Characteristics of Children with Autistic Spectrum Disorders Served in Comprehensive Community-based Mental Health Settings

  • David S. Mandell
  • Christine M. Walrath
  • Brigitte Manteuffel
  • Gina Sgro
  • Jennifer Pinto-Martin
Article

Abstract

This study describes the characteristics of children with autistic spectrum disorders (ASD) receiving treatment in community mental health settings. Data from a national community mental health initiative was used to identify children who had received a primary diagnosis of ASD. These children were compared with children with other diagnoses on socio-demographic and psychosocial characteristics, presenting problems and service histories. Regardless of diagnosis, children were most often referred to service because of disruptive behaviors. Children with ASD were less likely to be referred for drug use, truancy or running away, but were more likely to be referred for social interaction difficulties and strange behavior. Many children had family histories of mental illness, substance abuse and domestic violence. Implications of these findings are discussed in detail.

Keywords

Autism asperger’s disorder child abuse community mental health services behavioral disorders 

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References

  1. Aman, M., Langworthy, K. 2000Pharmacotherapy for hyperactivity in children with autism and other pervasive developmental disordersJournal of Autism & Developmental Disorders30451459Google Scholar
  2. Ammerman, R., Hersen, M., Hesselt, V., Lubetsky, M., Sieck, W. 1994Maltreatment in psychiatricaly hospitalized children and adolescents with developmental disabilities: prevalence and correlatesJournal of the American Academy of Child & Adolescent Psychiatry33567576Google Scholar
  3. Ammerman, R., Van Hasselt, V., Hersen, M., McGonigle, J., Lubetsky, M. 1989Abuse and neglect in psychiatrically hospitalized multihandicapped childrenChild Abuse & Neglect,13335343Google Scholar
  4. Angold, A., Messer, S., Stangl, D., Farmer, E., Costello, E., Burns, B. 1998Perceived parental burden and service use for child and adolescent psychiatric disordersAmerican Journal of Public Health887580Google Scholar
  5. American Psychiatric Association1994Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition.American Psychiatric AssociationWashington, DCGoogle Scholar
  6. Birenbaum, A., Guyot, D., Cohen, H. 1990Health care financing for severe developmental disabilitiesMonographs of the American Association on Mental Retardation14 1150Google Scholar
  7. Bryson, S. 1996Epidemiology of autism - Brief reportJournal of Autism and Developmental Disorders26 165167Google Scholar
  8. Center for Mental Health Services1999Annual report to Congress on the Evaluation of the Comprehensive Community Mental Health Services for Children and their Families ProgramORC MacroAtlanta, GAGoogle Scholar
  9. Cook, E., Kieffer, J., Charak, D., Leventhal, B. 1993Autistic disorder and post-traumatic stress disorderJournal of the American Academy of Child & Adolescent Psychiatry3212921294Google Scholar
  10. Eisenmajer, R., Prior, M., Leekam, S., Wing, L., Gould, J., Welham, M., Ong, B. 1996Comparison of clinical symptoms in autism and Asperger’s disorderJournal of the American Academy of Child & Adolescent Psychiatry3515231531Google Scholar
  11. Fendrich, M., Johnson, T., Wislar, J., Nageotte, C. 1999Accuracy of parent mental health service reporting: results from a reverse record-check studyJournal of the American Academy of Child & Adolescent Psychiatry38147155Google Scholar
  12. Filipek, P., Accardo, P., Ashwal, S., Baranek, G., Cook, E., Dawson, G., Gordon, B., Gravel, J., Johnson, C., Kallen, R., Levy, S., Minshew, N., Ozonoff, S., Prizant, B., Rapin, I., Rogers, S., Stone, W., Teplin, S., Tuchman, R., Volkmar, F. 2000Practice Parameter: screening and diagnosis of autismNeurology55468479Google Scholar
  13. Folstein, S., Rosen-Sheidley, B. 2001Genetics of autism: complex aetiology for a heterogeneous disorderNature Reviews Genetics2943955Google Scholar
  14. Hill, A., Bolte, S., Petrova, G., Beltcheva, D., Tacheva, S., Poustka, F. 2001Stability and interpersonal agreement of the interview-based diagnosis of autismPsychopathology34187191Google Scholar
  15. Holden, E., Friedman, R., Santiago, R. 2001Overview of the National Evaluation of the Comprehensive Community Mental Health Services for Children and their Families ProgramJournal of Emotional and Behavioral Disorders9412Google Scholar
  16. Howlin, P., Clements, J. 1995Is it possible to assess the impact of abuse on children with pervasive developmental disorders?Journal of Autism and Developmental Disorders25337354Google Scholar
  17. Jacobson, J., Mulick, J. 2000System and cost research issues in treatments for people with autistic disordersJournal of Autism & Developmental Disorders30585593Google Scholar
  18. Jarbrink, K., Knapp, M. 2001The economic impact of autism in BritainAutism5722Google Scholar
  19. Mahoney, W., Szatmari, P., MacLean, J., Bryson, S., Bartolucci, G., Walter, S., Jones, M., Zwaigenbaum, L. 1998Reliability and accuracy of differentiating pervasive developmental disorder subtypesJournal of the American Academy of Child & Adolescent Psychiatry37278285Google Scholar
  20. Mandell, D., Listerud, J., Levy, S., Pinto-Martin, J. 2002Race Differences in the Age of Diagnosis among Medicaid-Eligible Children with AutismJournal of the American Academy of Child & Adolescent Psychiatry4114471453Google Scholar
  21. Matson, J., Benavidez, D., Compton, L., Paclawskyj, T., Baglio, C. 1996Behavioral treatment of autistic persons: a review of research from 1980 to the presentResearch in Developmental Disabilities17433465Google Scholar
  22. Mourridsen, S., Rich, B., Isager, T. 1999Psychiatric morbidity in disintegrative psychosis and infantile autism: a long-term follow-up studyPsychopathology32177183Google Scholar
  23. Palfrey, J., Singer, J., Walker, D., Butler, J. 1987Early identification of children’s special needs: a study in five metropolitan communitiesJournal of Pediatrics111651659Google Scholar
  24. Perkins, M., Wolkind, S. 1991Asperger’s syndrome: who is being abused?Archives of Disease in Childhood66693695Google Scholar
  25. Roberts, S., Garralda, E., Renfrew, D. 2001Schizotypal disorder among child and adolescent mental health service usersJournal of the American Academy of Child & Adolescent Psychiatry401366Google Scholar
  26. Stroul, B., Friedman, R. 1986A system of care for severely emotionally disturbed children and youthGeorgetown University Child Development Center, CASSP Technical Assistance Center Washington, DCGoogle Scholar
  27. Tharinger, D., Horton, C., Millea, S. 1990Sexual abuse and exploitation of children and adults with mental retardation and other handicapsChild Abuse & Neglect14301312Google Scholar
  28. U.S. Department of Education2001Twenty-third annual report to congress on the implementation of the Individuals with Disabilities Education ActBureau of Special EducationJessup, MD Google Scholar
  29. Volkmar, F., Cook, E., Pomeroy, J., Realmuto, G., Tanguay, P. 1999Practice Parameters for the assessment and treatment of children, adolescents and adults with autism and other pervasive developmental disordersJournal of the American Academy of Child & Adolescent Psychiatry3832S54SGoogle Scholar
  30. Walrath, C., Miech, R., Holden, E., Santiago, R., Leaf, P. 2003Child Functioning in Rural and Non-Rural Systems of CareJournal of Behavioral Health Services Research30452461Google Scholar
  31. Wing, L. 1993The definition and prevalence of autism: A reviewEuropean Child and Adolescent Psychiatry26174Google Scholar
  32. Wu, P., Hoven, C., Bird, H., Moore, R., Cohen, P., Alegria, M., Dulcan, M., Goodman, S., Horwitz, S., Lichtman, J., Narrow, W., Rae, D., Regier, D., Roper, M. 1999Depressive and disruptive disorders and mental health service utilization in children and adolescentsJournal of the American Academy of Child & Adolescent Psychiatry38 10811090Google Scholar
  33. Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., Murphy, C. 2003Prevalence of autism in a US metropolitan areaJournal of the American Medical Association2894955Google Scholar

Copyright information

© Springer Science+Business Media, Inc. 2005

Authors and Affiliations

  • David S. Mandell
    • 1
  • Christine M. Walrath
    • 2
  • Brigitte Manteuffel
    • 2
  • Gina Sgro
    • 2
  • Jennifer Pinto-Martin
    • 3
  1. 1.Center for Mental Health Policy and Services Research, University of Pennsylvania School of MedicinePhiladelphia
  2. 2.ORC MacroUniversity of Pennsylvania School of MedicinePhiladelphia
  3. 3.University of Pennsylvania School of NursingPhiladelphia

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