Journal of Genetic Counseling

, Volume 24, Issue 3, pp 433–437 | Cite as

Genetic Counselors and Health Literacy: The Role of Genetic Counselors in Developing a Web-Based Resource About the Affordable Care Act

  • Sylvia MannEmail author
  • Pauline Mui
  • Jennifer Boomsma
  • Lianne Hasegawa


The Western States Genetic Services Collaborative (WSGSC) recognized the need for clear and understandable information about the Affordable Care Act (ACA) for families throughout the life course. The genetic counselors working in the WSGSC developed, tested, and implemented a web resource ( to help families navigate information about the ACA tailored to their life situation. The training and experience of genetic counselors provide the skills needed to translate complicated information, like that of the ACA, into formats that the general public can comprehend. The website went public in October 2013, and it has been positively received. The development of this website is a good case study in how genetic counseling skills can be applied to public health education and improving health literacy.


Genetic counselor Health literacy Affordable care act Website development Insurance coverage Public health genetics 



This work was funded by the Health Resources and Services Administration, Maternal and Child Health Branch, Award Number: U22 MCH03961

Conflict of Interest Statement

Sylvia Mann, Pauline Mui, Jennifer Boomsma, and Lianne Hasegawa declare that they have no conflict of interest.

Human Studies and Informed Consent

Consent to participate in the focus groups was implied based on voluntary participation.


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Copyright information

© National Society of Genetic Counselors, Inc. 2014

Authors and Affiliations

  • Sylvia Mann
    • 1
    Email author
  • Pauline Mui
    • 1
  • Jennifer Boomsma
    • 1
  • Lianne Hasegawa
    • 1
  1. 1.Genomics Section, Hawaii Department of HealthHonoluluUSA

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