Family Functioning and Coping Behaviors in Parents of Children with Autism

Original Paper

Abstract

We analyzed family dynamics and coping behaviors of parents with a child with an autistic spectrum disorder. Previous research suggests that moderate levels of cohesion and adaptability are associated with higher levels of positive coping, and that the more coping strategies a family implements, the greater their satisfaction with family functioning. Using a family systems approach, the relationships among the familial variables of cohesion, adaptability, and social support were evaluated for their contributions to coping in the family unit. We also compared the responses of mothers and fathers. Surprisingly, for these parents of children with autism, those who rated their family as enmeshed implemented more positive coping strategies than did those from other cohesion styles. This finding suggests that the enmeshed style may be more adaptive for a family that encounters extreme challenges. Notably, mothers and fathers agreed on all variables except for perception of social support from family and friends. Mothers perceived more social support from family and friends. The results lead to several interesting suggestions for future research.

Keywords

Autism Cohesion Adaptability Coping Family systems 

Notes

Acknowledgments

We would like to thank Carol Freedman-Doan and Nina Nabors, who helped in the development and revision of this project, Chelsea Fredrick, who aided the first author in data collection, and all of the families who kindly participated in this study. We would also like to thank the editor and the reviewers for their very helpful comments and suggestions; this paper is much improved as a result.

References

  1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text revision). Washington, DC: Author.Google Scholar
  2. Bristol, M. M. (1984). Family resources and successful adaptation to autistic children. In E. Schopler & G. B. Mesibov (Eds.), The effects of autism on the family (pp. 289–310). New York: Plenum Press.Google Scholar
  3. Cassano, M., Adrian, M., Veits, G., & Zeman, J. (2006). The inclusion of fathers in the empirical investigation of child psychopathology: An update. Journal of Clinical Child and Adolescent Psychology, 35, 583–589.PubMedCrossRefGoogle Scholar
  4. Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2, 97–110.CrossRefGoogle Scholar
  5. Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37, 39–52.PubMedCrossRefGoogle Scholar
  6. Fombonne, E. (2003). The prevalence of autism. Journal of the American Medical Association, 289, 87–89.PubMedCrossRefGoogle Scholar
  7. Frey, K. S., Greenberg, M. T., & Fewell, R. R. (1989). Stress and coping among parents of handicapped children: A multidimensional approach. American Journal of Mental Retardation, 94, 240–249.PubMedGoogle Scholar
  8. Gill, M. J., & Harris, S. L. (1991). Hardiness and social support as predictors of psychological discomfort in mothers of children with autism. Journal of Autism and Developmental Disorders, 21, 407–416.PubMedCrossRefGoogle Scholar
  9. Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215–222.CrossRefGoogle Scholar
  10. Gray, D. E., & Holden, W. (1992). Psycho-social well-being among the parents of children with autism. Australia and New Zealand Journal of Developmental Disabilities, 18, 83–93.Google Scholar
  11. Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644.PubMedCrossRefGoogle Scholar
  12. Henderson, D., & Vandenberg, B. (1992). Factors influencing adjustment in the families of autistic children. Psychological Reports, 71, 167–171.PubMedCrossRefGoogle Scholar
  13. Houser, R., & Seligman, M. (1991). A comparison of stress and coping by fathers of adolescents with mental retardation and fathers of adolescents without mental retardation. Research in Developmental Disabilities, 12, 251–260.PubMedCrossRefGoogle Scholar
  14. Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250.Google Scholar
  15. Konstantareas, M., & Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry and Allied Disciplines, 30, 459–470.CrossRefGoogle Scholar
  16. Krauss, M. W. (1993). Child-related and parenting stress: Similarities and differences between mothers and fathers of children with disabilities. American Journal of Mental Retardation, 97, 393–404.PubMedGoogle Scholar
  17. Lamb, M. E., & Tamis-Lemonda, C. S. (2004). The role of the father: An introduction. In M. E. Lamb (Ed.), The role of the father in child development (4th ed., pp. 1–31). Hoboken, NJ: Wiley.Google Scholar
  18. Lyons, J. S., Perrotta, P., & Hancher-Kvam, S. (1988). Perceived social support from family and friends: Measurement across disparate samples. Journal of Personality Assessment, 52, 42–47.PubMedCrossRefGoogle Scholar
  19. McCubbin, H., Larson, A., & Olson, D. (1987). F-COPES family crisis oriented personal scales. In H. McCubbin & A. Thompson (Eds.), Family assessment inventories for research and practice (pp. 211–234). Madison, WI: University of Wisconsin, Madison.Google Scholar
  20. Minuchin, S. (1974). Families and family therapy. Cambridge, MA: Harvard University Press.Google Scholar
  21. Olson, D. H., Portner, J., & Lavee, Y. (1985). FACES III. St. Paul, MN: Family Social Science, University of Minnesota.Google Scholar
  22. Olson, D. H., Russell, C. S., & Sprenkle, D. H. (1980). Circumplex model of marital and family systems II: Empirical studies and clinical intervention. In J. P. Vincent (Ed.), Advances in family intervention assessment and theory (Vol. 1, pp. 129–179). Greenwich, CT: JAI Press.Google Scholar
  23. Patterson, J. M. (1988). Chronic illness in children and the impact on families. In C. Chilman, E. Nunnally, & E. Cox (Eds.), Chronic illness and disability (pp. 69–107). Beverly Hills: Sage.Google Scholar
  24. Phares, V., & Compas, B. E. (1992). The role of fathers in child and adolescent psychopathology: Make room for daddy. Psychological Bulletin, 111, 387–412.PubMedCrossRefGoogle Scholar
  25. Pleck, J. H., & Masciadrelli, B. P. (2004). Paternal involvement by U.S. residential fathers: Levels, sources, and consequences. In M. E. Lamb (Ed.), The role of the father in child development (4th ed., pp. 222–271). Hoboken, NJ: Wiley.Google Scholar
  26. Pratt, D. M. (1987). A test of the curvilinear hypothesis with FACES II and III. Journal of Marital and Family Therapy, 13, 387–392.CrossRefGoogle Scholar
  27. Procidano, M. E., & Heller, K. (1983). Measures of perceived social support from friends and from family: Three validation studies. American Journal of Community Psychology, 11, 1–24.PubMedCrossRefGoogle Scholar
  28. Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism. In Marital stress and support coping. Journal of Autism and Developmental Disorders, 33, 383–394.PubMedCrossRefGoogle Scholar
  29. Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1992). Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development. Journal of Autism and Developmental Disorders, 22, 249–263.PubMedCrossRefGoogle Scholar
  30. Sameroff, A. J. (1990). Neo-environmental perspectives on developmental theory. In R. M. Hodapp, J. A. Burack, & E. Zigler (Eds.), Issues in the developmental approach to mental retardation (pp. 93–113). Cambridge, MA: Cambridge University Press.Google Scholar
  31. Schall, C. (2000). Family perspectives on raising a child with autism. Journal of Child and Family Studies, 9, 409–423.CrossRefGoogle Scholar
  32. Seligman, M., & Darling, R. B. (1997). Ordinary families, special children (2nd ed.). New York: Guilford Press.Google Scholar
  33. Sivberg, B. (2002). Family system and coping behaviors: A comparison between parents of children with autistic spectrum disorders and parents with non-autistic children. Autism, 6, 397–409.PubMedCrossRefGoogle Scholar
  34. Vadasy, P. F., Fewell, R. R., Meyer, D. J., & Greenberg, M. T. (1985). Supporting fathers of handicapped young children: Preliminary findings of program effects. Analysis and Intervention in Developmental Disabilities, 5, 151–163.CrossRefGoogle Scholar
  35. Wallis, C. (2006). Inside the autistic mind. Time, 167, 51–56.Google Scholar

Copyright information

© Springer Science+Business Media, LLC 2008

Authors and Affiliations

  1. 1.Department of PsychologyEastern Michigan UniversityYpsilantiUSA

Personalised recommendations