Abstract
Alzheimer’s disease (AD) is the fourth leading cause of death in Puerto Rico. Using multi-media resources and in-person education may be an effective approach to improve knowledge and awareness of AD. The Un Café por el Alzheimer program in Puerto Rico incorporates an education component at coffee shops and a social media campaign using Facebook. The current study evaluates this initiative through an analysis of pre/post education survey results and social media content and use. Surveys contained close-ended and open-ended questions to understand participants’ perceptions and knowledge about AD. Post-education surveys also included questions related to program satisfaction. Social media analysis of the Facebook community page examined posts from March 1 to September 30, 2015. Descriptive statistics were used to analyze survey and Facebook data. Four education sessions were conducted with a total of 212 participants. Fifty-one of the participants completed both pre- and post-surveys. Following the education program participants reported improved knowledge of risk and protective factors. All participants reported learning new information from the program. There were a total of 250 posts on the Un Café por el Alzheimer community Facebook page; 168 posts related to AD. The Facebook page reached 294,109 people, with 9963 page likes, 610 comments, 17,780 post clicks, and 3632 shares. There was an average increase of 64.8 % in number of people reached by the Facebook page following the education sessions. The approach of combining social media resources and in-person education is beneficial to increase public awareness of AD and disseminate health information.
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References
Alzheimer’s Association. (2013). Alzheimer’s disease facts and figures. Alzheimer’s and Dementia, 9(2), 208–245.
Hoyert, D. L., & Xu, J. (2012). Deaths: Preliminary data for 2011. National Vital Statistics Reports, 61(6), 1–52.
Alzheimer’s Association. (2015). Alzheimer’s disease facts and figures. Alzheimer’s and Dementia, 11(3), 332–384.
Institute of Medicine. (2015). Cognitive aging: Progress in understanding and opportunities for action. Last Modified August 19. Retrieved from http://iom.nationalacademies.org/Reports/2015/Cognitive-Aging.aspx.
U. S. Department of Health and Human Services. (2010). National plan to address Alzheimer’s disease. Retrieved from http://aspe.hhs.gov/national-alzheimers-project-act.
Puerto Rico Department of Health. (2015). Resumen General de la Salud en Puerto Rico. San Juan, Puerto Rico. Retrieved from http://www.salud.gov.pr/Estadisticas-Registros-y-Publicaciones/Publicaciones/Informe%20de%20la%20Salud%20en%20Puerto%20Rico%202015_FINAL.pdf.
Gurland, B. J., Wilder, D. E., Lantigua, R., Stern, Y., Chen, J., Killeffer, E. H., & Mayeux, R. (1999). Rates of dementia in three ethnoracial groups. International Journal of Geriatric Psychiatry, 14(6), 481–493.
U. S. Census Bureau. (2010). American fact finder: Community facts. Retrieved from http://factfinder.census.gov/faces/tableservices/jsf/pages/productview.xhtml?src=CF.
Cowell, A. J., Farrelly, M. C., Chou, R., & Vallone, D. M. (2009). Assessing the impact of the national ‘Truth’ antismoking campaign on beliefs, attitudes, and intent to smoke by race/ethnicity. Ethnicity and Health, 4(1), 75–91.
Ivey, S. L., Laditka, S. B., Price, A. E., Tseng, W., Beard, B. R., Lui, R., et al. (2012). Experiences and concerns of family caregivers providing support to people with Dementia: A cross-cultural perspective. Dementia, 12(6), 806–820.
Laditka, J. N., Laditka, S. B., Liu, R., Price, A. E., Wu, B., Friedman, D. B., et al. (2011). Older adult’s concerns about cognitive health: Commonalities and differences among six United States ethnic groups. Ageing and Society, 31(7), 1202–1228.
Friedman, D. B., Laditka, J. N., Hunter, R., Ivey, S. L., Wu, B., Laditka, S. B., et al. (2009). Getting the message out about cognitive health: A cross-cultural comparison of older adults’ media awareness and communication needs on how to maintain a healthy brain. The Gerontologist, 49(S1), S50–S60.
Muders, P., Zahrt-Omar, C. A., Bussmann, S., Haberstroh, J., & Weber, M. (2015). Support for families of patients dying with dementia: A qualitative analysis of bereaved family members’ experiences. Palliative and Supportive Care, 13(3), 435–442.
Friedman, D. B., Rose, I. D., Anderson, L. A., Hunter, R., Bryant, L. L., Wu, B., Deokar, A. J., & Tseng, W. (2013). Beliefs and communication practices regarding cognitive functioning among consumers and primary care providers in the United States, 2009. Preventing Chronic Disease. doi:10.5888/pcd10.120249.
Tian, Y., & Robinson, J. D. (2014). Media complementarity and health information seeking in Puerto Rico. Journal of Health Communication, 19(6), 710–720.
Perrin, A. (2015). Social media usage: 2005-2015. Pew Research Center. Retrieved from http://pewinternet.org/files/2015/10/PI_2015-10-08_Social-Networking-Usage-205-2015_FINAL.pdf.
Rainie, L. (2013). Public relations in the networked age: The new information ecosystem of e-patients. Presentation at PRSA-Health Academy, Indianapolis, IN, May 3, 2013.
Fox, S. (2011). The social life of health information, 2011. Pew Research Center’s Internet & American Life Project. Retrieved from http://www.pewiinternet.org/files/old-media//Files/Reports/2011/PIP_Social_Life_of_Health_Info.pdf.
Greene, J. A., Choudhry, N. K., Kilabuk, E., & Shrank, W. H. (2011). Online social networking by patients with diabetes: A qualitative evaluation of communication with Facebook. Journal of General Internal Medicine, 26(3), 287–292.
Mamun, A., Mohammad, H. I., & Turin, T. (2015). Social media in communicating health information: An analysis of Facebook groups related to hypertension. Preventing Chronic Disease: Public Health Research, Practice, and Policy, 11(E11), 1–10.
Bender, J. L., Jimenez-Marroquin, M., & Jadad, A. R. (2011). Seeking support on Facebook: A content analysis of breast cancer groups. Journal of Medical Internet Research, 13(1), e16.
Donelle, L., & Booth, R. G. (2012). Health tweets: An exploration of health promotion on Twitter. The Online Journal of Issues in Nursing, 17(3), 4.
Himelboim, I., & Han, J. Y. (2014). Cancer talk on Twitter: Community structure and information sources in breast and prostate cancer social networks. Journal of Health Communication, 19(2), 210–225.
Love, B., Himelboim, I., Holton, A., & Stewart, K. (2013). Twitter as a source of vaccination information: Content drivers and what they are saying. American Journal of Infection Control, 41(6), 568–570.
Robillard, J. M., Johnson, T. W., Hennessey, C., Beattie, B. L., & Illes, J. (2013). Aging 2.0: Health information about dementia on Twitter. PLoS ONE, 8(7), e69861.
Hennessy, M., Romer, D., Valois, R., Vanable, P., Carey, M. P., Stanton, B., et al. (2013). Safer sex media messages and adolescent sexual behavior: 3 year follow-up results from project iMPPACS. American Journal of Public Health, 103(1), 134–140. doi:10.2105/AJPH.2012.300856.
Whiteley, L. B., Brown, L. K., Swenson, R. R., Romer, D., DiClemente, R. J., Salazar, L. E., & Valois, R. F. (2011). African American adolescents and new media: Associations with HIV/STI risk behavior and psychosocial variables. Ethnicity and Disease, 21(2), 216–222.
Powell, J., Chiu, T., & Eysenbach, G. (2008). A systematic review of networked technologies supporting carers of people with dementia. Journal of Telemedicine and Telecare, 14(3), 154–156.
Sharpe, P. A., Burroughs, E. L., Grammer, M. L., Wilcox, S., Hutto, B. E., Bryant, C. A., et al. (2010). Impact of a community-based prevention marketing intervention to promote physical activity among middle-aged women. Health Education and Behavior, 37(3), 403–423.
Sznitman, Sharon, Vanable, Peter A., Carey, Michael P., Valois, Robert F., Brown, Larry K., Clemente, Ralph J., et al. (2011). Long-term effects of community-based STI screening and mass media HIV prevention messages on sexual risk behaviors of African American adolescents. AIDS and Behavior, 15(8), 1755–1763.
Williams, E. A., Ivic, R. K., & Hopeck, P. (2010). Promoting the Michigan organ donor registry: Evaluating the impact of a multifaceted intervention utilizing media priming and communication design. Health Communication, 25, 700–708.
Friedman, D. B., Koskan, A., & Rose, I. D. (2011). Prostate cancer guidelines on web 2.0-based sites: The screening dilemma continues online. Journal of Cancer Education, 26, 188–193.
Tanner, A., & Friedman, D. B. (2011). Health on the Web: An examination of health content and mobilizing information on local TV Web sites. Informatics in Health and Social Care, 36(1), 50–61.
Tanner, A., Friedman, D. B., Koskan, A., & Barr, D. (2009). Disaster communication on the Internet: A focus on mobilizing information. Journal of Health Communication, 14(8), 741–755.
Karlawish, J., Barg, F. K., Augsburger, D., Beaver, J., Ferguson, A., & Nunez, J. (2011). What Latino Puerto Ricans and non-Latinos say when they talk about Alzheimer’s disease. Alzheimers and Dementia, 7(2), 161–170. doi:10.1016/j.jalz.2010.03.015.
Acknowledgments
This project was supported by a grant from the National Association of Chronic Disease Directors (NACDD) to the Puerto Rico Department of Health (3422015) and a cooperative agreement from the Centers for Disease Control and Prevention (Prevention Research Centers) Healthy Aging Program to the University of South Carolina (U48/DP005000-01S7). The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the NACDD and CDC.
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Friedman, D.B., Gibson, A., Torres, W. et al. Increasing Community Awareness About Alzheimer’s Disease in Puerto Rico Through Coffee Shop Education and Social Media. J Community Health 41, 1006–1012 (2016). https://doi.org/10.1007/s10900-016-0183-9
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DOI: https://doi.org/10.1007/s10900-016-0183-9