Health Related Quality of Life and Social Support in Pediatric Patients with Pacemakers
- 346 Downloads
Prior research evaluating health-related quality of life (HRQOL) among pediatric patients with internal cardiac devices has primarily focused on children with cardiac defibrillators, with scant attention devoted to pacemaker recipients. Social support has been conceptualized as a protective factor that partially accounts for differences in HRQOL. This study compares the HRQOL of children with pacemakers with that of healthy children, and examines associations between HRQOL and social support. Twenty-seven pediatric pacemaker recipients completed measures of HRQOL and social support. Their parents also completed measures of child HRQOL. High concordance was found for child and parent-proxy reports of child HRQOL. Children with pacemakers and their parents both reported relatively low child HRQOL when compared to published normative data for healthy children and parents of healthy children. Family and friends emerged as the sources of support positively associated with the greatest number of HRQOL domains. In conclusion, these findings suggest that pediatric pacemaker recipients experience lower levels of HRQOL compared to healthy peers, and that social support from those closest to the child is associated with their perceived HRQOL.
KeywordsPacemaker Internal cardiac device Quality of life Social support Pediatrics
Conflict of interest
Patricia Cheng, Ana M. Gutierrez-Colina, Kristin A. Loiselle, Margaret Strieper, Patrick Frias, Kevin Gooden, and Ronald L. Blount declare that they have no conflict of interest.
All procedures followed were in accordance with the ethical standards of the responsible committee on human experimentation (institutional and national) and with the Helsinki Declaration of 1975, as revised in 2000. Informed consent was obtained from all patients for being included in the study.
This study was funded by support from the Children’s Healthcare of Atlanta Cardiac Research Group.
- Cohen, J. (1998). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Erlbaum.Google Scholar
- Fish, F. A., & Benson, D. W. (2001). Disorders of cardiac rhythm and conduction. In H. Allen, H. Gutgesell, E. Clark, & D. Driscoll (Eds.), Moss and Adams’ heart disease in infants, children, and adolescents, including the fetus and young adult (6th ed.). Philadelphia, PA: Lippincott, Williams, & Wilkins.Google Scholar
- Jenerette, C. M. (2008). Relationships among types of social support and QOL in adults with sickle cell disease. Southern Online Journal of Nursing Research, 8(3). http://www.resourcenter.net/images/snrs/files/sojnr_articles2/Vol08Num03Art04.pdf.
- LeRoy, S., & Dick, M. (2001). Supraventricular arrhythmias. In V. L. Zeigler & P. C. Gillette (Eds.), Practical management of pediatric cardiac arrhythmias (pp. 53–109). Armonk, NY: Futura Publishing Company, Inc.Google Scholar
- Martin, A., & Kugler, J. (1999). Sinus node dysfunction. In P. Gillette & A. Garson Jr (Eds.), Clinical pediatric arrhythmias (pp. 51–62). Philadelphia, PA: W.B. Saunders Company.Google Scholar
- O’Dell McCollum, D. A. (1997). The relationship between social support and adjustment in adolescents with diabetes. Dissertation Abstracts International, 58, 5-B. (UMI No. 9731852).Google Scholar
- Stefanelli, C. B., Bradley, D. J., Leroy, S., Dick, M., 2nd, Serwer, G. A., & Fischbach, P. S. (2002). Implantable cardioverter defibrillator therapy for life-threatening arrhythmias in young patients. Journal of Interventional Cardiac Electrophysiology: An International Journal of Arrhythmias and Pacing, 6, 235–244.CrossRefGoogle Scholar
- Taylor, S. J., Zeigler, V. L., & Clark, J. M. (2001). Permanent pacemakers. In V. Zeigler & P. Gillette (Eds.), Practical management of pediatric cardiac arrhythmias. Armonk, NY: Futura Publishing Company, Inc.Google Scholar
- Wallander, J. L., & Varni, J. W. (1992). Adjustment in children with chronic physical disorders: Programmatic research on a disability-stress-coping model. In A. M. La Greca, L. J. Siegel, J. L. Wallander, & C. E. Walker (Eds.), Stress and coping in child health (pp. 279–298). New York, NY: Guilford Press.Google Scholar
- Zeigler, V. L., & Corbett, K. S. (1995). Psychosocial aspects of caring for pediatric pacemaker recipients and their families. In P. Gillette & V. Zeigler (Eds.), Pediatric cardiac pacing. Armonk, NY: Futura Publishing Co.Google Scholar