Journal of Autism and Developmental Disorders

, Volume 44, Issue 6, pp 1275–1287 | Cite as

Evaluating Autism Diagnostic and Screening Tools for Cultural and Linguistic Responsiveness

Original Paper

Abstract

While clear guidelines and best practices exist for the assessment of autism spectrum disorders (ASD), little information is available about assessing for ASD in culturally and linguistically diverse (CLD) populations. CLD populations might be misidentified and under-identified with ASD due to the assessment practices that we employ. Four autism diagnostic tools and six autism screeners were selected and evaluated for their cultural and linguistic responsiveness. Although the evaluation of ASD within CLD populations is highly complex, this study identified the need for improved autism assessment tools and practices. Without the appropriate assessment of these populations, CLD children will likely continue to be misidentified (or not identified at all) and will miss crucial intervention opportunities.

Keywords

Autism Diagnostic assessment Screening Diverse populations 

References

  1. Abedi, J., Bailey, A., Butler, F., Castellon-Wellington, M., Leon, S., & Mirocha, J. (2005). The validity of administering large-scale content assessments to English language learners: An investigation from three perspectives (CSE report 663). Los Angeles, CA: University of California, Center for Research on Evaluation Standards and Student Testing.Google Scholar
  2. Allen, R. A., Robins, D. L., & Decker, S. L. (2008). ASD spectrum disorders: Neurobiology and current assessment practices. Psychology in the Schools, 45(10), 905–917.CrossRefGoogle Scholar
  3. Allison, C., Baron-Cohen, S., Wheelwright, S., Charman, T., Richler, J., & Brayne, C. (2008). The quantitative checklist for autism in toddlers (Q-CHAT): Psychometric properties. Journal of Autism and Developmental Disorders, 38, 1414–1425.PubMedCrossRefGoogle Scholar
  4. American Educational Research Association (AERA), American Psychological Association, & National Council of Measurement in Education. (1999). Standards for educational and psychological testing. Washington, DC: AERA.Google Scholar
  5. American Educational Research Association. (2011). Code of ethics. Educational Researcher, 40, 145–156. doi:10.3102/0013189X11410403.CrossRefGoogle Scholar
  6. American Psychological Association. (2010). Ethical principles of psychologists and code of conduct. Retrieved from: http://www.apa.org/ethics/code/index.aspx.
  7. Bagnato, S. J., & Neisworth, J. T. (1991). Assessment for early intervention: Best practices for professionals. New York, NY: Guilford.Google Scholar
  8. Bagnato, S. J., Neisworth, J. T., & Munson, S. M. (1997). LINKing assessment and early intervention: An authentic curriculum-based approach. Baltimore: Paul H. Brookes.Google Scholar
  9. Banerjee, R., & Guiberson, M. (2012). Evaluating young children from culturally and linguistically diverse backgrounds for special education services. Young Exceptional Children, 15, 33–45.CrossRefGoogle Scholar
  10. Barton, E. E., & Harris, B. (2013). ASD assessment practices: A survey of ASD evaluators (manuscript in preparation).Google Scholar
  11. Begeer, S., El Bouk, S., Boussaid, W., Terwogt, M. M., & Koot, H. M. (2009). Underdiagnosis and referral bias of autism in ethnic minorities. Journal of Autism and Developmental Disorders, 39, 142–148.PubMedCrossRefGoogle Scholar
  12. Bradley-Johnson, S. W., Johnson, C. M., & Vladescu, J. C. (2008). A comprehensive model for assessing the unique characteristics of children with autism. Journal of Psychoeducational Assessment, 26(4), 325–338.CrossRefGoogle Scholar
  13. Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.Google Scholar
  14. Cawthon, S., Highley, K., & Leppo, R. (2011). Test item modifications for English language learners: Review of the empirical literature and recommendations for practice. School Psychology Forum: Research in Practice, 5(3), 114–127.Google Scholar
  15. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(3), 1–19. Retrieved from http://www.cdc.gov/mmwr/pdf/ss/ss6103.pdf.
  16. Coonrod, E. E., & Stone, W. L. (2004). Early concerns of parents of children with autistic and nonautistic disorders. Infants and Young Children, 17, 258–268.CrossRefGoogle Scholar
  17. Daley, T. C. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science and Medicine, 58, 1323–1335.PubMedCrossRefGoogle Scholar
  18. Ehlers, S., Gillberg, C., & Wing, L. (1999). A screening questionnaire for Asperger syndrome and other high-functioning autism spectrum disorders in school age children. Journal of Autism and Developmental Disorders, 29, 129–141.PubMedCrossRefGoogle Scholar
  19. Filipek, P. A., Accardo, P. J., Baranek, G. T., Cook, E. H., Dawson, G., Gordon, B., et al. (1999). The screening and diagnosis of autistic spectrum disorders. Journal of Autism and Developmental Disorders, 29, 439–484.PubMedCrossRefGoogle Scholar
  20. Flanagan, D., Ortiz, S., & Alfonso, V. (2013). Essentials of cross-battery assessment (3rd ed.). Hoboken, NJ: Wiley.Google Scholar
  21. Gilliam, J. E. (2006). Gilliam autism rating scale (2nd ed.). Austin, TX: Pro-Ed.Google Scholar
  22. Goldstein, S., & Naglieri, J. A. (2010). Autism spectrum rating scales (ASRS). North Tonawanda, NY: Multi-Health Systems.Google Scholar
  23. Harris, B., Barton, E. E., & Albert, C. (2012). Assessing young children who are dual language learners with or at-risk for autism. In R. M. Santos, G. A. Cheatham, & L. Duran (Eds.), Young exceptional children, monograph #14: Supporting young children who are dual language learners with or at-risk for disabilities (pp. 93–114). Missoula, MT: DEC.Google Scholar
  24. Johnson, C. J., & Myers, F. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120, 1183–1215.PubMedCrossRefGoogle Scholar
  25. Kennedy, C. H. (2005). Single-case designs for educational research. Boston: Allyn & Bacon.Google Scholar
  26. Lord, C., Rutter, M., DiLavore, P., & Risi, S. (2008). Autism diagnostic observation schedule. Los Angeles, CA: Western Psychological Services.Google Scholar
  27. Mandell, D. S., Knashawn, H. M., Xie, M., Polsky, D., Stahmer, A., & Marcus, S. C. (2010). County-level variation in the prevalence of medicaid-enrolled children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 40, 1241–1246.PubMedCentralPubMedCrossRefGoogle Scholar
  28. Mandell, D. S., Listerud, J., Levy, S. E., & PintoMartin, J. A. (2002). Race differences in the age at diagnosis among medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 1447–1453.PubMedCrossRefGoogle Scholar
  29. Matson, J. L., Worley, J. A., Fodstad, J. C., Chung, K., Suh, D., Jhin, H., et al. (2011). A multinational study examining the cross cultural differences in reported symptoms of autism spectrum disorders: Israel, South Korea, the United Kingdom, and the United States of America. Research in Autism Spectrum Disorders, 5, 1598–1604.CrossRefGoogle Scholar
  30. McLean, M. (1998). Assessing young children for whom English is a second language. Young Exceptional Children, 1, 20–25.CrossRefGoogle Scholar
  31. Morrier, M. J., & Hess, K. L. (2012). Ethnic differences in autism eligibility in the United States public schools. Journal of Special Education, 46, 49–53.CrossRefGoogle Scholar
  32. Morrier, M. J., Hess, K. L., & Heflin, J. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16(1), 31–38.Google Scholar
  33. Norbury, C., & Sparks, A. (2013). Difference or disorder? Cultural issues in understanding neurodevelopmental disorders. Developmental Psychology, 49(1), 45–58.PubMedCrossRefGoogle Scholar
  34. Overton, T., Fielding, C., & Garcia de Alba, R. (2007). Differential diagnosis of Hispanic children referred for autism spectrum disorders: Complex issues. Journal of Autism and Developmental Disorders, 37, 1996–2007.PubMedCrossRefGoogle Scholar
  35. Ozonoff, S., Goodlin-Jones, B., & Solomon, M. (2005). Evidence-based assessment of autism spectrum disorders in children and adolescents. Journal of Clinical Child and Adolescent Psychiatry, 34, 523–540.CrossRefGoogle Scholar
  36. Palmer, R. F., Blanchard, S., Jean, C. R., & Mandell, D. S. (2005). School district resources and identification of children with autistic disorder. American Journal of Public Health, 95, 125–130.PubMedCentralPubMedCrossRefGoogle Scholar
  37. Rhodes, R., Ochoa, H., & Ortiz, S. (2005). Assessing culturally and linguistically diverse students: A practical guide. New York: Guilford.Google Scholar
  38. Robins, D. L., Fein, D., Barton, M. L., & Green, J. A. (2001). The modified checklist for autism in toddlers: An initial study investigating the early detection of autism and pervasive developmental disorders. Journal of Autism and Developmental Disorders, 31, 131–144.PubMedCrossRefGoogle Scholar
  39. Rutter, M., Bailey, A., & Lord, C. (2003a). Social communication questionnaire. Los Angeles, CA: Western Psychological Services.Google Scholar
  40. Rutter, M., LeCouteur, A., & Lord, C. (2003b). The autism diagnostic interview, revised (ADI-R). Los Angeles, CA: Western Psychological Services.Google Scholar
  41. Sandall, S., Hemmeter, M. L., Smith, B. J., & McLean, M. E. (2005). DEC recommended practices: A comprehensive guide for practical application in early intervention/early childhood special education. Missoula, MT: Author.Google Scholar
  42. Sattler, J. (2008). Assessment of children: Cognitive foundations (5th ed.). La Mesa, CA: Sattler.Google Scholar
  43. Schopler, E., Van Bourgondien, M. E., Wellman, G. J., & Love, S. R. (2010). CARS 2: Childhood autism rating scale (2nd ed.). United States of America: Western Psychological Services.Google Scholar
  44. Shattuck, P. T., Durkin, M., Maenner, M., Newschaffer, C., Mandell, D. S., Wiggins, L., et al. (2009). Timing of identification among children with an autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 474–483.PubMedCentralPubMedCrossRefGoogle Scholar
  45. Squires, J., Bricker, D., & Twombly, E. (2003). The ASQ-SE user’s guide for the ages and stages questionnaires: Social-emotional. Baltimore, MD: Brookes.Google Scholar
  46. Vismara, L., & Rogers, S. (2008). The early start Denver model. Journal of Early Intervention, 31, 91–108.CrossRefGoogle Scholar
  47. Zhang, J., Wheeler, J. J., & Richey, D. (2006). Cultural validity in assessment instruments for children with autism from a Chinese cultural perspective. International Journal of Special Education, 21, 109–113.Google Scholar

Copyright information

© Springer Science+Business Media New York 2013

Authors and Affiliations

  1. 1.University of Colorado DenverDenverUSA
  2. 2.University of Colorado DenverDenverUSA
  3. 3.Vanderbilt UniversityNashvilleUSA

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