Children with Disabilities are Often Misdiagnosed Initially and Children with Neuropsychiatric Disorders are Referred to Adequate Resources 30 Months Later Than Children with Other Disabilities
Disabilities in a child may lead to low self-esteem and social problems. The lives of parents and siblings are also affected. Early intervention may decrease these consequences. To promote early intervention early referral to adequate resources is essential. In a longitudinal retrospective observational study it was found that children with neuropsychiatric disorders without mental retardation were referred 30 months later than other children. Agreement between the referrer’s identification of the main disability and the habilitation center’s was low with Kappa coefficient 0.44. Whereby agreement on diagnosis between referrer and habilitation centers was low, earlier referral should be promoted.
KeywordsAsperger syndrome Attention deficit disorder with hyperactivity Autistic disorder Early diagnoses Referral and consultation Mental retardation
Financial support was given by Research and Development Council of the habilitation services of the Region Västra Götaland. Support was also given by Research and Development Council of the county Fyrbodal of the Region Västra Götaland.
Conflict of interest
This supplement was not sponsored by outside commercial interests. It was funded entirely by ECONA, Via dei Marsi, 78, 00185 Roma, Italy.
- Feldman, D. E., Swaine, B., Gosselin, J., Meshefedjian, G., & Grilli, L. (2008). Is waiting for rehabilitation services associated with changes in function and quality of life in children with physical disabilities? Physical and Occupational Therapy in Pediatrics, 28, 291–304. discussion 3.PubMedCrossRefGoogle Scholar
- Lin, J. D., Yen, C. F., Loh, C. H., Hsu, S. W., Huang, H. C., Tang, C. C., et al. (2006). A cross-sectional study of the characteristics and determinants of emergency care utilization among people with intellectual disabilities in Taiwan. Research in Developmental Disabilities, 27, 657–667.Google Scholar
- Miniscalco, C., Nygren, G., Hagberg, B., Kadesjö, B., & Gillberg, C. (2006). Neuropsychiatric and neurodevelopmental outcome of children at age 6 and 7 years who screened positive for language problems at 30 months. Developmental Medicine and Child Neurology, 48, 361–366.PubMedCrossRefGoogle Scholar
- Shonkoff, J. P., Hauser-Cram, P., Krauss, M. W., & Upshur, C. C. (1992). Development of infants with disabilities and their families: Implications for theory and service delivery. Monographs of the Society for Research in Child Development, 57(v-vi), 1–153.Google Scholar