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Journal of Genetic Counseling

, Volume 27, Issue 1, pp 9–15 | Cite as

National Society of Genetic Counselors Code of Ethics: Explication of 2017 Revisions

  • Leigha Senter
  • Robin L. Bennett
  • Anne C. Madeo
  • Sarah Noblin
  • Kelly E. Ormond
  • Kami Wolfe Schneider
  • Kelli Swan
  • Alice Virani
  • The National Society of Genetic Counselors Code of Ethics Review Task Force (COERTF)
Professional Issues

Abstract

The Code of Ethics (COE) of the National Society of Genetic Counselors (NSGC) was adopted in 1992 and was later revised and adopted in 2006. In 2016, the NSGC Code of Ethics Review Task Force (COERTF) was convened to review the COE. The COERTF reviewed ethical codes written by other professional organizations and suggested changes that would better reflect the current and evolving nature of the genetic counseling profession. The COERTF received input from the society’s legal counsel, Board of Directors, and members-at-large. A revised COE was proposed to the membership and approved and adopted in April 2017. The revisions and rationale for each are presented.

Keywords

Genetic counseling Ethics Ethical principles Genetics 

Notes

Acknowledgements

We would like to acknowledge Judith Benkendorf, a member of the original COE author group, who provided input to the COERTF and actively solicited feedback from the original COE author group.

Funding

The work represented in this manuscript was unfunded.

Compliance with Ethical Standards

Conflict of Interest

Leigha Senter has served as paid consultant for AstraZeneca, Clovis Oncology, and MyGeneCounsel.

Robin Bennett has received royalties from John Wiley and Sons, Inc.

Ann C. Madeo declares that she has no conflict of interest.

Sarah Noblin declares that she has no conflict of interest.

Kelly E. Ormond declares that she has no conflict of interest.

Kami Wolfe Schneider declares that she has no conflict of interest.

Kelli Swan is currently an employee of Myriad genetics and owns stock from Myriad genetics.

Alice Virani declares that she has no conflict of interest.

Human Studies and Informed Consent

The work submitted in this manuscript did not involve human subjects.

Ethical Approval

The work submitted in this manuscript was not subject to institutional approvals.

Animal Studies

There were no animal studies involved in this publication.

References

  1. Benkendorf, J. L., Callanan, N. P., Grobstein, R., et al. (1992). An explication of the national society of genetic counselors (NSGC) code of ethics. Journal of Genetic Counseling, 1, 31.CrossRefPubMedGoogle Scholar
  2. Bennett, R. L., Callanan, N., Gordon, E., et al. (2006). Code of ethics of the national society of genetic counselors: explication of revisions. Journal of Genetic Counseling, 15, 313.CrossRefGoogle Scholar

Copyright information

© National Society of Genetic Counselors, Inc. 2017

Authors and Affiliations

  • Leigha Senter
    • 1
  • Robin L. Bennett
    • 2
  • Anne C. Madeo
    • 3
  • Sarah Noblin
    • 4
  • Kelly E. Ormond
    • 5
  • Kami Wolfe Schneider
    • 6
  • Kelli Swan
    • 7
  • Alice Virani
    • 8
  • The National Society of Genetic Counselors Code of Ethics Review Task Force (COERTF)
  1. 1.Department of Internal Medicine, Division of Human GeneticsThe Ohio State UniversityColumbusUSA
  2. 2.Department of Medicine, Division of Medical GeneticsUniversity of WashingtonSeattleUSA
  3. 3.Genetic Counselor Service, Integrated Oncology and Genetics DivisionARUP LaboratoriesSalt Lake CityUSA
  4. 4.Department of Obstetrics, Gynecology and Reproductive SciencesMcGovern Medical School, UTHealthHoustonUSA
  5. 5.Department of Genetics and Stanford Center for Biomedical EthicsStanford UniversityStanfordUSA
  6. 6.Section of Hematology, Oncology, and Bone Marrow TransplantationUniversity of Colorado Anschutz Medical Campus, Children’s Hospital ColoradoAuroraUSA
  7. 7.Myriad Genetics, Inc.Salt Lake CityUSA
  8. 8.Department of Medical GeneticsUniversity of British ColumbiaVancouverCanada

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