and Health Knowledge Sharing System Using IHE-XDS and OWL

  • Li-Hui Lee
  • Yi-Ting Chou
  • Ean-Wen Huang
  • Der-Ming Liou
Original Paper

DOI: 10.1007/s10916-012-9921-4

Cite this article as:
Lee, LH., Chou, YT., Huang, EW. et al. J Med Syst (2013) 37: 9921. doi:10.1007/s10916-012-9921-4

Abstract

Personal Health Record systems (PHRs) provide opportunities for patients to access their own PHR. However, PHRs are teeming with medical terminologies, such as disease and symptom names, etc. Patients need readily understandable and useful health knowledge in addition to their records in order to enhance their self-care ability. This study describes a Personal Health Record and Health Knowledge Sharing System (PHR&HKS) whereby users not only can maintain and import their PHR, but also can collate useful health Web resources that are related to their personal diseases. Furthermore, they can share the collated Web resources with any user with the same diseases and vice versa. To fulfill these objectives, IHE Cross-Enterprise Document Sharing (XDS) architecture was adopted to share and integrate the PHR. A registry ontology, consisting of part of the XDS document metadata attributes, the ICD-9-CM code, and part of the Dublin Core Metadata Element Set (DCMES), was created to enhance the health knowledge collating and sharing functions. The system was then tested and evaluated by 30 users. Among these individuals, 24 (81 %) held positive views on the ease of use and usefulness of the system while the remainder, who held either neutral (14 %) or negative (5 %) attitudes, were identified as individuals who were somewhat unwilling to maintain any PHR or share any information with others.

Keywords

Clinical Document Architecture (CDA) Cross-Enterprise Document Sharing (XDS) Personal Health Record (PHR) ebXML Registry Repository (ebRIM) Web Ontology Language (OWL) 

Copyright information

© Springer Science+Business Media New York 2013

Authors and Affiliations

  • Li-Hui Lee
    • 1
  • Yi-Ting Chou
    • 2
  • Ean-Wen Huang
    • 3
  • Der-Ming Liou
    • 2
  1. 1.Institute of Public HealthNational Yang-Ming UniversityTaipei CityRepublic of China
  2. 2.Institute of Biomedical InformaticsNational Yang-Ming UniversityTaipei CityRepublic of China
  3. 3.Department of Information ManagementNational Taipei University of Nursing and Health SciencesTaipei CityRepublic of China

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