School Inclusion in Children and Adolescents with Autism Spectrum Disorders in France: Report from the ELENA French Cohort Study
Children and adolescents with ASD are increasingly included in regular school settings, however little is known about how placement decisions are made. In the present study, we examined the types and duration of school attendance among children and adolescents in the ELENA Cohort, a multi-center study of children and adolescents with ASD, ages 2–16 years, in France. Results showed that 88% of subjects were attending school and that children and adolescents with more severe adaptive and cognitive deficits were less likely to attend school. The results provide a topography on school inclusion and ASD in France. Challenging behaviors and sensory processing difficulties were associated with partial-inclusion; and co-occurring anxiety symptoms were associated with inclusion on a full-time basis.
KeywordsSchool inclusion School duration ASD Cohort France
We would like to thank all the participants of the study and their families for their long-lasting interest and the time they have spent and the efforts they have made for the study. We are thankful to the many staff members and clinicians who have contributed to recording the data, especially Florine Dellapiazza, Flore Couty, Myriam Soussana, Christelle Vernhet and Ela Miniarikova. A special thank to Julie Loubersac and Dalil Hamroun for their technological assistance. The members of the ELENA STUDY GROUP are Pr Amaria Baghdadli, Dr Catherine Chabaux, Dr Clarisse Chatel, Pr David Cohen, Dr Emmanuel Damville, Dr Marie-Maude Geoffray, Pr Ludovic Gicquel, Pr Renaud Jardri, Dr Thierry Maffre, Dr Alexandre Novo, Dr Roxane Odoyer, Dr Marie-Joëlle Oreve, Dr Didier Périsse, Pr François Poinso, Dr Julien Pottelette, Dr Laurence Robel, Pr Catherine Rolland, Dr Marie Schoenberger, Dr Sylvie Serret, Dr Sandrine Sonié, Pr Mario Speranza, and Dr Stéphanie Vespirini.
AB was involved in the study design and methods, data collection, interpretation of results, writing, and revision of the initial draft. CM, CR and MCP were involved in data analysis, interpretation of results, writing, and revision of the draft. KM was involved in the interpretation, writing, and revision of the draft. All the authors have critically revised this article and approved the final version to be published.
This research received support from the French Health Ministry (DGOS) and Caisse Nationale de Solidarité pour l’Autonomie (CNSA). Additional support was provided by the CHU of Montpellier (AOI).
Compliance with Ethical Standards
Conflict of interest
The authors declare that they have no conflict of interest.
This study was approved by the Medical ethical committee and the National Commission for Computing and Liberties (CNIL: DR-2015-393).
Informed consent was obtained from all individual participants included in the study.
- Achenbach, T. M., & Rescorla, L. A. (2000). Manual for the ASEBA preschool forms and profiles. Burlington, VT: University of Vermont, Research center for children, youth, & families.Google Scholar
- Achenbach, T. M., & Rescorla, L. A. (2001). Manual for the ASEBA school-age forms & profiles: An integrated system of multi-informant assessment (p. 1617). Burlington, VT: University of Vermont. Research Center for Children, Youth, & Families.Google Scholar
- Aman, M. G., Singh, N. N., Stewart, A. W., & Field, C. J. (1985). The aberrant behavior checklist: A behavior rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89(5), 485–491.Google Scholar
- Arceneaux, M. C., & Murdock, J. Y. (1997). Peer prompting reduces disruptive vocalizations of a student with developmental disabilities in a general eighth-grade classroom. Focus on Autism and Other Developmental Disabilities, 12(3), 182–186. https://doi.org/10.1177/108835769701200307.CrossRefGoogle Scholar
- Ashburner, J., Bennett, L., Rodger, S., & Ziviani, J. (2013). Understanding the sensory experiences of young people with autism spectrum disorder: A preliminary investigation. Australian Occupational Therapy Journal, 60(3), 171–180. https://doi.org/10.1111/1440-1630.12025.CrossRefPubMedGoogle Scholar
- Baghdadli, A., Miot, S., Rattaz, C., Akbaraly, T., Geoffray, M.-M., Michelon, C., et al. (2019). Investigating the natural history and prognostic factors of ASD in children: The multicEntric Longitudinal study of childrEN with ASD—The ELENA study protocol. British Medical Journal Open, 9(6), e026286. https://doi.org/10.1136/bmjopen-2018-026286.CrossRefGoogle Scholar
- Bogdashina, O. (2006). Autistic accounts of sensory-perceptual experiences: Should we listen? Good Autism Practice, 7(1), 3–12.Google Scholar
- CNSA (2011). Etude des modalités d’accompagnement des personnes avec troubles envahissants du développement dans trois regions françaises.Google Scholar
- Dellapiazza, F., Michelon, C., Oreve, M.-J., Robel, L., Schoenberger, M., Chatel, C., et al. (2019). The impact of atypical sensory processing on adaptive functioning and maladaptive behaviors in autism spectrum disorder during childhood: Results from the ELENA cohort. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-03970-w.CrossRefPubMedGoogle Scholar
- Dunn, W. (1999). The sensory profile manual. San Antonio, TX: Psychological Corporation.Google Scholar
- Kurth, J. A., Born, K., & Love, H. (2016). Ecobehavioral characteristics of self-contained high school classrooms for students with severe cognitive disability. Research and Practice for Persons with Severe Disabilities, 41(4), 227–243. https://doi.org/10.1177/1540796916661492.CrossRefGoogle Scholar
- Kurth, J. A., & Mastergeorge, A. M. (2010). Academic and cognitive profiles of students with autism: Implications for classroom practice and placement. International Journal of Special Education, 25(2), 8–14.Google Scholar
- Preece, D., & Howley, M. (2018). An approach to supporting young people with autism spectrum disorder and high anxiety to re-engage with formal education—The impact on young people and their families. International Journal of Adolescence and Youth, 23(4), 468–481. https://doi.org/10.1080/02673843.2018.1433695.CrossRefGoogle Scholar
- Rattaz, C., Ledesert, B., Masson, O., Ouss, L., Ropers, G., & Baghdadli, A. (2013a). État des lieux des pratiques d’accompagnement sanitaire et médico-social des personnes avec troubles envahissants du développement (TED) dans trois régions françaises. Neuropsychiatrie de l’enfance et de l’adolescence, 61(1), 31–38. https://doi.org/10.1016/j.neurenf.2012.10.001.CrossRefGoogle Scholar
- Rattaz, C., Ledesert, B., Masson, O., Ouss, L., Ropers, G., & Baghdadli, A. (2013b). ). La scolarisation des enfants avec Troubles du spectre autistique (TSA) en France: l’expérience d’enseignants en classe ordinaire et spécialisée. La Nouvelle Revue de l’Adaptation et de la Scolarisation. https://doi.org/10.3917/nras.064.0255.CrossRefGoogle Scholar
- Smith, P. (2007). Have we made any progress? Including students with intellectual disabilities in regular education classrooms. Intellectual and Developmental Disabilities, 45(5), 297–309. https://doi.org/10.1352/0047-6765(2007)45%5b297:HWMAPI%5d2.0.CO;2.CrossRefPubMedGoogle Scholar
- Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (1984). The Vineland Adaptive Behavior Scales. Circle Pines, MN: America Guidance Service.Google Scholar
- Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (2005). Vineland II: Vineland adaptive behavior scales. Circle Pines, MN: American Guidance Service.Google Scholar
- Sterling-Turner, H. E., Robinson, S. L., & Wilczynski, S. M. (2001). Functional assessment of distracting and disruptive behaviors in the school setting. School Psychology Review, 30(2), 211–226.Google Scholar
- Stern, W. (1912). The psychological methods of intelligence testing. G. Whipple, Trans.). Baltimore: Warwick and York.Google Scholar
- Towle, P. O., Vacanti-Shova, K., Higgins-D’Alessandro, A., Ausikaitis, A., & Reynolds, C. (2018). A longitudinal study of children diagnosed with autism spectrum disorder before age three: School services at three points time for three levels of outcome disability. Journal of Autism and Developmental Disorders, 48(11), 3747–3760. https://doi.org/10.1007/s10803-018-3606-x.CrossRefPubMedGoogle Scholar
- Woodman, A. C., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2016). Contextual factors predict patterns of change in functioning over 10 years among adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(1), 176–189. https://doi.org/10.1007/s10803-015-2561-z.CrossRefPubMedPubMedCentralGoogle Scholar