National Society of Genetic Counselors Code of Ethics: Explication of 2017 Revisions
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The Code of Ethics (COE) of the National Society of Genetic Counselors (NSGC) was adopted in 1992 and was later revised and adopted in 2006. In 2016, the NSGC Code of Ethics Review Task Force (COERTF) was convened to review the COE. The COERTF reviewed ethical codes written by other professional organizations and suggested changes that would better reflect the current and evolving nature of the genetic counseling profession. The COERTF received input from the society’s legal counsel, Board of Directors, and members-at-large. A revised COE was proposed to the membership and approved and adopted in April 2017. The revisions and rationale for each are presented.
KeywordsGenetic counseling Ethics Ethical principles Genetics
We would like to acknowledge Judith Benkendorf, a member of the original COE author group, who provided input to the COERTF and actively solicited feedback from the original COE author group.
The work represented in this manuscript was unfunded.
Compliance with Ethical Standards
Conflict of Interest
Leigha Senter has served as paid consultant for AstraZeneca, Clovis Oncology, and MyGeneCounsel.
Robin Bennett has received royalties from John Wiley and Sons, Inc.
Ann C. Madeo declares that she has no conflict of interest.
Sarah Noblin declares that she has no conflict of interest.
Kelly E. Ormond declares that she has no conflict of interest.
Kami Wolfe Schneider declares that she has no conflict of interest.
Kelli Swan is currently an employee of Myriad genetics and owns stock from Myriad genetics.
Alice Virani declares that she has no conflict of interest.
Human Studies and Informed Consent
The work submitted in this manuscript did not involve human subjects.
The work submitted in this manuscript was not subject to institutional approvals.
There were no animal studies involved in this publication.