Child Chronic Illness and Parent Work-Family Conflict: Investigating the Experiences of Working Parents
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Parents play a pivotal role in helping children manage their chronic illness, consequently taking on multiple roles. In such circumstances, parent inter-role conflict can impact parent and child aspects and outcomes (e.g., well-being). This study aimed to examine the work-family interface for parents of children with diabetes, asthma or eczema, by exploring their experiences in comparison to those of parents with children without chronic illness and those with diverse chronic conditions.
Semi-structured interviews with fifteen working mothers (M age = 38.20 years; SD = 0.91) of children with diabetes, asthma or eczema were conducted.
From these interviews, four key themes were identified: (a) parent impact, (b) child wellbeing and development, (c) support, flexibility and understanding, and (d) broader impact. Mothers experienced conflict between work and family roles similar to that evidenced in past research. But unique to these parents is their ongoing carer role (e.g., not meeting the care needs of their child). Family impacted their work in various ways (e.g., sacrifice career opportunities), with impacts because of their carer role (e.g., taking more time off work) also illustrated. For these parents, the importance of support (e.g., from workplaces, family) is highlighted, as this alleviated the challenges and subsequent impacts experienced.
More research is proposed to investigate the added demands faced by these parents, by quantifying these demands, given their importance in determining work-family conflict. As this study provides very preliminary findings, further research is required to address several of the limitations discussed.
KeywordsChronic illness Family Parents Work Work-family conflict
This work was supported by an Australian Government Research Training Program (RTP) Scholarship.
Author A.K. contributed to the conception and design of the study, recruitment of parents, conducting and transcribing of the interviews and conducting of the thematic analysis, and drafting of the manuscript. Author D.H. contributed to the study’s conception and design—particularly advising on the processes needed to conduct interviews, transcription of data and the thematic analysis, and its interpretation; as well as critically reviewing the manuscript. Author P.N. contributed to parts of the conception and design of the study and provided feedback on ways to revise this manuscript.
Compliance with Ethical Standards
Conflict of Interest
The Parenting and Family Support Centre is partly funded by royalties stemming from published resources of the Triple P —Positive Parenting Program, which is developed and owned by The University of Queensland (UQ). Royalties are also distributed to the Faculty of Health and Behavioural Sciences at UQ and contributory authors of published Triple P resources. Triple P International (TPI) Pty Ltd is a private company licensed by Uniquest Pty Ltd on behalf of UQ, to publish and disseminate Triple P worldwide. The authors of this report have no share or ownership of TPI. D.H. receives royalty and consultancy fees from TPI. TPI had no involvement in the study design, collection, analysis or interpretation of data, or writing of this report. D.H. holds an honorary appointment at UQ, P.N. is employed by UQ and A.K. is a former student at UQ.
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional (School of Psychology Ethical Review Committee, The University of Queensland) and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed consent was obtained from all individual participants included in the study.
- AIHW. (2015). Prevalence of type 1 diabetes among children aged 0–14 in Australia 2013 Cat. no. CVD 70. Canberra: Australian Institute of Health and Welfare.Google Scholar
- AIHW. (2016). Australia’s health 2016, 3.10: chronic respiratory conditions Australia’s health series Cat. no. AUS 199. Canberra: Australian Institute of Health and Welfare.Google Scholar
- AIHW. (2018). Australia’s health 2018 Australia’s health series no. 16. AUS 221. Canberra: Australian Institute of Health and Welfare.Google Scholar
- Altman, D. G. (1990). Practical statistics for medical research. London: Chapman & Hall.Google Scholar
- Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: the unexpected career. San Diego, CA, US: Academic Press.Google Scholar
- ASCIA. (2019). Eczema (atopic dermatitis). Information for patients, consumers and carers. https://www.allergy.org.au/images/pcc/ASCIA_PCC_Eczema_2019.pdf.
- Gornick, J. C., & Meyers, M. K. (2003). Families that work—policies for reconciling parenthood and employment. New York: Russell Sage Foundation.Google Scholar
- Gray, M., & Tudball, J. (2002). Family-friendly work practices: differences within and between workplaces. Melbourne: Australian Institute of Family Studies.Google Scholar
- Herbert, L. J., Clary, L., Owen, V., Monaghan, M., Alvarez, V., & Streisand, R. (2015). Relations among school/daycare functioning, fear of hypoglycaemia and quality of life in parents of young children with type 1 diabetes. Journal of Clinical Nursing, 24(9-10), 1199–1209. https://doi.org/10.1111/jocn.12658.CrossRefPubMedGoogle Scholar
- Herzer, M., Godiwala, N., Hommel, K. A., Driscoll, K., Mitchell, M., Crosby, L. E., & Modi, A. C. (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental and Behavioral Pediatrics, 31(1), 26–34. https://doi.org/10.1097/DBP.0b013e3181c7226b.CrossRefPubMedPubMedCentralGoogle Scholar
- Kahn, R. L., Wolfe, D. M., Quinn, R. P., Snoek, J. D., & Rosenthal, R. A. (1964). Organizational stress: Studies in role conflict and ambiguity. Oxford, England: John Wiley.Google Scholar
- Martin, P.E. (2011). The epidemiology of infantile eczema. Ph.D thesis. Australia: The University of Melbourne. http://hdl.handle.net/11343/37290.
- National Asthma Council Australia. (2019). Australian asthma handbook, Version 2.0. http://www.asthmahandbook.org.au.
- Ohya, Y., Williams, H., Steptoe, A., Saito, H., Iikura, Y., Anderson, R., & Akasawa, A. (2001). Psychosocial factors and adherence to treatment advice in childhood atopic dermatitis. Journal of Investigative Dermatology, 117(4), 852–857. https://doi.org/10.1046/j.0022-202x.2001.01475.x.CrossRefPubMedGoogle Scholar
- Prior, M., & Richardson, S. (2005). Childhood today. In S. Richardson & M. Prior (Eds.), No time to lose: the wellbeing of Australia’s children (pp. 1–36). Australia: Melbourne University Press.Google Scholar