Journal of Autism and Developmental Disorders

, Volume 40, Issue 2, pp 139–148 | Cite as

Validity of Childhood Autism in the Danish Psychiatric Central Register: Findings from a Cohort Sample Born 1990–1999

  • Marlene B. Lauritsen
  • Meta Jørgensen
  • Kreesten M. Madsen
  • Sanne Lemcke
  • Susanne Toft
  • Jakob Grove
  • Diana E. Schendel
  • Poul Thorsen
Original paper

Abstract

The purpose of this study was to assess the validity of the diagnosis of childhood autism in the Danish Psychiatric Central Register (DPCR) by reviewing medical records from 499 of 504 total children with childhood autism born 1990–1999. Based on review of abstracted behaviors recorded in case records from child psychiatric hospitals, case status determination was performed using a standardized coding scheme. In 499 children diagnosed with childhood autism in the DPCR, the diagnosis could be confirmed in 469 children (94%). Of the 30 non-confirmed cases, five were classified by the reviewers as non-autistic cases and the remaining 25 cases were either classified with another ASD diagnosis or the specific diagnosis was not possible to determine.

Keywords

Quality Validity Autism Diagnosis Population register 

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Copyright information

© Springer Science+Business Media, LLC 2009

Authors and Affiliations

  • Marlene B. Lauritsen
    • 1
    • 2
  • Meta Jørgensen
    • 2
  • Kreesten M. Madsen
    • 3
  • Sanne Lemcke
    • 1
  • Susanne Toft
    • 1
    • 2
  • Jakob Grove
    • 1
  • Diana E. Schendel
    • 4
  • Poul Thorsen
    • 1
  1. 1.NANEA at Department of Epidemiology and Social Medicine, Institute of Public HealthUniversity of AarhusAarhusDenmark
  2. 2.Regional Centre for Child and Adolescent PsychiatryAarhus University HospitalRisskovDenmark
  3. 3.Department of Epidemiology and Social Medicine, Institute of Public HealthUniversity of AarhusAarhusDenmark
  4. 4.Centers for Disease Control and PreventionAtlantaUSA

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