Journal of Immigrant and Minority Health

, Volume 19, Issue 1, pp 80–90 | Cite as

The Catalonian Expert Patient Programme for Chagas Disease: An Approach to Comprehensive Care Involving Affected Individuals

  • Isabel Claveria GuiuEmail author
  • Johanna Caro Mendivelso
  • Hakima Ouaarab Essadek
  • Maria Asunción González Mestre
  • Pedro Albajar-Viñas
  • Jordi Gómez i Prat
Original Paper


The Catalonian Expert Patient Programme on Chagas disease is a initiative, which is part of the Chronic Disease Programme. It aims to boost responsibility of patients for their own health and to promote self-care. The programme is based on nine sessions conducted by an expert patient. Evaluation was focusing in: habits and lifestyle/self-care, knowledge of disease, perception of health, self-esteem, participant satisfaction, and compliance with medical follow-up visits. Eighteen participants initiated the programme and 15 completed it. The participants were Bolivians. The 66.7 % of them had been diagnosed with chagas disease in Spain. The 100 % mentioned that they would participate in this activity again and would recommend it to family and friends. The knowledge about disease improve after sessions. The method used in the programme could serve as a key strategy in the field of comprehensive care for individuals with this disease.


Expert patient Chagas disease Comprehensive care Chronic disease 



We would like to thank the Catalonian Institute of Health for entrusting us with the challenge of implementing the first Catalonian Expert Patient Programme® on a neglected tropical disease like Chagas disease. We would also like to thank the World Health Organization Department of control of Neglected Tropical Diseases for supporting our initiative, and all the individuals affected by the disease for sharing and exchanging their knowledge with us. Estefa Choque collaborated in the adaptations of the language of the guidelines, support of the expert patient and observation in the groups.


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Copyright information

© Springer Science+Business Media New York 2016

Authors and Affiliations

  • Isabel Claveria Guiu
    • 1
    Email author
  • Johanna Caro Mendivelso
    • 2
  • Hakima Ouaarab Essadek
    • 1
  • Maria Asunción González Mestre
    • 3
    • 5
  • Pedro Albajar-Viñas
    • 4
    • 6
  • Jordi Gómez i Prat
    • 1
  1. 1.Drassanes-Vall d’Hebron International Health UnitInternational Health Programme of the Catalonian Institute of Health (PROSICS)BarcelonaSpain
  2. 2.Preventative Medicine Service, Vall d’Hebron Hospital (2014)IDIAP Jordi GolBarcelonaSpain
  3. 3.Chronic Disease Prevention and Care Programme, Department of HealthGovernment of CataloniaBarcelonaSpain
  4. 4.Chagas Disease Control Programme, Control of Neglected Tropical Diseases DepartmentWorld Health OrganizationGenevaSwitzerland
  5. 5.Cap de Programa Pacient Expert Catalunya, Programa de prevenció i atenció a la cronicitat, Direcció General de Planificació i Recerca en SalutDepartament de SalutBarcelonaSpain
  6. 6.WHO/HTM/NTD/IDM/Chagas disease, World Health Organization/Organisation mondiale de la Santé, HIV/AIDS, Tuberculosis, Malaria and Neglected Diseases, Control of Neglected Tropical DiseasesInnovative and Intensified Disease ManagementGenève 27Switzerland

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