The Experiences of College Students on the Autism Spectrum: A Comparison to Their Neurotypical Peers
This study describes the academic, social, and health experiences of college students on the autism spectrum as they compare to students with other disabilities and their non-disabled, neurotypical peers. Data were from an online survey of college students at 14 public institutions (N = 3073). There were few significant differences between students on the spectrum and students with other disabilities. Both groups of students reported significantly worse outcomes than neurotypical students on academic performance, social relationships and bullying, and physical and mental health. The findings suggest that some of the challenges students on the spectrum face in college result from the stigma and social rejection associated with disability rather than from the unique characteristics of autism.
KeywordsHigh-functioning autism Postsecondary education
We acknowledge the financial support of the Indiana University Sociological Research Practicum and the Indiana University Bloomington Office of the Vice Provost for Research.
JDM conceived of the study, oversaw the design and implementation of the analysis, and drafted the manuscript. EM served as project director for the data collection, participated in the design of the analysis, and helped to draft the manuscript. AH participated in the data collection and in the design of the analysis and helped to draft the manuscript. All authors read and approved the final manuscript.
This study was funded by the Indiana University Department of Sociology and the Indiana University Office of the Vice Provost for Research Faculty Research Support Program.
Compliance with Ethical Standards
Conflict of interest
All authors declares that they have no conflict of interest.
All procedures performed in this study were in accordance with the Ethical Standards of the Institutional and/or National Research Committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.
Informed consent was obtained from all individual participants included in the study.
- American Association for Public Opinion Research. (2016). Standard definitions: Final dispositions of case codes and outcome rates for surveys (9th ed.). AAPOR.Google Scholar
- American College Health Association. (2008). American College Health Association–National College health assessment: Reference group data report, spring 2008. Baltimore, MD: American College Health Association.Google Scholar
- Ancis, J. R., Sedlacek, W. E., & Mohr, J. J. (2000). Student perceptions of campus cultural climate by race. Journal of Counseling and Development, 78(2), 180–185.Google Scholar
- Anderson, A. H., Carter, M., & Stephenson, J. (2018). Perspectives of university students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 651–665.Google Scholar
- Anderson, K. A., McDonald, T. A., Edsall, D., Smith, L. E., & Taylor, J. L. (2016). Postsecondary expectations of high-school students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 31(1), 16–26.Google Scholar
- Andreon, D., & Durocher, J. S. (2007). Evaluating the college transition needs of individuals with high-functioning autism spectrum disorders. Intervention in School and Clinic, 42(5), 271–279.Google Scholar
- Ashbaugh, K., Koegel, R., & Koegel, L. (2017). Increasing social integration for college students with autism spectrum disorder. Behavioral Development Bulletin, 22(1), 183–196.Google Scholar
- Astin, A. W. (1999). Student involvement: A developmental theory for higher education. Journal of College Student Development, 40(5), 518–529.Google Scholar
- Barneveld, P. S., Swaab, J., Fagel, S., van Engeland, H., & Sonneville, L. M. J. (2014). Quality of life: A case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood. Comprehensive Psychiatry, 55, 302–310.Google Scholar
- Barnhill, G. (2016). Supporting students with Asperger syndrome on college campuses: Current practices. Focus on Autism and Other Developmental Disabilities, 31(1), 3–15.Google Scholar
- Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J., & Clubley, E. (2001). The Autism-Spectrum Quotient (AQ): Evidence from Asperger Syndrome/High-Functioning Autism, males and females, scientists and mathematicians. Journal of Autism and Developmental Disorders, 31(1), 5–17. https://doi.org/10.1023/A:1005653411471.Google Scholar
- Blaich, C., & Wise, K. (2011). From gathering to using assessment results: Lessons from the Wabash national study. NILOA Occasional Paper No. 8. Urbana, IL: University of Illinois and Indiana University, National Institute for Learning Outcomes Assessment.Google Scholar
- Bråthen, G., Brodtkorb, E., Heide, G., Sand, T., & Bovim, G. (2003). The diversity of seizures related to alcohol use: A study of consecutive patients. European Journal of Neurology, 6(6), 697–703.Google Scholar
- Brown-Lavoie, S. M., Viecili, M. A., & Weiss, J. A. (2014). Sexual knowledge and victimization in adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, 2185–2196.Google Scholar
- Buboltz, W. C. Jr., Brown, F., & Soper, B. (2001). Sleep habits and patterns of college students: A preliminary study. Journal of American College Health, 50(3), 131–135.Google Scholar
- Cantor, D., Fisher, B., Chibnall, W., Townsend, R., Lee, H., Bruce, C., & Thomas, G. (2017). Report on the AAU campus climate survey on sexual assault and sexual misconduct. Rockville, MD: Westat.Google Scholar
- Centers for Disease Control and Prevention. (2011). Sexual identity, sex of sexual contacts, and health-risk behaviors among students in grades 9–12—youth risk behavior surveillance, selected sites, United States, 2001–2009. MMWR, 60(7).Google Scholar
- Cox, B. E., Thompson, K., Anderson, A., Mintz, A., Locks, T., Morgan, L., Edelstein, J., & Wolz, A. (2017). College experiences for students with autism spectrum disorder: Personal identity, public disclosure, and institutional support. Journal of College Student Development, 58(1), 71–87. https://doi.org/10.1080/07448480109596017.Google Scholar
- De Alwis, D., Agrawal, A., Reiersen, A. M., Constantino, J. N., Henders, A., Martin, N. G., & Lynskey, M. T. (2014). ADHD symptoms, autistic traits, and substance use and misuse in adult Australian twins. Journal of Studies on Alcohol and Drugs, 75(2), 211–221. https://doi.org/10.15288/jsad.2014.75.211.Google Scholar
- De Vries, A. L. C., Noens, I. L. J., Cohen-Kettenis, P. T., Berckelaer-Onnes, I. W., & Doreleijers, T. A. (2010). Autism spectrum disorders in gender dysphoric children and adolescents. Journal of Autism and Developmental Disorders, 40, 930–936.Google Scholar
- Deil-Amen, R. (2015). The “traditional” college student: A smaller and smaller minority and its implications for diversity and access institutions. In M. W. Kirst & M. Stevens (Eds.), Remaking college: The changing ecology of higher education (pp. 134–165). Stanford: Stanford University Press.Google Scholar
- Dipeolu, A. O., Storlie, C., & Johnson, C. (2014). Transition to college and students with high functioning autism spectrum disorder: Strategy considerations for school counselors. Journal of School Counseling, 12(11). https://eric.ed.gov/?id=EJ1034736.
- Drum, D. J., Brownson, C., Denmark, B., A., & Smith, S. E. (2009). New data on the nature of suicidal crises in college students: Shifting the paradigm. Professional Psychology: Research and Practice, 40(3), 213–222.Google Scholar
- Fleury, V. P., Hedges, S., Hume, K., Browder, D. M., Thompson, J. L., Fallin, K., Ed Zein, F., Reutebech, C. K., & Vaughn, S. (2014). Addressing the academic needs of adolescents with autism spectrum disorder in secondary education. Remedial and Special Education, 35(2), 68–79.Google Scholar
- Fosnacht, K., Sarraf, S., How, E., & Peck, L. K. (2017). How important are high response rates for college surveys? The Review of Higher Education, 40(2), 245–265.Google Scholar
- Gelbar, N. W., Shefcyk, A., & Reichow, B. (2015). A comprehensive survey of current and former college students with autism spectrum disorders. The Yale Journal of Biology and Medicine, 88(1), 45–68.Google Scholar
- Gelbar, N. W., Smith, I., & Reichow, B. (2014). Systematic review of articles describing experience and supports of individuals with autism enrolled in college and university programs. Journal of Autism and Developmental Disorders, 44(10), 2593–2601. https://doi.org/10.1007/s10803-014-2135-5.Google Scholar
- Gillespie-Lynch, K., Brooks, P. J., Someki, F., Obeid, R., Shane-Simpson, C., Kapp, S. K., Daou, N., & Smith, D. S. (2015). Changing college students’ conceptions of autism: An online training to increase knowledge and decrease stigma. Journal of Autism and Developmental Disorders, 45(8), 2553–2566. https://doi.org/10.1007/s10803-015-2422-9.Google Scholar
- Gotham, K., Marvin, A. R., Taylor, J., Warren, Z., Anderson, C. M., Law, P. A., Law, J. K., & Lipkin, P. H. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 19(7), 794–804.Google Scholar
- Harris, K. M., & Udry, J. R. National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994–2008 [Public Use]. Ann Arbor, MI: Carolina Population Center, University of North Carolina-Chapel Hill [distributor], Inter-university Consortium for Political and Social Research [distributor], 2018-08-06. https://doi.org/10.3886/ICPSR21600.v21.
- Hart, D., Grigal, M., & Weir, C. (2010). Expanding the paradigm: Postsecondary education options for individuals with autism spectrum disorder and intellectual disabilities. Focus on Autism and Other Developmental Disabilities, 25(2), 134–150.Google Scholar
- Henderson, C. (2001). College freshmen with disabilities, 2001: A biennial statistical profile. Washington, DC: Department of Education.Google Scholar
- Hewitt, L. E. (2011). Perspectives on support needs of individuals with autism spectrum disorders: Transition to college. Topics in Language Disorders, 31(3), 273–285.Google Scholar
- Holwerda, A., van der Klink, J. J. L., Groothoff, J. W., & Brouwer, S. (2012). Predictors for work participation in individuals with an autism spectrum disorder: A systematic review. Journal of Occupational Rehabilitation, 22, 333–352.Google Scholar
- Hunt, J., & Eisenberg, D. (2010). Mental health problems and help-seeking behaviors among college students. Journal of Adolescent Health, 46(1), 3–10.Google Scholar
- Hurtado, S., & Carter, D. (1997). Effects of college transition and perceptions of the campus racial climate on Latina/o college students’ sense of belonging. Sociology of Education, 70, 324–345.Google Scholar
- Jackson, S. L. J., Hart, L., Brown, J. T., & Volkmar, F. R. (2018). Brief report: Self-reported academic, social, and mental health experiences of post-secondary students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 643–650.Google Scholar
- Julian, T. (2011). Work-life earnings by field of degree and occupation for people with a Bachelor’s degree: 2011. American Community Survey. U.S. Census Bureau.Google Scholar
- Kessler, R. C., Berglund, P., Chiu, W. T., Demler, O., Heeringa, S., Hiripi, E., Jin, R., Pennell, B., Walters, E. E., Zaslavsky, A., & Zheng, H. (2004). The US National Comorbidity Survey Replication (NCS-R): Design and field procedures. International Journal of Methods in Psychiatric Research, 13(2), 69–92. https://doi.org/10.1002/mpr.167.Google Scholar
- Kuh, G. D. (2008). High-impact educational practices: What they are, who has access to them, and why they matter. Washington, DC: Association of American Colleges and Universities.Google Scholar
- Lamis, D. A., & Lester, D. (2013). Gender differences in risk and protective factors for suicidal ideation among college students. Journal of College Student Psychotherapy, 27, 62–77.Google Scholar
- Lawrence, D. H., Alleckson, D. A., & Bjorklund, P. (2010). Beyond the roadblocks: Transitioning to adulthood with Asperger’s Disorder. Archives of Psychiatric Nursing, 24(4), 227–238.Google Scholar
- Link, B., & Phelan, J. (2001). Conceptualizing stigma. Annual Review of Sociology, 27(1), 63–85.Google Scholar
- Longtin, S. E. (2014). Using the college infrastructure to support students on the autism spectrum. Journal of Postsecondary Education and Disability, 27(1), 63–72. https://eric.ed.gov/?id=EJ1029568.
- Lorenc, T., Rodgers, M., Marshall, D., Melton, J., Rees, R., Wright, K., & Sowden, A. (2018). Support for adults with autism spectrum disorder without intellectual impairment: Systematic review. Autism, 22(6), 654–668.Google Scholar
- Lucas, R., & James, A. I. (2018). An evaluation of specialist mentoring for university students with autism spectrum disorders and mental health conditions. Journal of Autism and Developmental Disorders, 48, 694–707.Google Scholar
- Mason, R. A., Williams, D. L., Kana, R. K., Minshew, N., & Just, M. A. (2008). Theory of Mind disruption and recruitment of the right hemisphere during narrative comprehension in autism. Neuropsychologia, 46, 269–280.Google Scholar
- McKeon, B., Alpern, C. S., & Zager, D. (2013). Promoting academic engagement for college students with autism spectrum disorder. Journal of Postsecondary Education and Disability, 26(4), 353–366. https://eric.ed.gov/?id=EJ1026894.
- Moore, E. J., & Schelling, A. (2015). Postsecondary inclusion for individuals with an intellectual disability and its effects on employment. Journal of Intellectual Disabilities, 19(2), 130–148.Google Scholar
- Nation, K., Clarke, P., Wright, B., & Williams, C. (2006). Patterns of reading ability in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 36(7), 911–919.Google Scholar
- National Institute on Alcohol Abuse and Alcoholism. (n.d.). Drinking levels defined. Retrieved January 2, 2019, from https://www.niaaa.nih.gov/alcohol-health/overview-alcohol-consumption/moderate-binge-drinking.
- National Survey of Student Engagement. (2017). NSSE 2017 U.S. engagement indicator descriptive statistics by Carnegie classification. Retrieved October 25, 2018, from http://nsse.indiana.edu/2017_institutional_report/pdf/EngagementIndicators/EI%20-%20SR%20by%20Carn.pdf.
- National Survey of Student Engagement. (n.d.). Psychometric portfolio. Retrieved October 25, 2018, from http://nsse.indiana.edu/html/psychometric_portfolio.cfm.
- Newman, L., Wagner, M., Knokey, A.-M., Marder, C., Nagle, K., Shaver, D., Wei, X., Cameto, R., Contreras, E., Ferguson, K., Greene, S., & Schwarting, M. (2011). The post-high school outcomes of young adults with disabilities up to 8 years after high school. A report from the National Longitudinal Transition Study-2 (NLTS2). NCSER 2011-3005. Menlo Park, CA: SRI International, New York: Springer.Google Scholar
- Newschaffer, C. J., Croen, L. A., Daniels, J., Giarelli, E., Grether, J. K., Levy, S. E., Mandell, D. S., Miller, L. A., Pinto-Martin, J., Reaven, J., Reynolds, A. M., Rice, C. E., Schendel, D., & Windham, G. C. (2007). The epidemiology of autism spectrum disorders. Annual Review of Public Health, 28, 235–258.Google Scholar
- Nunley, J. M., Pugh, A., Romero, N., & Seals, R. A. (2017). The effects of unemployment and underemployment on employment opportunities: Results from a correspondent audit of the labor market for college graduates. ILR Review, 70(3), 642–669.Google Scholar
- Powers, K., Hogansen, J., Geenen, S., Power, L. E., & Gil-Kashiwabara, E. (2008). Gender matters in transition to adulthood: A survey study of adolescents with disabilities and their families. Psychology in the Schools, 45(4), 349–364.Google Scholar
- Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401.Google Scholar
- Reichard, A., Stolzle, H., & Fox, M. H. (2011). Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States. Disability and Health Journal, 4, 59–67.Google Scholar
- Richa, S., Fahed, M., Khoury, E., & Mishara, B. (2014). Suicide in autism spectrum disorders. Archives of Suicide Research, 18(4), 327–339.Google Scholar
- Roberts, K. D. (2010). Topic areas to consider when planning transition from high school to postsecondary education for students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 25(3), 158–162.Google Scholar
- Rosenberg, R. E., Kaufmann, W. E., Law, J. K., & Law, P. A. (2011). Parent report of community psychiatric comorbid diagnoses in autism spectrum disorders. Autism Research and Treatment, article ID 405849. https://doi.org/10.1155/2011/405849.
- Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M., & Narendorf, S. C. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52(9), 931–939.Google Scholar
- Sanford, C., Newman, L., Wagner, M., Cameto, R., Knokey, A.-M., & Shaver, D. (2011). The post-high school outcomes of young adults with disabilities up to 6 years after high school: Key findings from the National Longitudinal Transition Study-2 (NLTS2). NCSER 2011-3004. National Center for Special Education Research.Google Scholar
- Schäfer, M., Korn, S., Smith, P. K., Hunter, S. C., Mora-Merchán, J. A., Singer, M. M., & Van der Meulen, K. (2004). Lonely in the crowd: Recollections of bullying. British Journal of Developmental Psychology, 22(3), 379–394.Google Scholar
- Taylor, J. L., Henninger, N. A., & Mailick, M. R. (2015). Longitudinal patterns of employment and postsecondary education for adults with autism and average-range IQ. Autism, 19(7), 785–793.Google Scholar
- Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574.Google Scholar
- Tinto, V. (1998). Colleges as communities: Taking research on student persistence seriously. The Review of Higher Education, 21(2), 167–177.Google Scholar
- Tsatsanis, K. D. (2004). Heterogeneity in learning style in Asperger syndrome and high-functioning autism. Topics in Language Disorders, 24(4), 260–270.Google Scholar
- Volkmar, F. R., & Nelson, D. S. (1990). Seizure disorders in autism. Journal of the American Academy of Child and Adolescent Psychiatry, 29(1), 127–129.Google Scholar
- Volkmar, F. R., Reichow, B., & McPartland, J. C. (2014). Introduction to adolescents and adults with autism spectrum Disorders. In F. R. Volkmar, B. Reichow & J. C. McPartland (Eds.), Adolescents and adults with autism spectrum disorders. New York: Springer.Google Scholar
- Walsh, L., Lydon, S., & Healy, O. (2014). Employment and vocational skills among individuals with autism spectrum disorder: Predictors, impact, and interventions. Journal of Autism and Developmental Disorders, 1, 266–275.Google Scholar
- Wehman, P., Schall, C., Carr, S., Targett, P., West, M., & Cifu, G. (2014a). Transition from school to adulthood for youth with autism spectrum disorder: What we know and what we need to know. Journal of Disability Policy Studies, 25(1), 30–40. https://doi.org/10.1177/1044207313518071.Google Scholar
- Wehman, P. T., Schall, C. M., McDonough, J., Kregel, J., Brooke, V., Molinelli, A., Ham, W., Graham, C. W., Riehle, J. E., Collins, H. T., & Thiss, W. (2014b). Competitive employment for youth with autism spectrum disorders: Early results from a randomized clinical trial. Journal of Autism and Developmental Disorders, 44, 487–500.Google Scholar
- Wei, X., Christiano, E. R. A., Yu, J. W., Blackorby, J., Shattuck, P., & Newman, L. A. (2014). Postsecondary pathways and persistence for STEM versus non-STEM majors: Among college students with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 1159–1167.Google Scholar
- Weiss, A. L., & Rohland, P. (2015). Implementing a communication coaching program for students with autism spectrum disorders in postsecondary education. Topics in Language Disorders, 35(4), 345–361.Google Scholar
- Wheeler, M. (2005). Social activity groups: Another approach for helping to bridge the friendship gap. The Reporter, 10(3), 8–9, 19.Google Scholar
- White, S. W., Elias, R., Capriola-Hall, N. N., Smith, I. C., Conner, C. M., Asselin, S. B., Howlin, P., Getzel, E. E., & Mazefsky, C. A. (2017). Development of a college transition and support program for students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 3072–3078.Google Scholar
- Zager, D., & Alpern, C. S. (2010). College-based inclusion programming for transition-age students with autism, college-based inclusion programming for transition-age students with autism. Focus on Autism and Other Developmental Disabilities, 25(3), 151–157. https://doi.org/10.1177/1088357610371331.Google Scholar
- Zapata-Geitl, C., Rosenbaum, J. E., Ahearn, C., & Becker, K. I. (2016). College for all: New institutional conflicts in the transition to adulthood. In M. J. Shanahan, J. T. Mortimer, & M. K. Johnson (Eds.) Handbook of the life course (Vol. II). Cham: Springer.Google Scholar