Development and Preliminary Reproducibility and Validity of the Parent Adherence Report Questionnaire: A Measure of Adherence in Juvenile Idiopathic Arthritis

  • Mirella De Civita
  • Patricia L. Dobkin
  • Debbie Ehrmann-Feldman
  • Igor Karp
  • Ciarán M. Duffy
Original Article

Abstract

The purpose of this study was to develop and evaluate the psychometric properties of the Parent Adherence Report Questionnaire, a measure of adherence to treatment recommendations in juvenile idiopathic arthritis (JIA). Forty-one primary caregivers of children with JIA (age 1.5 to 18 years) completed a series of measures over a 3-month period. Demographic and disease-related information were obtained at baseline. To measure adherence, caregivers completed bi-weekly diaries on treatment adherence, the general adherence scale (GAS) monthly, and the PARQ at the end of 3 months. The PARQ was reassessed 2 weeks later. Medical charts were reviewed to compare bi-weekly diary reports to actual prescriptions. Intraclass correlation coefficients and kappa coefficients used to assess reproducibility indicated moderate to substantial levels of agreement for PARQ items across time. Construct validity was supported through: (1) significant correlations between the GAS and the PARQ for both exercise and medication; (2) fair agreement between the PARQ-medication and diary reports on medication-related behaviors, and (3) a significant positive correlation between the PARQ-exercise and diary reports on exercise-related behaviors. The study provides preliminary evidence of the reliability and validity of the PARQ.

juvenile idiopathic arthritis adherence, validity reproducibility PARQ 

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Copyright information

© Springer Science+Business Media, Inc. 2005

Authors and Affiliations

  • Mirella De Civita
    • 1
    • 8
  • Patricia L. Dobkin
    • 1
    • 2
  • Debbie Ehrmann-Feldman
    • 3
    • 4
  • Igor Karp
    • 2
    • 5
  • Ciarán M. Duffy
    • 6
    • 7
  1. 1.Faculty of Medicine, Department of MedicineMcGill UniversityMontrealCanada
  2. 2.Division of Clinical Epidemiology of the McGill University Health Centre (MUHC)MontrealCanada
  3. 3.Department of PhysiotherapyMontreal Children’s Hospital of the MUHCMontrealCanada
  4. 4.Faculty of Medicine, School of RehabilitationUniversité de MontréalMontrealCanada
  5. 5.Faculty of Medicine, Department of Epidemiology and BiostatisticsMcGill UniversityMontrealCanada
  6. 6.Division of RheumatologyMontreal Children’s Hospital of the MUHCMontrealCanada
  7. 7.Department of PediatricsMcGill UniversityMontrealCanada
  8. 8.McGill University Health Centre, Division of Clinical EpidemiologyMontrealCanada H3G 1A4

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