Pediatric Healthcare Professionals’ Views on Autism Spectrum Disorder Screening at 12–18 Months
This study explored North Carolina pediatric healthcare professional’s (PHP) perceptions of screening 12–18 month old infants for Autism Spectrum Disorder (ASD). Eight focus groups (66 PHPs) were conducted across practice settings. The purpose was to explore PHP’s perspectives to: inform development of ASD screening tools and ultimately impact their use in PHP settings. PHPs reported concerns, barriers, and the need for research to support early ASD screening. Additionally, they expressed the need for: (a) clear “red flags” of ASD for 12–18 month olds; (b) socioculturally sensitive and effective screening tools; (c) effective early interventions; (d) systems to handle potential increases in referrals; and (e) continuing education. PHPs also demonstrated preferences about screening tool characteristics and processes for enhancing screening efforts.
KeywordsAutism Spectrum Disorder (ASD) Screening Infants Pediatric healthcare professionals
Pediatric healthcare professionals
Autism Spectrum Disorders
- Autism Case Training (ACT): A Developmental-Behavioral Pediatrics Curriculum by the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, and the Health Resources and Services Administration’s Maternal and Child Health Bureau. (2012). Atlanta, GA: CDC. http://www.cdc.gov/ncbddd/autism/index.html.
- Baranek, G. T., Watson, L. R., Crais, E., & Reznick, S. (2003). First year inventory (FYI) 2.0. Chapel Hill: University of North Carolina.Google Scholar
- Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, 14 Sites, United States, 2008. MMWR, 61(No. SS-3).Google Scholar
- Earls, M. F., & Hay, S. S. (2006). Setting the stage for success: Implementation of developmental and behavioral screening and surveillance in primary care practice—The North Carolina Assuring Better Child Health and Development (ABCD) Project. Pediatrics, 118(1), e183–e188.PubMedCrossRefGoogle Scholar
- Faggiolani, C. (2011). Perceived identity: Applying grounded theory in libraries. Italian Journal of Library Science and Information Science, 2(1), 4592E1–4592E33.Google Scholar
- Freuler, A., Baranek, G. T., Tashjian, C., Watson, L. R., Crais, E. & Turner-Brown, L. (2013). Parental reflections of experiences of participating in a randomized control trial of a behavioral intervention for infants at-risk for ASD. Autism, The International Journal of Research and Practices. doi: 10.1177/1362361313483928.
- Kleinman, J. M., Robins, D. L., Ventola, P. E., Pandey, J., Boorstein, H. C., Esser, E. L., et al. (2008). The modified checklist for autism in toddlers: A follow-up study investigating the early detection of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 827–839.PubMedCentralPubMedCrossRefGoogle Scholar
- Krueger, R. A., & Casey, M. A. (2008). Focus groups: A practical guide for APHPlied research (4th ed.). Thousand Oaks, CA: Sage.Google Scholar
- Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29, 152–160.PubMedCrossRefGoogle Scholar
- Nassar-McMillan, S. C. & Borders, L. D. (2002). Use of focus groups in survey item development. The Qualitative Report, 7 (1). (http://www.nova.edu/ssss/QR/QR7-1/nassar.html).
- Ozonoff, S., Iosif, A. M., Baguiom, F., Cook, I. C., Hill, M. M., Hutman, T., et al. (2010). A prospective study of the emergence of early behavioral signs of autism. Journal of the American Academy of Child and Adolescent Psychiatry, 49(3), 256.e2–266.e2.Google Scholar
- Robins, D. L., Fein, D., Barton, M. L., & Green, J. A. (2001). The modified checklist for autism in toddlers: An initial study investigating the early detection of autism and pervasive developmental disorders. Journal of Autism and Developmental Disorders, 31(2), 131–144.PubMedCrossRefGoogle Scholar
- Scientific Software Development. (2009). ATLAS.ti version 6.2.Google Scholar
- Shattuck, P. T., Durkin, M., Maenner, M., Newschaffer, C., Mandell, D., Wiggins, L., et al. (2009). Timing of identification among children with autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child and Adolescent Psychiatry, 48(5), 474–482.PubMedCentralPubMedCrossRefGoogle Scholar
- Strauss, A. L. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage Publications.Google Scholar
- Van Naarden Braun, K., Pettygrove, S., Daniels, J., Miller, L., Nicholas, J., Baio, J., et al. (2007). Evaluation of a methodology for a collaborative multiple source surveillance network for autism spectrum disorders, Autism and Developmental Disabilities Monitoring Network, 14 sites, 2002, Centers for Disease Control and Prevention, United States. MMWR Surveillance Summaries, 56(1), 29–40.Google Scholar
- Watson, L. R., Crais, E. R., Baranek, G. T., Dykstra, K., & Wilson, K. (2013). Communicative gesture use in infants with and without autism: A retrospective home video study. Journal of Speech, Language, and Hearing Research. American Journal of Speech-Language Pathology, 22, 25–39.CrossRefGoogle Scholar
- Wetherby, A., & Prizant, B. (2002). Communication and symbolic behavior scales developmental profile—First Normed edition. Baltimore, MD: Paul H. Brookes.Google Scholar