Journal of Genetic Counseling

, Volume 22, Issue 2, pp 226–237 | Cite as

“I Didn’t Know It Existed Before You Called”: Protestant Clergy Experience, Education and Perceptions Regarding Genetics

  • Jennifer Lemons
  • Judy Ragsdale
  • Lisa Vaughn
  • Daniel Grossoehme
Original Research

Abstract

Despite the intrinsic role religious/spiritual (hereafter, R/S) beliefs have in patient clinical decision-making and crisis coping, there is little research exploring the relationship that exists between clergy (professionals who provide R/S counsel and guidance) and genetic counseling patients. This qualitative, exploratory study was designed to explore Protestant clergy (N = 8) perceptions of and experience with genetics-related issues. Data analysis revealed that a wide range of R/S perceptions regarding genetics-related issues exist within Protestantism, Protestant clergy have a basic understanding of genetic testing and conditions, and while directive counseling is inherent to Protestant clergy counseling, there appears to exist two opposing styles: unbiased and biased. Based on this information, there are two main implications for genetic counseling clinical practice. First, R/S assessments need to be increasingly implemented into genetic counseling sessions, so that the psychosocial needs of patients with specific R/S beliefs can be identified and addressed. An increase in R/S assessments may be accomplished by increased exposure in genetic counselor training, continuing education opportunities, and by establishing relationships with board-certified, professional chaplains. Second, genetic counselors can influence the genetic education and experience of clergy by raising awareness within their own R/S assemblies. Doing so can also serve to further educate genetic counselors in the R/S beliefs of their own traditions, thus increasing sensitivity, empathy and the quality of care provided.

Keywords

Genetic counseling Genetics Clergy Protestant Religious beliefs Spiritual beliefs 

Notes

Acknowledgments

A version of this manuscript has been submitted in partial fulfillment of the requirements for the degree of Master’s in Genetics Counseling, to the University of Cincinnati College of Medicine. The first author gratefully acknowledges members of the Research Advisory Committee: Daniel Grossoehme, D.Min. (Chair), Judith Ragsdale, Ph.D. and Lisa Vaughn, Ph.D., for their guidance, collaboration and support.

Supplementary material

10897_2012_9538_MOESM1_ESM.docx (25 kb)
ESM 1 (DOCX 24 kb)

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Copyright information

© National Society of Genetic Counselors, Inc. 2012

Authors and Affiliations

  • Jennifer Lemons
    • 1
    • 5
  • Judy Ragsdale
    • 2
  • Lisa Vaughn
    • 3
  • Daniel Grossoehme
    • 4
  1. 1.Department of Pediatrics, Division of Medical GeneticsUniversity of Texas Health Science Center at HoustonHoustonUSA
  2. 2.Director of Research and Education, Department of Pastoral CareCincinnati Children’s Hospital Medical CenterCincinnatiUSA
  3. 3.PediatricsCincinnati Children’s Hospital Medical CenterCincinnatiUSA
  4. 4.Division of Pulmonary Medicine, Department of Pastoral CareCincinnati Children’s Hospital Medical CenterCincinnatiUSA
  5. 5.HoustonUSA

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