Autism-Specific Primary Care Medical Home Intervention
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Forty-six subjects received primary medical care within an autism-specific medical home intervention (www.autismmedicalhome.com) and 157 controls received standard primary medical care. Subjects and controls had autism spectrum disorder diagnoses. Thirty-four subjects (74%) and 62 controls (40%) completed pre and post surveys. Controlling for pre-survey medical home status, subjects had 250% greater odds of receipt of a medical home at the study end compared to controls (p = 0.021). Compared to controls, subjects receiving the intervention reported significantly more satisfaction (p = 0.0004), greater shared decision making (p = 0.0005) and fewer unmet needs (p = 0.067). However, subjects reported no change in family stress (p = 0.204).
KeywordsAutism Medical home Care coordination Primary care
Autism spectrum disorder
Children with special health care needs
- Agency for Healthcare Research and Quality, United States Department of Health and Human Services (2010) CAPS Survey and Tools to Advance Patient Centered Care. Retrieved August 2011 from www.cahps.ahrq.gov/default.asp.
- Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs: National Survey of Children’s Health. Archives of Pediatrics and Adolescent Medicine, 161, 399–405.PubMedCrossRefGoogle Scholar
- CDC. (2009). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, United States, 2006. MMWR Surveillance Summaries, 58, 1–20.Google Scholar
- U.S. Census. (2000). Public Law 94-171 and Summary File 1. Retrieved August 2011 from www.crcworks.org/hennepin/censusrace.htm.
- Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122, e1149–e1158.PubMedCrossRefGoogle Scholar
- Roter, D. L., & Hall, J. A. (1992). Doctors talking with patients, patients talking with doctors. Dover, MA: Aburn House.Google Scholar
- Shadish, W. R. (2001). Experimental and quasi-experimental designs for generalized causal inference (2nd ed.). England: Wadsworth Publishing.Google Scholar
- Autism Speaks. (2009). Interactive Autism Network Research Report: Family Stress—Part 1. Retrieved August 2011 from www.iancommunity.org/cs/ian_research_reports/ian_research_report_april_2009.
- Tuckett, D., Boulton, M., Olson, I., & Williams, A. (1985). Meetings between experts: an approach to sharing ideas in medical consultations. London, England: Travistock Publications.Google Scholar