HEC Forum

, Volume 25, Issue 4, pp 289–310 | Cite as

For the Benefit of Another: Children, Moral Decency, and Non-therapeutic Medical Procedures

Article
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Abstract

Parents are usually appreciated as possessing legitimate moral authority to compel children to make at least modest sacrifices in the service of widely shared values of moral decency. This essay argues that such authority justifies allowing parents to authorize a child to serve as an organ or tissue donor in certain circumstances, such as to authorize bone marrow donations to save a sibling with whom the potential donor shares a deep emotional bond. The approach explored here suggests, however, that at least under some conditions, parents have legitimate authority to authorize donations forbidden by current guidelines.

Keywords

Consent to treatment Pediatric consent Organ donation Bone marrow donation 

References

  1. American Academy of Pediatrics Committee on Bioethics. (2010). Policy statement—Children as hematopoietic stem cell donors. Pediatrics, 125, 392–404.CrossRefGoogle Scholar
  2. American Medical Association Council on Ethical and Judicial Affairs. (1993). The use of minors as organ and tissue donors. Accessed May 17, 2013, from http://www.ama-assn.org/resources/doc/ethics/ceja_3i93.pdf.
  3. Cheyette, C. (2000). Organ harvest from the legally incompetent: An argument against compelled altruism. Boston College Law Review, 41, 465–515.Google Scholar
  4. Crouch, R. A., & Elliott, C. (1999). Moral agency and the family: The case of living related organ transplantation. Cambridge Quarterly of Healthcare Ethics, 8, 274–287.CrossRefGoogle Scholar
  5. Delmonico, F. L., & Harmon, W. E. (2002). The use of a minor as a live kidney donor. American Journal of Transplantation, 2, 333–336.CrossRefGoogle Scholar
  6. Diekema, D., Joffe, S., Vandeven, A., & Lantos, J. (2011). Bone marrow donation between siblings living in different families. Pediatrics, 127, 158–162.CrossRefGoogle Scholar
  7. Dwyer, J., & Vig, E. (1995). Rethinking transplantation between siblings. Hastings Center Report, 25(September–October), 7–12.Google Scholar
  8. Feinberg, J. (1980). A child’s right to an open future. In W. Aiken & H. LaFollette (Eds.), Whose child? Parental rights, parental authority and state power (pp. 124–153). Totowa, NJ: Littlefield, Adams, and Co.Google Scholar
  9. Feinberg, J. (1984). The moral and legal responsibility of the bad samaritan. Criminal Justice Ethics, 3, 56–69.CrossRefGoogle Scholar
  10. Friedman, H. D. (1992). The greatest gift, but at what cost? Objections to court-compelled organ donations in aid of a family member. Journal of Family Law, 30, 605–627.Google Scholar
  11. Griner, R. W. (1993). Live organ donations between siblings and the best interest standard: Time for stricter judicial intervention. Georgia State University Law Review, 10, 589–613.Google Scholar
  12. Ibrahim, H. N., Foley, R., LiPing, T., Rogers, T., Bailey, R. F., Guo, H., et al. (2009). Long-term consequences of kidney donation. New England Journal of Medicine, 360, 459–469.CrossRefGoogle Scholar
  13. Jansen, L. A. (2004). Child organ donation, family autonomy, and intimate attachments. Cambridge Quarterly of Healthcare Ethics, 13, 133–142.CrossRefGoogle Scholar
  14. Kesselhiem, J. C., Lehmann, L. E., Styron, N. F., & Joffe, S. (2009). Is blood thicker than water? Ethics of hematopoietic stem cell donation by biological siblings of adopted children. Archives of Pediatric and Adolescent Medicine, 163, 413–416.CrossRefGoogle Scholar
  15. Korins, J. B. (1992). Curran v Bosze: Toward a clear standard for authorizing kidney and bone marrow transplants between siblings. Vermont Law Review, 16, 499–539.Google Scholar
  16. Ladd, R. E. (2004). The child as living donor: Parental consent and child assent. Cambridge Quarterly of Healthcare Ethics, 13, 143–148.CrossRefGoogle Scholar
  17. Mills, C. (2003). The child’s right to an open future? Journal of Social Philosophy, 34, 499–509.CrossRefGoogle Scholar
  18. Murphy, T. H. (1978). Minor donor consent to transplant surgery: A review of the law. Marquette Law Review, 62, 149–169.Google Scholar
  19. Murphy, J. G. (1980). Blackmail: A preliminary inquiry. Monist, 63, 156–171.CrossRefGoogle Scholar
  20. Noggle, R. (2002). Special agents: Children’s autonomy and parental authority. In D. Archard and C. Macleod (Eds.), The moral and political status of children. Oxford: Oxford University Press.Google Scholar
  21. Olbrische, M. E., Levenson, J. L., & Newman, J. D. (2010). Children as living organ donors: Current views and practice in the United States. Current Opinion in Organ Transplantation, 15, 241–244.CrossRefGoogle Scholar
  22. Opel, D. J., & Diekema, D. S. (2006). The case of A.R.: The ethics of sibling done bone marrow transplantation revisited. Journal of Clinical Ethics, 17, 207–219.Google Scholar
  23. Pentz, R. (2006). Duty and altruism: Alternative analyses of the ethics of sibling bone marrow donation. The Journal of Clinical Ethics, 17, 227–230.Google Scholar
  24. Prusak, B. G. (2008). Not good enough parenting: What’s wrong with a child’s right to and ‘open future’. Social Theory and Practice, 34, 271–291.CrossRefGoogle Scholar
  25. Rawls, J. (1993). Political liberalism. New York: Columbia University Press.Google Scholar
  26. Robbennolz, J. K., Weisz, V., & Lawson, C. M. (1995). Advancing the rights of children and adolescents to be altruistic: Bone marrow donation by minors. Journal of Law and Health, 9, 213–245.Google Scholar
  27. Robertson, J. A. (1976). Organ donations by incompetents and the substituted judgment doctrine. Columbia Law Review, 76, 48–78.CrossRefGoogle Scholar
  28. Ross, L. F. (1998). Children, families, and healthcare decision-making. Oxford: Oxford University Press.Google Scholar
  29. Ross, L. F., Thistlewaite, J. R., & American Academy of Pediatrics Committee on Bioethics. (2008). Minors as living solid-organ donors. Pediatrics, 122, 454–461.CrossRefGoogle Scholar
  30. Schoeman, F. (1983). Childhood competence and autonomy. Journal of Legal Studies, 12, 267–287.CrossRefGoogle Scholar
  31. Schoeman, F. (1985). Parental discretion and children’s rights: Background and implications for medical decision-making. Journal of Medicine and Philosophy, 10, 45–61.CrossRefGoogle Scholar
  32. Steinberg, D. (2004). Kidney transplants from young children and the mentally retarded. Theoretical Medicine, 25, 229–241.CrossRefGoogle Scholar
  33. Thomson, J. J. (1971). A defense of abortion. Philosophy & Public Affairs, 1, 47–66.Google Scholar

Copyright information

© Springer Science+Business Media Dordrecht 2013

Authors and Affiliations

  1. 1.Philosophy & Religion DepartmentCentral Michigan UniversityMt. PleasantUSA

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