Journal of Autism and Developmental Disorders

, Volume 45, Issue 12, pp 4002–4014 | Cite as

A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System

  • Ousseny Zerbo
  • Maria L. Massolo
  • Yinge Qian
  • Lisa A. Croen
S.I. : ASD in Adulthood: Comorbidity and Intervention

Abstract

We conducted an online survey of adult health care providers at Kaiser Permanente Northern California and semi-structured interviews with a subset of physicians. The survey assessed providers’ ability to recognize autism spectrum disorder (ASD), asked them to rate their autism knowledge, comfort level in treating affected patients, and evaluated training and resource needs. 922 providers completed the survey (response rate 25.3 %), and 9 were interviewed by telephone regarding their autism training and experiences caring for patients with autism. Most providers reported lacking skills and tools to care for this adult patient population. A high proportion of adult providers were not aware that they had patients with ASD. These findings underscore the need to educate physicians caring for adults with ASD.

Keywords

Adults Survey Autism spectrum disorder Healthcare providers Knowledge 

Notes

Acknowledgments

The authors thank the members of the KPNC ASD in Adults Workgroup for their valuable insights and generous input regarding study design, data analysis, and interpretation of study results. No compensation was received for these contributions. The members include Lisa Croen, PhD, Stephen Rich, MD, Scott Rich, MA, Opal Thornton, MD, Clarissa Kripke, MD, Agnes Amistoso, MA, Elizabeth Dixon, LCSW, Chuck Trumble, MFT, Stephen Sidney, MD, Ousseny Zerbo, PhD, Maria Massolo, PhD, Carmen Ancinas-Gee, MFT and Neeraja Maramreddy, MD. The authors also appreciate the feedback received from Joe Gallo, MD, Meghan Davignon, MD, Thomas Weisner, PhD, and Britt Dalhberg, ABD.

Author contribution

Drs. Croen, Massolo and Zerbo conceptualized the study, obtained funding, and drafted the initial and final manuscript. Dr. Qian provided data management.

Funding

This study was funded by grants from the Special Hope Foundation.

Compliance with Ethical Standards

Conflict of interest

The authors declare that they have no conflict of interest.

Informed consent

Informed consent was obtained from all individual participants included in the study.

Ethical approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

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Copyright information

© Springer Science+Business Media New York 2015

Authors and Affiliations

  • Ousseny Zerbo
    • 1
  • Maria L. Massolo
    • 1
  • Yinge Qian
    • 1
  • Lisa A. Croen
    • 1
  1. 1.Division of ResearchKaiser Permanente Northern CaliforniaOaklandUSA

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