An Exploration of the Cultural Context of Kinship and Genetics Amongst Arabic-Australians: Implications for Practice
- 189 Downloads
This paper examines the culturally determined attitudes and beliefs about kinship, causation of hereditary cancer and other illnesses and the importance of family history amongst Arabic-Australians. Ethnographic interviews were conducted initially with individuals who had attended a family cancer clinic and subsequently with community members. Our aim was to either verify or challenge the reported findings from the clinic sample. Interviews with 38 participants provided cultural descriptions of hereditary illnesses, including cancer, and their causes. While respondents recognized family history as an important factor that reflects on one’s likelihood of successful child-bearing, models of kinship described were not in line with Western concepts. Important issues emerged which need to be recognized as potential barriers to access to genetics services and challenges in this community. These include a lack of awareness of inherited cancer and the impact of consanguinity on the understanding of kinship in this community.
KeywordsCultural competence Kinship Hereditary cancer Cultural diversity Genetic services
This work was supported in part by a Strategic Research Partnership Grant from the NSW Cancer Council. Bettina Meiser is supported by a Career Development Award from The National Health and Medical Research Council of Australia (ID 350989). We gratefully acknowledge the clinic data managers Irena Kotchetkova and Nishath Syed for their assistance and support of this project as well as the Arab Council Australia for assisting in the recruitment of participants. Much appreciation goes to Prof Maurice Eisenbruch for his useful cultural insight and guidance. Many thanks also to the willing interview participants themselves. Without their honesty, openness and valuable contribution, this study would not have been possible.
- Bennett, R., Motulsky, A., Bittles, A., Hudgins, L., Uhrich, S., Lochner Doyle, D., et al. (2002). Genetic counseling and screening of consanguineous couples and their offspring: recommendations of the national society of genetic counselors. Journal of Genetic Counseling, 11(2), 97–119.CrossRefGoogle Scholar
- Cross, T., Bazron, B., Dennis, K., & Isaacs, M. (1989). Towards a culturally competent system of care, volume I. Washington, DC: Georgetown University Child Development Center, CASSP Technical Assistance Center.Google Scholar
- Eisenbruch, M., Yeo, S., Meiser, B., Goldstein, D., Tucker, K., & Barlow-Stewart, K. (2004). Optimizing clinical practice in cancer genetics with cultural competence: lessons to be learned from ethnographic research with Chinese-Australians. Social Science and Medicine, 59(2), 235–248.PubMedCrossRefGoogle Scholar
- El-Harith, E., Abdel-Hadi, M., Steinmann, D., & Dork, T. (2002). BRCA1 and BRCA2 mutations in breast cancer patients from Saudi Arabia. Saudi Medical Journal, 23(6), 700–704.Google Scholar
- Krueger, R., & Casey, M. (2000). Focus groups: A practical guide for applied research (3rd ed.). California: Sage.Google Scholar
- Miles, M., & Huberman, A. (1994). Qualitative data analysis: an expanded sourcebook (2nd ed.). Sage: California.Google Scholar
- Nanda, R., Schumm, P., Cummings, S., Fackenthal, J., Sveen, L., Ademuyiwa, F., et al. (2005). Genetic testing in an ethnically diverse cohort of high-risk women a comparative analysis of BRCA1 and BRCA2 mutations in American families of European and African ancestry. Journal of the American Medical Association, 294, 1925–1933.PubMedCrossRefGoogle Scholar