Financial Capabilities Among Youth with Autism Spectrum Disorder
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Youth with Autism Spectrum Disorder (ASD) experience significant difficulties assuming adult responsibilities and achieving independence. Little is known about their desire or ability to manage their own finances. This study explored the financial circumstances, money management skills, and desires for financial independence among 27 youth with ASD. Youth took part in 30–60 min semi-structured interviews about independence. Strategies of theme analysis identified three critical themes about finances and emerging adulthood for youth with ASD. Youth (1) defined independence by being able to manage their finances, (2) worried about their lack of money management skills, and (3) cited poor financial skills as barrier to independence. Results suggest youth with ASD understand the importance of financial capability and strive for financial independence, but lack the skills and support needed to achieve their financial goals. This study provides preliminary information for clinicians, educators, and researchers to develop financial capability modules for youth with ASD.
KeywordsAutism spectrum disorder Youth/young adults Independence Financial capabilities Money management Qualitative methods
The U.S. Army Medical Research Acquisition Activity, 820 Chandler Street, Fort Detrick MD 21702-5014 is the awarding and administering acquisition office This work was supported by the Assistant Secretary of Defense for Health Affairs, through the Autism Research Program, Idea Development Award under Award No. W81XWH-14-1-0604. Opinions, interpretations, conclusions and recommendations are those of the author and are not necessarily endorsed by the Department of Defense.
Compliance with Ethical Standards
Conflict of Interest
The authors declare that they have no competing interest.
Informed consent was obtained from all individual participant included in the study.
- Autism Speaks (2012). What is autism? What is autism spectrum disorder? http://www.autismspeaks.org/what-autism.
- Batavia, A. I., & Beaulaurier, R. L. (2001). The financial vulnerability of people with disabilities: Assessing poverty risks. Journal of Sociology & Social Welfare, 28(1), 139–162.Google Scholar
- Cameto, R., Levine, P., & Wagner, M. (2004). Transition Planning for Students with Disabilities. A Special Topic Report from the National Longitudinal Transition Study-2 (NLTS2). Menlo Park, CA: SRI International.Google Scholar
- Center for Financial Security (2015). Financial coaching: Review of existing research. (Issue Brief No. 10.1). http://fyi.uwex.edu/financialcoaching/files/2015/10/FinancialCoaching_10.1.pdf.
- Cheak-Zamora, N. C., Teti, M., & First, J. (2015). ‘Transitions are scary for our kids, and they’re scary for us’: Family member and youth perspectives on the challenges of transitioning to adulthood with autism. Journal of Applied Research in Intellectual Disabilities, 28(6), 548–560. doi: 10.1111/jar.12150.CrossRefPubMedGoogle Scholar
- Council for Economic Education (2016). Survey of the states: Economic and personal finance education in our nation’s schools 2016. Council for Economic Education. http://councilforeconed.org/wp/wp-content/uploads/2016/02/sos-16-final.pdf.
- Kvale, S., & Brinkmann, S. (2009). InterViews: Learning the craft of qualitative research interviewing. Thousand Oaks, CA: SAGE.Google Scholar
- Livingstone, J. (2007). Banking matters to me: The experiences of people with a learning disability seeking to use banking products and services (978-1-906249-00-7). http://www.friendsprovidentfoundation.org/wp-content/uploads/2013/03/ARC_Banking_Matters_to_Me__-_Summary.pdf.
- Mandell, L., & Klein, L. S. (2009). The impact of financial literacy education on subsequent financial behavior. Journal of Financial Counseling and Planning, 20(1), 15–24.Google Scholar
- McCormick, M. H. (2009). The effectiveness of youth financial education: A review of the literature. Journal of Financial Counseling and Planning, 20(1), 70–83.Google Scholar
- Mittapalli, K., Belson, S.I., Ahmadi, H., Itani, Z., Wilsey, M., Swamy, N., & Taylor, H. (2009). Financial literacy for youth with disabilities. (DOLU089428189FL). Gaithersburg, MD Social Dynamics, LLC. http://www.dol.gov/odep/research/FinancialEducationYouthDisabilitiesLiteratureReview.pdf.
- Shogren, K. A., & Plotner, A. J. (2012). Transition planning for students with intellectual disability, autism, or other disabilities: Data from the National Longitudinal Transition Study-2. Intellectual and developmental disabilities, 50(1), 16–30. doi: 10.1352/1934-9556-50.1.16.CrossRefPubMedGoogle Scholar
- South, M., Dana, J., White, S. E., & Crowley, M. J. (2011). Failure is not an option: Risk-taking is moderated by anxiety and also by cognitive ability in children and adolescents diagnosed with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 41(1), 55–65. doi: 10.1007/s10803-010-1021-z.CrossRefPubMedGoogle Scholar
- Suto, W. M., Clare, I. C., Holland, A. J., & Watson, P. C. (2005b). The relationships among three factors affecting the financial decision making abilities of adults with mild intellectual disabilities. Journal of Intellectual Disability Research, 49(3), 210–217. doi: 10.1111/j.1365-2788.2005.00647.x.CrossRefPubMedGoogle Scholar
- Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. The Journal of Autism and Developmental Disorders, 41(5), 566–574. doi: 10.1007/s10803-010-1070-3.CrossRefPubMedGoogle Scholar
- Taylor, M., Jenkins, S., & Sacker, A. (2011). Financial capability, income and psychological well-being. ISER Working Paper 2011-18, Colchester: University of Essex. https://www.iser.essex.ac.uk/research/publications/working-papers/iser/2011-18.pdf.
- Wagner, M., Newman, L., Cameto, R., Garza, N., & Levine, P. (2005). After high school: a first look at the postschool experiences of youth with disabilities. A Report from the National Longitudinal Transition Study-2 (NLTS2). Menlo Park, CA: SRI International. http://www.nlts2.org/reports/2005_04/nlts2_report_2005_04_complete.pdf.Google Scholar
- Williams, V., Marriott, A., & Townsley, R. (2008). Shaping our future: A Scoping and consultation exercise to establish research priorities in learning disabilities for the next ten years. London: HMSO, National Co-ordinatingCentre for NHS Service Delivery and Organisation R&D (NCCSDO). http://www.netscc.ac.uk/hsdr/files/project/SDO_FR_08-1610-152_V01.pdf.Google Scholar
- Williams, V., & Porter, S. (2011). Your life, your choice: qualitative research carried out as part of the ‘support planning and brokerage’ initiative. London: Office for Disability Issue. http://www.ndti.org.uk/uploads/files/support-planning-and-brokerage-research-findings.pdf.Google Scholar